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Latest Celiac Disease News & Research:
Everything posted by cap6
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I use Simple Green but honestly, I do not know of a product that does have gluten. You're pretty safe in this area!
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It sounds like you have made your decision and all I can do is wish you luck. You already have multiple autoimmune diseases, why take the chance of collecting more? I speak from eight years of experience. It is quite easy to eat gluten free and no more expensive than any other "diet". It's all in what you choose. You said you prefer processed foods...
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Celiac and span of life.
cap6 replied to Johnny55400's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Of course!. Just don't cheat. -
Kitchen and other questions
cap6 replied to Bookgirl32's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Slow and easy. !! -
We used to eat at our local Road house and they had a gluten free menu. That, however, was about four years ago. They suddenly canceled the g.f. menu and said that they "tried" to keep things gluten free. I'm thinking maybe they had too mkany people complain?
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The purpose of this little story is to give you all a smile and to say gluten lurks everywhere, even where we least expect it! We live in a rural area with a lot of wild creatures close by. Yesterday a raven flew overhead and dropped a piece of whole wheat bread, smack, in the middle of our small doggie yard. We saw the raven fly over and we saw it...
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Since moving to Central Oregon we eat out more than in the past, mainly because we have to drive 30 minutes to get to the next "big" town and like to indulge in a lunch out. That said, we have found more and more places that offer a separate gluten free menu which makes it so much easier. Even when ordering off of the g.f. menu I always state "I am ordering...
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Starbucks warning
cap6 replied to SherriN's topic in Gluten-Free Foods, Products, Shopping & Medications
This is something learned with experience. You may want to go with a simple coffee that offer less chance for cross contamination. Starbucks offers so many different drinks and do not "celiac" wash the equipment. -
I always say "allergy" as the establishment will take extra precautions. A lot of people eat g.f. by choice or have gluten intolerance and maybe don't have to be as careful . It's just easier to say "allergy".
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Again it is so different with everyone on reaction time. The first couple of years for me I swear I could feel it hit my gut almost immediately, now it takes a few hours.
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Everyone reacts slightly differently. Everything you describe sounds quite normal for a glutened reaction. For myself, I feel slightly sick to my stomach, then I get diarrhea, followed by cold, clammy sweaty chills, then comes the vomiting and think I am going to die followed by passing out followed by several days of constipation. This is followed by renewed...
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Taco Shells
cap6 replied to maeve1956's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh my!!! Don't think I will risk voicing my concerns about all of the unhealthy ingredients that were consumed and that could have caused the problems or that we shouldn't blame the slightest thing on cross contamination. Nope. Keeping my mouth shut here. -
Glutened By Barilla Pasta Sauce
cap6 replied to Bravie's topic in Gluten-Free Foods, Products, Shopping & Medications
All of the above is why I really push for eating whole fresh foods. Nothing processed. There should be no ingregient list to read. Healing is hard enough without subjecting our bodies to other ingredients that don't belong in our food. Heal first then try adding a food product. Just my little food rant for the day! -
Glutened By Barilla Pasta Sauce
cap6 replied to Bravie's topic in Gluten-Free Foods, Products, Shopping & Medications
Barilla is safe and most likely it was was of the other ingredients in it that bothered you. Possibly even the brand of pasta you used. Corn based pasta can be difficult to digest. Just a thought. -
It is a long time. But the frustrating part is that it is not constant but rather outbreaks. So.. I go to my primary dr and ask for a referral to the derm. By the time the referral comes through and I finally get the derm apt my lips are cleared up. The derm looks at me like I'm crazy. I try to explain and ask if I can call the next time I get an outbreak...
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American Airlines Gluten-Free Meals- Bad Experiences?
cap6 replied to MarzieK's topic in Traveling with Celiac Disease
I do not fly out of country so can't comment on that, however I do carry a letter from my doctor stating that I am Celiac and need to carry my own food etc. I have had to use it twice when my food amount was questioned. -
This posting really blew me away! My lips get very red and inflamed to the point where I look like one of those little kids that constantly licks their lips. They peel, heal and then we start the cycle all over again. Very embarrassing. This started about a year before I was diagnosed. I have been gluten free for five years now and still struggle with...
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A toothbrush glutening makes sense since various medical type articles I have read recommend that you switch to a new brush if you have been sick.
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I have shared (my partner is now gluten free having just been diagnosed gluten intolerant!) with no problem. Also we just use crest.
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Refractory Celiac Disease
cap6 replied to Pagosapig's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Eight months is not that long and depending on your age I wouldn't consider that long enough for a complete gut healing. Children heal quickly. The older you are and the sicker you were, the longer the healing process. Two years is not uncommon. Before you can consider refractory you need to consider everything - age, how sick where you, is your home...- 10 replies
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I will still say wheat is wheat is wheat. If you are celiac then you are playing with fire to eat it. Period. You may not get sick but the damage is being done anyway. Three days, three weeks, whatever, of carefree eating wheat simply does not seem worth the risk of what I may be doing internally. But we all are free to make our own choices. If I ever...
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Wine is gluten free. Wine spritzer drinks may not be.
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Rice Is Making Us Sick!
cap6 replied to Angelmomh2's topic in Gluten-Free Foods, Products, Shopping & Medications
Interestingly my partner, who is not celiac, can not handle brown or black rice or quinoa while I, the celiac, can handle it all. We do pretty much stay away from any rice (or other grain) as we eat mostly all paleo. -
Rice Is Making Us Sick!
cap6 replied to Angelmomh2's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree with other comments that rice can be difficult to digest especially in the newly and still healing celiac. You may want to wait a few months and then try again. Also you might want to consider an organic rice. Rice crops are heavily sprayed with a variety of pesticides which can add to tummy problems. Lundberg has a nice organic rice, they are...