Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Outrageous Things Doctors Have Told Me


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.

Wow! I think doctors are either too busy or do not want to admit they are less than Gods and dont know everything.

I also have had enamel deficiency since I was middle school. I am now almost twenty-two. I had hyperlordosis that was completely ignored for years and no one even mentioned as well as a degenerated disc at the base of my spine that no one mentioned despite a gazillion xrays. I found out recently on out of pocket trip to a chiropractor.

Link to comment
Share on other sites
dilettantesteph Collaborator

I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

Link to comment
Share on other sites
slee11211 Apprentice

Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

Link to comment
Share on other sites
Razzle Dazzle Brazell Enthusiast

Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

That is insane! It is ironic that medical doctor is the highest regarded profession and yet many of them dont pay any attention to what they are doing with people. It is like ordering soup and getting a bowl full of broth, a bowl of carrots, a bowl of uncooked chicken, a bowl of spices... It just makes no sense to me. We got each other though on this forum and we have to be our own advocates. I hope you and the OP get well.

Link to comment
Share on other sites
Razzle Dazzle Brazell Enthusiast

I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

That is very good. I wish my dentist would have thought, "This is odd; this girl is only ten and has enamel deficiency."He just mentioned it to me after my complaining of my teeth staying stained even though i dont drink tea or coffee.

Link to comment
Share on other sites
catsmeow Contributor

I have a severe wheat allergy.

I had one allergy doctor refuse to do food allergy testing on me, and told me that I have Vasomoto allergies (allergies without a cause), and I would be sick for the rest of my life, no medications would help, and he could do nothing for me, and there was nothing I could do about it. :blink:

Another doctor told me that my anaphylactic reactions were menopausal symptoms....LMAO. Wheat induced menopause....OMGosh!!! I'm not even in menopause. Someone quick, write a case study about me, I'm a medical anomaly!!! :P

Finally, another doctor tested me for food allergies and said, you have a severe wheat allergy and must be gluten free for life and carry an epi-pen. :)

Thank you for this thread, I needed some humor today....

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient
Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

Link to comment
Share on other sites
catsmeow Contributor

Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

You are right, I like humor better. I've cried plenty!!! :D

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,221
    • Most Online (within 30 mins)
      7,748

    lortaine
    Newest Member
    lortaine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...