Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Question For Australians

Twinklestars

Recommended Posts

Twinklestars Contributor
Twinklestars
Posted
  • Author
:lol: mushroom!! That's how I may have ended up being glutened by the ham. It's really not something you think about when you don't have to. Many people are just so oblivious to what celiac is and that you can get sick from CC. I really think that all staff working in the hospitality industry where food is involved should undergo a course that explains allergies and intolerances. And there should be a manual that they can reference in the kitchen.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Di2011 Enthusiast
Di2011
Posted

Yes!! I had someone trying to peddle me some shaved ham, assuring me it was gluten free, and when I asked if she cleaned the slicer before "shaving" it she had this really puzzled expression for a minute and then the lighbulb turned on and she admitted "no". :lol:

I have been working in a kitchen (yeah.. I know.. seems stupid but it is speeding up my alergy testing like nothing 'home' testing can) where we serve school camps coming to Canberra. Recently an 'elimination' diet child came for about 2 x 4 days of meals. I was amazed that the regular staff and the cook/chef thought some on a 'gluten free' diet could have the tinned spaghetti (on gluten free toast!). When I enquired I was told the mother said that the spaghetti was okay. The parent had reviewed the regular menu and so we feed this sick looking anemic child tinned spaghetti - very hard for me personally - and probably set the families 'elimination diet' back weeks.

mushroom Proficient
mushroom
Posted

I have been working in a kitchen (yeah.. I know.. seems stupid but it is speeding up my alergy testing like nothing 'home' testing can) where we serve school camps coming to Canberra. Recently an 'elimination' diet child came for about 2 x 4 days of meals. I was amazed that the regular staff and the cook/chef thought some on a 'gluten free' diet could have the tinned spaghetti (on gluten free toast!). When I enquired I was told the mother said that the spaghetti was okay. The parent had reviewed the regular menu and so we feed this sick looking anemic child tinned spaghetti - very hard for me personally - and probably set the families 'elimination diet' back weeks.

Poor kid. We can choose our friends but we can't help it if we're born to dumb parents :unsure:

cougie23 Explorer
cougie23
Posted

:lol: mushroom!! That's how I may have ended up being glutened by the ham. It's really not something you think about when you don't have to. Many people are just so oblivious to what celiac is and that you can get sick from CC. I really think that all staff working in the hospitality industry where food is involved should undergo a course that explains allergies and intolerances. And there should be a manual that they can reference in the kitchen.

Totaly...my little guy is alergic to shrimp and peanuts and seems to have outgrown a milk allergy.

A few years back,there was a Panda Express inside the grocery store we used to shop at,

Now and then we would buy a little Orange chicken to snack on while we shopped,,,It was his favorite! Well we noticed a few times he was having trouble swallowing and his lips were a little puffy...we were'nt sure why!

The confusing thing was this only happened once in a while, not every time...so we couldn't pin point the exact cause!

Then one day we had our little snack and his throat closed up on him ...he couldn't swallow and had the chicken stuck in his throat!! wouldn't come up,wouldn't go down! he could breath ok...but was very uncofortable..very mucusy,,,face spotty ,a little puffy!

It wasn't quite bad enough to go to the ER but we were ready if he got any worse.

We took him home and tried to get the chicken to go down by having him drink Pepsi ( its a great trick for this type of problem because the acid softens the outer part of the food and the carbonation loosens it as well!!!) finally the whole thing came flying out...litterly!!!

It wasn't till later we found out what really had happened....they were cooking the orange chicken in the same oil as the shrimp!!! we confrounted them on it and they said they didn't use the same oil but I've seen them use it all the time...they even use the same basket!!! talk about cross contamination!!! ;):blink::angry::angry:

Now we buy our Orange chicken at trader joes (in bag)its the same recipe as Panda Express but I make it at HOME!!!

Twinklestars Contributor
Twinklestars
Posted
  • Author

Oh, your poor boy :( That must have been scary.

Well I got a response from Don ham today :rolleyes: They're actually Don KR Castlemaine (I didn't realise they're all the same company!).

They said they are unable to provide a list of gluten free products and I should consult the ingredients on the package :huh:

That does not help me when I specifically told them which product I was asking about and that it was sliced a a deli!

Think I'll just stick to the prepackaged stuff.

beebs Enthusiast
beebs
Posted

I have been working in a kitchen (yeah.. I know.. seems stupid but it is speeding up my alergy testing like nothing 'home' testing can) where we serve school camps coming to Canberra. Recently an 'elimination' diet child came for about 2 x 4 days of meals. I was amazed that the regular staff and the cook/chef thought some on a 'gluten free' diet could have the tinned spaghetti (on gluten free toast!). When I enquired I was told the mother said that the spaghetti was okay. The parent had reviewed the regular menu and so we feed this sick looking anemic child tinned spaghetti - very hard for me personally - and probably set the families 'elimination diet' back weeks.

Omigod - I used to work in a place like that in Canberra - the Carotel!

desert rose Newbie
desert rose
Posted

No kidding. Heard Subway is testing gluten-free menus. I don't see how they could do it unless it's prepacked. They dip their hands in every container while they handle bread. Cut, pack, hand in container. NO THANKS!!!!

Subway is the one thing I really miss. But as you say the environment would have to be really controlled for me to trust them. Even then I couldnt take the risk.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anabananakins Explorer
anabananakins
Posted

Oh, your poor boy :( That must have been scary.

Well I got a response from Don ham today :rolleyes: They're actually Don KR Castlemaine (I didn't realise they're all the same company!).

They said they are unable to provide a list of gluten free products and I should consult the ingredients on the package :huh:

That does not help me when I specifically told them which product I was asking about and that it was sliced a a deli!

Think I'll just stick to the prepackaged stuff.

I had no idea they were the same company, Twinklestars. Weird - Don stuff doesn't make any gluten free claims but the KR Castlemaine stuff definately does. I wonder if they were two separate companies (with separate manufacturing plants) that ended up all owned by the same people.

Twinklestars Contributor
Twinklestars
Posted
  • Author

I had no idea they were the same company, Twinklestars. Weird - Don stuff doesn't make any gluten free claims but the KR Castlemaine stuff definately does. I wonder if they were two separate companies (with separate manufacturing plants) that ended up all owned by the same people.

That's what I was thinking. I was surprised to see it in the email. The Don website doesn't mention KR Castlemaine (that I saw). The wording in the email was dodgy. I'm definitely avoiding Don.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      These articles may be helpful:
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      5

      Skin issues

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph, by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some...
    3. N Young
      - N Young posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Frustrated with Providers

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time. Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten...
    4. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    5. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Test interpretations

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,115
    • Most Online (within 30 mins)
      10,442
    Ginarwebb
    Newest Member
    Ginarwebb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Iron loss and potential celiac.

      By Scott Adams · Posted

      These articles may be helpful:    
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph,  by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some pills ! I made the mistake of saying Im waiting on Infectious disease. She asked how did I get referral and I said I did it online.The next day I checked the status and it was denied! I did get  a referral to the dermatology office i went to last year that over charged me and did a biopsy on me stating inconclusive! I went to another dermatologist and he stated I should see Infectious disease at place i put in referral. With that I contacted that dermatologist and waiting to see if he thinks dermatology or Infectious disease is the route.I do have appointment for dermatology next week.Until then i did purchase Zahler paraGuard advance intestinal  flora support  from Sprouts. Im also very alarmed that the fact celiac isn't addressed properly infact its downplayed. When I had my son tested for HLA-DQ2 and it came out positive because he is eating everything and he is extremely skinny but he isn't dealing with severe diagestive issues because thats all he knows NOW or yet because he is still young 21.I too didn't know any difference when i was that age because thats all we know.Life changes will get him in latter years im afraid because what im dealing with.That scares me.The specialist we went to was only about congestion he is getting.He is getting congestion because he is eating what he isn't supposed too! Zero talk about celiac and HLA-DQ2 positive. Only talk was he is congested because we live in the Valley! They wanted to do surgery! I did write again to our district leader considering when I did call, the guy stated he knew all about celiac. I really wanted to tell him NO YOU DON'T but held my tongue. For my skin sores the cream given didn't do anything because ive also had in past.Ive been putting liquid vitamin c on it and taking vitamins which is making a little difference just with the last few days of doing.
    • N Young
      Frustrated with Providers

      By N Young · Posted

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time.   Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten challenge. I went on an elimination diet and found relief on the Dermatitis within a month. I have no doubt that I am celiac and very sensitive now. Now my issue is that I changed physicians due to retirement and he performed a blood test and included a celiac test. I was very upset because I did not request the test and had not been eating gluten for 25 years. Of course the test was negative.  My question - Will this cause me any issues with health treatment if my records now have that I dont have celiac? I like this physician and I am appalled that he performed the test. (he told me his brother is also celiac).  I feel that we are still living in the dark ages. I dont want to cause problems because I rarely need health treatment since I live a fairly healthy lifestyle.  Since I am at this age and been through so much getting to this point am I being unreasonable for being upset? I am not expecting to see this physician for another 2 months.  Need to know if I can expect issues with future treatments. How can a physician not know about the gluten challenge this day and age?   
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    • trents
      Test interpretations

      By trents · Posted

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour bread) for at least two weeks prior to the day of the procedure. @Ginarwebb, your tTG-IGA >250 would seem to be a pretty high test result, though to be sure of that statement, I would need to see what the lab used for a "normal" range. Do you have that number also? Different labs use different scales. There isn't an industry standard yet. The tTG-IGA is the centerpiece of celiac blood antibody testing. Your ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER (aka, "EMA") is positive as well. This is an older test, and a relative expensive one, compared to the tTG-IGA which has largely replaced. But the EMA is still ordered by some docs and is highly reliable. That both of them agree in your case and this is strong evidence that you have celiac disease. Concerning the ENDOMYSIAL ANTIBODY TITER (aka, "total IGA") being high, there are two things of importance. First, it tells us you are not "IGA deficient" such that your tTG-IGA test result is reliable. Second, a high total IGA test score can suggest other health concerns, some of which are serious. It can also mean nothing. Talk to your doctor about this. I would also suggest you research the implications of a high total IGA. In addition to IGA celiac diagnostic tests there are also IGG tests which are handy when total IGA is sub normal.  Here is an article outlining the various tests that can be run for diagnosing celiac disease:  
×
×
  • Create New...