Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Is Urgency A Symptom?

maximoo

Recommended Posts

maximoo Enthusiast
maximoo
Posted

Hey gang: Is urgency to go (ya know #2) a symptom of celiac? Someone in my family on infrequent occassions will suddenly have to go & if they don't get to a toilet with a minute or two they will have an accident. Its that fast & out of the blue. They cannot hold it at all. Fatigue/foggy brain is only other thing we can think of. (they have been accused of being passive-aggressive which we think is the foggy brain ) This person is in their mid 40's.

what do you guys think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

Those were two of my symptoms.

Diane-in-FL Explorer
Diane-in-FL
Posted

Mine too.

txplowgirl Enthusiast
txplowgirl
Posted

oh yeah

maximoo Enthusiast
maximoo
Posted
  • Author

ok then does the fact that it is infrequent make it possibly NOT a symptom? The family member says it isn't diarrhea, that its just loose, fast & furious. not too graphic I hope) Oh and now I am told the anus stings & burns alot. Sry if thats not important.

I will advise them to keep a food diary until they can get tested.

IrishHeart Veteran
IrishHeart
Posted

Oh no apologies. We talk about poo all the time on here :lol:

fast, furious,burning and painful

I burned down there for the longest time

during and after a BM... just agony

OR

hard, small marbles, like passing glass shards

I've run the gamut

frequent or infrequent

makes no matter

fatigue

foggy brain

yup, yup

It is not "normal" to have an urge and be unable to control it.

Urinary urgency is also a symptom. Abdominal swelling and GI tract inflammation presses on that bladder and makes for some irritation.

I just PMed you (personal messenger) with a link to over 300 symptoms of celiac disease. Just FYI! ;) Some things that may seem "unrelated" add up. I had so many weird symptoms-- but when I saw that list, I felt validated. :)

stella6923 Newbie
stella6923
Posted

irishHeart,May you please send me that list as well?Ive been in and out of hospital and drs.Tested for lupus etc...and from what im reading on this forum from anxiety to joint pain and so on.I feel i have celiac. Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

irishHeart,May you please send me that list as well?Ive been in and out of hospital and drs.Tested for lupus etc...and from what im reading on this forum from anxiety to joint pain and so on.I feel i have celiac. Thank you

absolutely, hon! here you go..

Open Original Shared Link

maximoo Enthusiast
maximoo
Posted
  • Author

Hey Irish: yes I got the list (again) lol,,, anyway urgency doesn't seem to appear on the list but maybe there is a name for it that I don't recognize,--same for the burning butt. I mean it doesn't say burning butt syndrome LOL... Oh yeah now I am told there is heartburn by my family member. Seems to be adding up...

On the list is hangnail. Well how is hang nail a symptom--geez you can snag your nail on anything.

BTW what stopped your butt from burning? A&D ointment was used with little effect & now triple antibiotic is being used which is a little better.

On a side note my DD' s hair has hardly grown in over a yr & has a lot of breaking. And it seems drier than usual--I don't see this on the list--maybe unrelated?

IrishHeart Veteran
IrishHeart
Posted

anyway urgency doesn't seem to appear on the list

same for the burning butt.

BTW what stopped your butt from burning?

On a side note my DD' s hair has hardly grown in over a yr & has a lot of breaking. And it seems drier than usual--I don't see this on the list--maybe unrelated?

Sorry if I sent it twice. My bad.

Took a few months,but no more gluten passing through and reduced inflammation stopped my butt from burning.

Urinary tract infections and bladder pain --symptoms of celiac disease-- confirmed by my GYN. Also, burning girlie parts. Great fun. :huh:

Hair loss is on the list. Lots of people have this issue on here. Me included. :( Mine is so thin and breaks off easily.

There may be things that are NOT on the list. Yet. They update frequently.

maximoo Enthusiast
maximoo
Posted
  • Author

@Irish, No not hair loss or thinning--just not growing or barely growing & a big chunk broke of so all the lengths are very uneven. . The hair is still thick & curly. I think it has to do with the vit D deficiency. I got her on gluten-free multi-vits Plus a calcium chewy & extra Vit D I suspect hair will grow now. She always had & still has beautiful strong fingernails but her toenails are softer. Go figure.

Back to the burning butt, did you try any ointments or creams that helped?

Jenniferxgfx Contributor
Jenniferxgfx
Posted

Butt tip: baby powder or cornstarch sometimes helps.

:)

IrishHeart Veteran
IrishHeart
Posted

@Irish, No not hair loss or thinning--just not growing or barely growing & a big chunk broke of so all the lengths are very uneven. . The hair is still thick & curly. I think it has to do with the vit D deficiency. I got her on gluten-free multi-vits Plus a calcium chewy & extra Vit D I suspect hair will grow now. She always had & still has beautiful strong fingernails but her toenails are softer. Go figure.

Back to the burning butt, did you try any ointments or creams that helped?

alopecia--hair loss in chunks. on the list.Those spots should grow back in.

I tried things, but frankly, nothing helped. That has stopped now that I am gluten free...

Korwyn Explorer
Korwyn
Posted

My GI issues with BM were also random. Time, urgency, frequency, consistency, there was nothing the was the same it seemed like. The only thing I never had was constipation.

maximoo Enthusiast
maximoo
Posted
  • Author

Family member is skeptical but I am making leeway. i think they will finally join or at east lurk.

@Irish, There aren't any hair loss spots. I am not explaining correctly I guess. a piece of DD's hair broke off-- like in half. No hair is missing from the scalp. its the same as like cutting half a chuck of hair off. Alopecia as I understand it, is hair falling out causing bald patches, right?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
    2. Joseph01
      - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

      This is way past due for your post. I have Celiac and have been recovering for more than a year. Doing well. Used Essential oil to day to fry some chicken. Read the label all good. Then ate some chicken. Here comes the gluten reaction. I haven't had a gluten reaction since year. I am angry. I have been so careful with this crap and don't wan't any...
    3. ThomasA55
      - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I...
    5. knitty kitty
      - knitty kitty replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

      Do keep in mind that many of the newly diagnosed have lactose intolerance. This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse. When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      We Keep Getting Glutened With Vegetable Oil

      By Joseph01 · Posted

      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
×
×
  • Create New...