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maximoo

Is Urgency A Symptom?

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Hey gang: Is urgency to go (ya know #2) a symptom of celiac? Someone in my family on infrequent occassions will suddenly have to go & if they don't get to a toilet with a minute or two they will have an accident. Its that fast & out of the blue. They cannot hold it at all. Fatigue/foggy brain is only other thing we can think of. (they have been accused of being passive-aggressive which we think is the foggy brain ) This person is in their mid 40's.

what do you guys think?

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Those were two of my symptoms.


Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

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oh yeah


Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free

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ok then does the fact that it is infrequent make it possibly NOT a symptom? The family member says it isn't diarrhea, that its just loose, fast & furious. not too graphic I hope) Oh and now I am told the anus stings & burns alot. Sry if thats not important.

I will advise them to keep a food diary until they can get tested.

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Oh no apologies. We talk about poo all the time on here :lol:

fast, furious,burning and painful

I burned down there for the longest time

during and after a BM... just agony

OR

hard, small marbles, like passing glass shards

I've run the gamut

frequent or infrequent

makes no matter

fatigue

foggy brain

yup, yup

It is not "normal" to have an urge and be unable to control it.

Urinary urgency is also a symptom. Abdominal swelling and GI tract inflammation presses on that bladder and makes for some irritation.

I just PMed you (personal messenger) with a link to over 300 symptoms of celiac disease. Just FYI! ;) Some things that may seem "unrelated" add up. I had so many weird symptoms-- but when I saw that list, I felt validated. :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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irishHeart,May you please send me that list as well?Ive been in and out of hospital and drs.Tested for lupus etc...and from what im reading on this forum from anxiety to joint pain and so on.I feel i have celiac. Thank you

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irishHeart,May you please send me that list as well?Ive been in and out of hospital and drs.Tested for lupus etc...and from what im reading on this forum from anxiety to joint pain and so on.I feel i have celiac. Thank you

absolutely, hon! here you go..

http://glutenfreeworks.com/gluten-disorders/celiac-disease/symptom-guide/


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Hey Irish: yes I got the list (again) lol,,, anyway urgency doesn't seem to appear on the list but maybe there is a name for it that I don't recognize,--same for the burning butt. I mean it doesn't say burning butt syndrome LOL... Oh yeah now I am told there is heartburn by my family member. Seems to be adding up...

On the list is hangnail. Well how is hang nail a symptom--geez you can snag your nail on anything.

BTW what stopped your butt from burning? A&D ointment was used with little effect & now triple antibiotic is being used which is a little better.

On a side note my DD' s hair has hardly grown in over a yr & has a lot of breaking. And it seems drier than usual--I don't see this on the list--maybe unrelated?

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anyway urgency doesn't seem to appear on the list

same for the burning butt.

BTW what stopped your butt from burning?

On a side note my DD' s hair has hardly grown in over a yr & has a lot of breaking. And it seems drier than usual--I don't see this on the list--maybe unrelated?

Sorry if I sent it twice. My bad.

Took a few months,but no more gluten passing through and reduced inflammation stopped my butt from burning.

Urinary tract infections and bladder pain --symptoms of celiac disease-- confirmed by my GYN. Also, burning girlie parts. Great fun. :huh:

Hair loss is on the list. Lots of people have this issue on here. Me included. :( Mine is so thin and breaks off easily.

There may be things that are NOT on the list. Yet. They update frequently.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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@Irish, No not hair loss or thinning--just not growing or barely growing & a big chunk broke of so all the lengths are very uneven. . The hair is still thick & curly. I think it has to do with the vit D deficiency. I got her on gluten-free multi-vits Plus a calcium chewy & extra Vit D I suspect hair will grow now. She always had & still has beautiful strong fingernails but her toenails are softer. Go figure.

Back to the burning butt, did you try any ointments or creams that helped?

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Butt tip: baby powder or cornstarch sometimes helps.

:)


glutenfree since 6/2011. sick for 30 years.

borderline blood test, negative biopsy.

SEVERELY sensitive celiac with DH. sensitive to contact and ingestion.

asthma (was severe; improved exponentially after 6/11)

spina bifida & childhood SCI at L4/L5 (possibly complicated by weak bones)

countless fractures and infections.

i once listed over 100 symptoms or conditions that improved or were eliminated after 6/11.

very vegan. and, of course, i've also discovered some other food allergies.

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@Irish, No not hair loss or thinning--just not growing or barely growing & a big chunk broke of so all the lengths are very uneven. . The hair is still thick & curly. I think it has to do with the vit D deficiency. I got her on gluten-free multi-vits Plus a calcium chewy & extra Vit D I suspect hair will grow now. She always had & still has beautiful strong fingernails but her toenails are softer. Go figure.

Back to the burning butt, did you try any ointments or creams that helped?

alopecia--hair loss in chunks. on the list.Those spots should grow back in.

I tried things, but frankly, nothing helped. That has stopped now that I am gluten free...


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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My GI issues with BM were also random. Time, urgency, frequency, consistency, there was nothing the was the same it seemed like. The only thing I never had was constipation.


Undiagnosed for 20 years since first symptoms.

March 2009 - Negative Blood work

April 24, 2009 - Gluten-free

April 29, 2009 - Notably positive response to gluten-free Diet.

May 2, 2009 Dairy Free

May 6, 2009, Soy Free

May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8

June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)

June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.

July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)

August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

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Family member is skeptical but I am making leeway. i think they will finally join or at east lurk.

@Irish, There aren't any hair loss spots. I am not explaining correctly I guess. a piece of DD's hair broke off-- like in half. No hair is missing from the scalp. its the same as like cutting half a chuck of hair off. Alopecia as I understand it, is hair falling out causing bald patches, right?

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