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Newtoitall

Starving! Please Assist!

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Ok, so as it stands

Known issues with

Soy

Gluten (obv)

Lactose

and the worst one is Fructose Malabsorbtion (do you know how many delicious thing's that takes off the table)

Is there, by any chance, a book or online guide to recipes for such an intolerant person, Perhaps I'm just healing.

However I do need to stay Monk style for a while, when I eat badness it isn't just awe dayum for a night It get's me for like 2 days and the third being iffy.


Gluten Free since Xmas 2010

 

Current Auto Immune Diseases:

 

Celiac Disease, Interstitial Cystitis, IBS, Dermatitis Herpetiformis, I'm playing life on Hard Mode.

 

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Have you actually been tested ? You can sub rice milk, almond milk,vance's dairy free, better than milk for any dairy in recipes. There are many recipes on this

site plus you can google & you will find other sites that have gluten-free, df, cf....... all articial sweetners make me sick plus most of them are BAD for your intestinal tract anyway. I do not do soy either....the non-gluten free people at my house love vanilla almond breeze for the morning cereal....

hth mamaw

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Have you actually been tested ? You can sub rice milk, almond milk,vance's dairy free, better than milk for any dairy in recipes. There are many recipes on this

site plus you can google & you will find other sites that have gluten-free, df, cf....... all articial sweetners make me sick plus most of them are BAD for your intestinal tract anyway. I do not do soy either....the non-gluten free people at my house love vanilla almond breeze for the morning cereal....

hth mamaw

Tested, Negative, Only for celiac disease and that was positive and high first try.

Gastro app is on march 1st, screw going back on gluten the difference was obvious enough.

As for Fructose malabsorbtion and soy, those are based off how I felt after having things like soybean oil or soy lecathin or however that's spelt, and I had a small bowl of fruit one night, and the big bad D the next day, and my stomach wasn't to happy, then similar weird feelings from a bowl of jello... I mean really if jello does it that's sensitive =/

um from what I read It seems like intolerance testing is only at city hospitals I doubt I can here (I live in the sticks) but I do plan on trying to get tested, ugh and I know how you feel, when my cousins come down they GORGE themselfs on candy and chocolate and *tear* mint icecream..well ok I made that up I just have it sit there and look at the ice cream..got it at xmas >_> pre diagnoses oh the irony, got a HUGE pile of xmas candy all my favs cannot have any -.-


Gluten Free since Xmas 2010

 

Current Auto Immune Diseases:

 

Celiac Disease, Interstitial Cystitis, IBS, Dermatitis Herpetiformis, I'm playing life on Hard Mode.

 

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someone once told me to concentrate on what I CAN eat not what I cant.

Do you have a SAFE foods list?? (Foods that you know are safe for you to eat)

For me ,,right now the safest way for me to eat is very very plain simple meals

I dont know of a book or recipe site that would be helpful but I will watch this thread HOPING someone could suggest one


Gluten free Oct/09
Soy free Nov/10

 

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For fructose malabsorption, this is a list of safe foods, in a nice chart format:

http://www.healthhype.com/nutrition-guide-for-fructose-malabsorption.html

However, some other possibilities?

- What fruit did you eat when you got D? Apples, pears, and most citrus have wax coatings that are made from shellac wax, which has either soy or casein added to it! (when you cut into the citrus, if you are REALLY sensitive, the knife will pick up a little of what's on the peel and carry it into the fruit as you cut in.) So, the fruit could actually be soy, too! I believe there are some other fruits and veggies that might use shellac, but there are other waxes, too, and I only know the exact one for the above three. I know that some sprays for produce, preservative, fertilizers and such have gluten cc - I wonder how many have soy cc, too? If you react to the soy oil, I would think you may be very sensitive.

- It might be worth your while trying to find some sites for people with soy allergies - they tend to be really good about showing you hidden sources of soy, ya know? Although I'd go for the forums/personal blogs. They are a LOT more motivated due to personal interest. The doctor sites tend to be pretty, well, unaware about the REALLY hidden soy. For example, I found this, just on the first try (not so helpful, but just basic)

"Soy Allergy: Avoid These Ingredients

* edamame

* miso

* mono-diglyceride

* natto (Japanese fermented soybeans)

* tofu (soybean curds)

* okara (soy pulp)

* soya, soja, soybean, soyabean

* soy protein (isolate / concentrate)

* tempeh

* TSF (textured soy flour)

* TSP (textured soy protein)

* TVP (textured vegetable protein)*

* yuba (tofu skin)

* Textured vegetable protein can come from different vegetable sources, including soy.

You may also see the words "soy lecithin" on a label. Soy lecithin is a soy fat, not protein, and is often tolerated by those allergic to the soy protein. However, in some

circumstances, very sensitive individuals can react to it."

(from http://www.healthcastle.com/soy_allergy.shtml)

- also, something to look out for is there is a lot of fraud going on with olive oil right now, where cheap soy oil is being substituted with a dye, instead. If you react to an olive oil, you may want to assume soy and try another one, at first.

- for jello - it doesn't have fructose, but sucrose, so that'd be sugar cane. However, many celiacs have more trouble with dyes and preservatives, so that might be more of the issue, ya know? Or you have trouble with fructose and sucrose, both.

Good luck to you!


T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive

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someone once told me to concentrate on what I CAN eat not what I cant.

Do you have a SAFE foods list?? (Foods that you know are safe for you to eat)

For me ,,right now the safest way for me to eat is very very plain simple meals

I dont know of a book or recipe site that would be helpful but I will watch this thread HOPING someone could suggest one

Sadly I don't, that is why I turned to here, but I guess I will have to just "bea tuffy" and deal with it, all I eat atm is like plain chicken, plain roast beef, and canned chicken >_> I've been eating mccains shoestring, they seem to be ok, but I'm dealing with some sort of stomach issue so often lately I really can't tell =/

Mom decided to make toffy -.- and I decided to try it, was fine till the next day and the day after -.-

I really don't know how people deal with this it's driving me nuts.


Gluten Free since Xmas 2010

 

Current Auto Immune Diseases:

 

Celiac Disease, Interstitial Cystitis, IBS, Dermatitis Herpetiformis, I'm playing life on Hard Mode.

 

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90% of my meals consist of poultry and veggies. At this point I'm quite happy with it.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Sadly I don't, that is why I turned to here, but I guess I will have to just "bea tuffy" and deal with it, all I eat atm is like plain chicken, plain roast beef, and canned chicken >_> I've been eating mccains shoestring, they seem to be ok, but I'm dealing with some sort of stomach issue so often lately I really can't tell =/

Mom decided to make toffy -.- and I decided to try it, was fine till the next day and the day after -.-

I really don't know how people deal with this it's driving me nuts.

my meals ,,right now are very very basic,include

lamb,ground lamb being the best,

turkey,, chicken is a no-no for me but turkey is OK

veggies,carrots,green peas,green beans,yellow squash,bok choy and yummy sweet potatoes

white rice

frozen ( never canned )peaches

that is my safe foods list,,these foods i know i can eat without a reaction

not many yet but I am content to slowly try expanding that list


Gluten free Oct/09
Soy free Nov/10

 

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Ok, so as it stands

Known issues with

Soy

Gluten (obv)

Lactose

and the worst one is Fructose Malabsorbtion (do you know how many delicious thing's that takes off the table)

Is there, by any chance, a book or online guide to recipes for such an intolerant person, Perhaps I'm just healing.

However I do need to stay Monk style for a while, when I eat badness it isn't just awe dayum for a night It get's me for like 2 days and the third being iffy.

Have you looked at the Specific Carbohydrate Diet (SPD)? Many people on this site follow it. http://www.breakingtheviciouscycle.info/beginners_guide/beginners.htm


Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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