Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Dermatitis Herpetiformis

snowy

Recommended Posts

snowy Newbie
snowy
Posted

Is a dignosis of dermatitis herpetiformis enough to clinch a celiac diagnosis? Would an endoscopic biopsy and blood testing really be necessary if the skin biopsy was positive? I feel much much better off gluten, but would like a "real" diagnosis for the benefit of my siblings and my children in regards to their medical history. Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

That is a " real" diagnosis of Celiac. It only occurs in Celiac as far as I know.

Open Original Shared Link

"A skin biopsy is sufficient to confirm the diagnosis of DH. DH is the skin manifestation of celiac disease."

Also:

Open Original Shared Link

mushroom Proficient
mushroom
Posted

You already have a real diagnosis - celiac disease :rolleyes:

hspichke Apprentice
hspichke
Posted

Is a dignosis of dermatitis herpetiformis enough to clinch a celiac diagnosis? Would an endoscopic biopsy and blood testing really be necessary if the skin biopsy was positive? I feel much much better off gluten, but would like a "real" diagnosis for the benefit of my siblings and my children in regards to their medical history. Thanks in advance!

I have a question about this. I will post a picture of my hands but I have this painful itchy blistery looking rash...does it look similar to yours? I am in the process of being diagnosed right now but don't see my Derm until Jan 6th. I'm afraid my rash will be gone by then because it usually comes for a wk or two then goes away for a month or two.. Did they do your biopsy when you had a rash or do you know if they can do it when it is not there.. If you don't know the answers that is fine just curious! Thanks :)

w1bf4p.webp

s13tk0.webp

pricklypear1971 Community Regular
pricklypear1971
Posted

I have a question about this. I will post a picture of my hands but I have this painful itchy blistery looking rash...does it look similar to yours? I am in the process of being diagnosed right now but don't see my Derm until Jan 6th. I'm afraid my rash will be gone by then because it usually comes for a wk or two then goes away for a month or two.. Did they do your biopsy when you had a rash or do you know if they can do it when it is not there.. If you don't know the answers that is fine just curious! Thanks :)

w1bf4p.webp

s13tk0.webp

Ouch!

hspichke Apprentice
hspichke
Posted

Sorry about that disgustingly large photo lol. I didn't know it would show up so big!

Di2011 Enthusiast
Di2011
Posted

Hspichke (what is that user name ???)

I have similar looking hands at the moment. Have you been on the DH thread on this forum?

If you haven't please take the time to read. If you have then it would be worth you

reposting to the DH thread.

Have you been officially diagnosed? Others as well as myself will be interested.

I started at the ankles and my (undiagnosed) DH has worked itself up - ankles up to now chest / upper arm

and lately my wrists and hands. I am hoping that it has worked itself out so to speak.

All of the regular DH tread members would be interested in your history.

Apology if you have posted and I missed it.

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lemontree1 Rookie
lemontree1
Posted

I get a similar looking rash on my elbows and knees. It comes and goes, and while I've found a few things that seem to trigger it (vitamin supplements), I don't know for sure what it is or what causes it.

lovegrov Collaborator
lovegrov
Posted

That looks a lot like my DH looked, but it's pretty hard to diagnose from a picture.

richard

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...