Non-Specific White Matter On Mri? Anyone Else Have This?

[GFinDC]

Here is an article that might help him out on the non-symptoms part:

Latent Celiac Disease Afflicts Many Who Tolerate Gluten

Celiac.com 11/08/2007 - A team of doctors led by Christophe Cellier from the Hopital European Georges Pompidou in Paris examined a group people who were diagnosed with celiac disease as children and who tolerated the introduction of gluten into their diets, and continued to consume gluten into their adult years.

A total of 61 patients were evaluated with a bowel biopsy. 13 of the subjects exhibited no indications of the disease, a condition known as latent celiac disease. 48 of the patients without symptoms showed celiac-related intestinal damage, a condition known as silent celiac disease.

The study team observed that a similar ratio of patients with both latent celiac and silent celiac disease exhibited minor symptoms of celiac disease. Both patients with symptoms and those without symptoms had similar indications of malabsorption and similar body mass indices.

............

So it is very possible to have celiac with little or no GI symptoms. Celiac can affect may parts of the body, and not just the intestines. The brain is one pretty important body part it can affect, as evidenced by gluten ataxia. There is no reason to think gluten ataxia is the only possible impact on the brain though. Many people on the forum report ""Brain Fog" as a symptom, and anger, depression and anxiety, are not unusual either. And then there are the gluten withdrawal symptoms that people report.

Brother would do well to get all his vitamin and mineral levels checked since those are often off with intestinal damage and malabsorption.

And he should listen to his sister too. I went to doctors myself and was told there was nothing wrong with me to explain my pain, except that my HDL-LDL cholesterol ratio was extremely good. Probably because I wasn't absorbing any fats! My sister researched my symptoms and handed me a stack of articles about celiac disease. The doctors were wrong, she was right. Sisters can be ok sometimes! 

[IrishHeart]

My sister researched my symptoms and handed me a stack of articles about celiac disease. The doctors were wrong, she was right. Sisters can be ok sometimes!

I wish MY sister with her diabetes, hypothyroidism, high BP, etc. would listen to this little sister who loves her deeply and knows she is a celiac, too.

sigh....

[pricklypear1971]

my conversation 10 minutes ago with my Dad, overctge phone.

******

Dad: "Welll, your mom got an X-ray and she has pneumonia. They gave her an antibiotic shot".

Me: "I'm glad you have a bathroom in the RV".

Dad "Oh, that already hit with the first pill they have her".

Me: "oh".

Dad: "You get that too? You didn't get THAT from me. I don't do that".

Me: "No, but you gave me that damn rash (DH)".

Dad: "Probably".

Me: "I can tell you how to fix that (rash), but you probably won't like it".

Dad: "You're right".

[cmdoppler]

My bio dad had those symptoms and his diagnosis was wagners granulamatosis. (autoimmune disorder)

[GFinDC]

I wish MY sister with her diabetes, hypothyroidism, high BP, etc. would listen to this little sister who loves her deeply and knows she is a celiac, too.

sigh....

They can be stubborn. My younger brother with T-2 diabetes and GI problems almost certainly has celiac, but he won't try the diet. My other brother is probably NCGI at least,but not interested in trying the diet either. I think letting them know once in awhile that it helps and isn't the end of the world to not eat gluten may have an impact eventually. At least I hope so. Whenever I visit I cook gluten-free for them so they see how easy it is. Maybe your sister will change her mind after a while. Stranger things have happened.

Gluten free, the way to be!

[IrishHeart]

Whenever I visit I cook gluten-free for them so they see how easy it is. Maybe your sister will change her mind after a while. Stranger things have happened.

They know I am a gourmet cook. They have experienced my dazzling creations.

But actually adopting the diet themselves? um, I am afraid hell will hold hockey games before my family members step away from the donuts, bread-coated fried foods and subway sammies. Not. Going. To. Happen.

I cannot keep saying things because they get mad at me.

I continue to pray to the heavens that something intervenes and changes their minds before it's too late.

But you are so right. Stranger things have happened!

[Geoff01]

Wow! I'm just seeing this 6 years later.  I hope your brother got the memo before now or he may be in serious trouble. All his symptoms can be attributed to celiac disease and if that's the case, he could be a lot worse by now if he still lives on hamburgers and beer.  Lots of good advice by all members.  Stay on gluten until a celiac disease blood screen and biopsy can be done then go gluten-free while you check for other contributing factors.  Its a pain in the ass but such an easy simple cure as opposed to pills and drugs.

I've had peripheral neuropathy for 30 years, slight and mostly numbness on the ball of my left foot but slowly progressing. Now numbness on top of the toes and on the right foot and I'm concerned about potential lameness.  I spent years trying to get a diagnosis of cause so I could treat it but our broken medical system just wanted to give me pills to treat the symptoms only and called it ideopathic. Then 2 yrs ago I realised that I had diarrhea after many meals, esp breakfast (toast and coffee) then 18 months ago, on a visit home, my sister reminded me that she had celiac disease and said that my symptoms sounded similar.  I had dermatitus herpatiformus attacks 9 and 5 years ago and the doctors thought it was some weird form of rubella, increasing gut problems and of course the underlying PN.  I have been for tests in the last year and found that I am negative for celiac disease blood tests ( but was mostly gluten-free at the time), positive for HLA-DQ2.2.  I've been gluten-free for 9 months and when glutened I get bloated, painful and sick 3-7 hours after, and spend 4 days on the couch with belly pain, no appetite and eventually constipation (much sicker than I ever felt when I was eating gluten every day). Recently on a trip to a neurologist to try to get some help with the PN and celiac disease connection, I took a whole bunch of papers. He agreed with me that there were no other obvious causes for PN tested my balance with eyes closed, which I failed, and sent me for a brain MRI. UBOs at the ends of sinuses in both lobes of the brain, similar to the brain of a sever migraine sufferer (or an 80 yr old) he said.  Needless to say I got really serious about my gluten-free diet after that. Hope your brother did too.  The evidence may be partly circumstantial but if you go gluten-free then have a strong reaction when you next have a hamburger as a test, I'd say that's a diagnostic certainty.

Oh!, Also my paternal grandmother and maternal grandfather both died of bowel cancer and my mother has lifelong IBS and Alzheimers.  All New Zealanders, Welsh, Irish and Scottish background.  Perfect storm!