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Mateja

Genetic Test For Celiac Disease

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Hay!

What do you think about results? Are there any relationship with celiac disease?

HLA: DQ6(1), DQ9(3) (serological equivalent)

Allels:

HLA-DQB1*03:03:02

HLA-DQB1*06

Thanks! :)

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I am a double DQ9 and had a lot of issues before diagnosis including severe neurological impact. In the US not all doctors consider it a celiac related gene, it is thought to be more associated with RA (which I was thought to have and is now in remission). In the Middle and Far East it is considered a celiac associated gene.

I don't know about the DQ6 but hopefully someone else will.

If you have symptoms even if you are negative on testing do give the diet a good strict try after all celiac related testing is done.

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Thank you very much!

I am on gluten-free diet about 5 mounths. Diarrhea disappear and nausea reduced, but gastritis and reflux don't disappear. Somethimes I hard to breathe and have skin itching. Maybe I am intolerant on some other food too? I have a diarrhea, gastritis, reflux and nausea when I was a child too. I lost 22 lbs in last 6 mounth before diet. When I start gluten-free diet I don't lose any pounds but I can't to gain weight. Now I am 23 years old. What do you thing about this? :)

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Thank you very much!

I am on gluten-free diet about 5 mounths. Diarrhea disappear and nausea reduced, but gastritis and reflux don't disappear. Somethimes I hard to breathe and have skin itching. Maybe I am intolerant on some other food too? I have a diarrhea, gastritis, reflux and nausea when I was a child too. I lost 22 lbs in last 6 mounth before diet. When I start gluten-free diet I don't lose any pounds but I can't to gain weight. Now I am 23 years old. What do you thing about this? :)

Have you tried eliminating soy and dairy for a bit? I am now okay with most dairy but soy is out for me for ever. It gives me horrible stomach pain. The skin issue, is it a rash or just a general itchiness? If it is a rash you may have DH in which case eliminating iodine for a time is usually needed to clear it up.

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Have you tried eliminating soy and dairy for a bit? I am now okay with most dairy but soy is out for me for ever. It gives me horrible stomach pain. The skin issue, is it a rash or just a general itchiness? If it is a rash you may have DH in which case eliminating iodine for a time is usually needed to clear it up.

I eliminated dairy and that helped me, but soy I didn't. I will try. I am thinking about doing tests for intolerance on other food. That may help me. I have a general itchiness without rash. How long did the recovery in your case?

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I eliminated dairy and that helped me, but soy I didn't. I will try. I am thinking about doing tests for intolerance on other food. That may help me. I have a general itchiness without rash. How long did the recovery in your case?

With the DH that resolved pretty quick once I dropped iodine. It took a while for the lesions to heal but new outbreaks stopped.

As far as my other recovery went it depended on the system. I haven't had a migraine since the day I went gluten free, unless glutened. My D stopped really quick, like within a couple weeks gluten-free. My sporatic severe stomach pain didn't stop until I dropped the soy completely. It was sporatic because I didn't eat it often and for a long time I thought it was CC in products that were gluten free. It took quite a while for me to realize what all the products had in common was soy. The neuro damage and arthritis took about 6 months to see improvement and the neuro damage wasn't completely resolved for years but I had very severe neuro impact that had been present since childhood.

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Hay!

What do you think about results? Are there any relationship with celiac disease?

HLA: DQ6(1), DQ9(3) (serological equivalent)

Allels:

HLA-DQB1*03:03:02

HLA-DQB1*06

Thanks! :)

I'm a DQ8 (a subgroup of DQ3 and main celiac gene) and a DQ6 ( a subgroup of DQ1 and predisposes for non-celiac sprue) This combination results in a worse celiac response. Gluten, actually fragments of gliadin a gluten protein, start off the celiac autoimmune reaction in DQ8 people and in DQ6 people the gluten flattens villi in the small intestine causing the non-celiac sprue.

What lab did the tests. I'd like to see how they dod the test and why it reads HLA-DQB1* 30:03:02. I'm not familiar with that way of reporting the assay results.

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I'm a DQ8 (a subgroup of DQ3 and main celiac gene) and a DQ6 ( a subgroup of DQ1 and predisposes for non-celiac sprue) This combination results in a worse celiac response. Gluten, actually fragments of gliadin a gluten protein, start off the celiac autoimmune reaction in DQ8 people and in DQ6 people the gluten flattens villi in the small intestine causing the non-celiac sprue.

What lab did the tests. I'd like to see how they dod the test and why it reads HLA-DQB1* 30:03:02. I'm not familiar with that way of reporting the assay results.

I know this is an older post but if you're still around, I would LOVE to know where you got this information...this is exactly what I was looking for. Both of my daughters have this genetic combination and they are both very sensitive to gluten but neither have an "official" diagnosis.

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Oh my god - Same. I am DQ8/DQ6 but told that DQ6 was of no consequence. And my symptoms are life threatening...hmm - if this is true it could be the answer to all my questions!

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it is the DQ1 that makes this more severe.

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it is the DQ1 that makes this more severe.

So DQ6 (or DQ1) makes the symptoms more severe? That would explain why my girls are so sensitive, why we have to have a completely gluten free house for them to not have any symptoms, and why they can't even tolerate most gluten free foods because of CC. I wish doctors would get on board with this.

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there are even at least two-three forums with such people, and many are DQ1 over there.

gluten sensitivity on braintalk, and on neurotalk, and glutenfreeandbeyond forums

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there are even at least two-three forums with such people, and many are DQ1 over there.

gluten sensitivity on braintalk, and on neurotalk, and glutenfreeandbeyond forums

Thank you so much! I will check these out

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