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trents

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Everything posted by trents

  1. trents
    Be patient with the thyroid problem. It can take a while to get the med dosage dialed in.
  2. trents
    Sorry, you did say colostomy. My bad. I was thinking right but keyboarded it wrong.
  3. trents
    What symptoms were you having before the colonoscopy when you got glutened? How did distinguish glutening from the fructose issue back then? Is it possible all the symptoms you were having pre colonoscopy were caused by the fructose intolerance rather than gluten? Many Celiacs are asymptomatic. We call it "silent" Celiac Disease.
  4. trents
    I would contact the companies directly and ask that question. Many times you can't get a definitive answer because they aren't necessarily taking precautions against cross contamination even though they may not put gluten in the product intentionally.
  5. trents
    Thanks for the correction, Scott. I had the wrong impression from some other things you had said about your daughter's use of it. I have never used it personally. I just want the OP to understand using GliadinX is not a silver bullet for celiac disease and should not tempt her to throw caution to the wind when eating out.
  6. trents
    This is pretty much my experience, Scott, except the celiac disease dx came much later in life.
  7. trents
    I would caution against seeing gliadinX as anything more than a stopgap measure when you are in a situation where you have no choice but to eat out and you are simply doing what you can to mitigate cross contamination even though you have been appropriately selective in your menu choices as a celiac. I would not encourage you to see it as something giving...
  8. trents
    Burgher, you raise a good point. My observation is that our European forum participants, who live under universal health care, consistently testify of the difficulty and the wait times of getting appointments with specialists for endoscopies. And your experience with the polyp reminds us that an endoscopy may have more value than just a means of confirming...
  9. trents
    https://www.newsmax.com/finance/companies/fda-amazon-whole-foods-market-misbranding/2020/12/22/id/1002782/ Excerpt: "The U.S. Food and Drug Administration (FDA) said on Tuesday it has issued a warning letter to Amazon.com Inc.'s Whole Foods Market for not labeling some products for the presence of food allergens, which led to a series of product...
  10. trents
    Welcome, Chris! Substantial healing of the small bowel villi usually takes months and up to a couple of years. A big part of that equation is how successful you are in avoiding incidental exposure to gluten such as might be found in supplements/meds and cross contamination. Every gluten event is a setback to healing. Research any meds/supplements/vitamins...
  11. trents
    Welcome to the forum, Halime! We are happy to hear you have committed to eating gluten-free. I wish to encourage you to really educate yourself as to where gluten shows up in the food supply. It is not good enough to cut out major sources of gluten like bread and pasta but also you must eliminate the minor sources as well. Gluten is found in places you...
  12. trents
    I would suspect she is still getting some small amounts of gluten, like from cross contamination or foods labeled "gluten free" that still contain enough gluten to generate reactions in more sensitive celiacs.
  13. trents
    I would think that if they are rinsed thoroughly before consumption it should not be an issue. I don't think there would be an uptake metabolically speaking of the gluten.
  14. trents
    The Aloe Vera oil should be safe since it's "100%" aloe vera and also it's topical. Plain table salt will not be a problem. Can't see how any wheat, barley or rye cross contamination would happen with either of these products.
  15. trents
    It's not common but it can happen: https://health.clevelandclinic.org/sinus-infections-that-dont-quit-when-you-should-worry/#:~:text=Also in rare cases%2C sinus,from sinusitis%2C” he says.
  16. trents
    Unless it is stated to be gluten free, probably not because of the cross contamination in growing, harvesting, transporting and milling with wheat, barley and rye.
  17. trents
    This pandemic might turn everything into larabars as far as tasting food goes. The thing I struggle with in regards to protein/energy bars is that many of them include a large amount of inulin to make them high fiber. Boy, does inulin give me the toots!
  18. trents
    Plastic increases the fiber content.
  19. trents
    Here's the article: https://www.beyondceliac.org/research-news/screening-only-way-find-all-children/?utm_campaign=Research Opt-In&utm_medium=email&_hsmi=103848927&_hsenc=p2ANqtz-_0k_4-YZap5XgjsejJR7edcN2xce6IX_aCUn3T9EyJMuB9WVM0DsIsN0am5wSeqBvFFKWsL6tcPYA06dwwhwqUjMdeYQ&utm_content=103848927&utm_source=hs_email Most recent estimates...
  20. trents
    I think you have to tick that box in your preferences.
  21. trents
    Bob's Red Mill online. Shipping might be expensive for you however since Bob's is in Oregon.
  22. trents
    You might want to cut out oats, at least for the time being, as about 10% of Celiacs react to oats like they do wheat, even oats that are not cross contaminated with wheat/barley/rye. Switch over to some other gluten free hot cereals such as corn grits, sorghum or buck wheat (not related to wheat). There are some delicious alternatives to oatsmeal.
  23. trents
    I have suffered with chronic, low grade sinus infections/inflammation much of my life. I was dx with celiac disease in my early 50s, about 18 years ago. It has been much better in the last several years but that coincided with retirement and less exposure to UR infections that was previously the case. I have permanent damage now to my sinus cavity mucosa...
  24. trents
    There could be a connection, at least indirectly through inflammatory processes being increased in general while back on gluten. And, as you say, you may also be allergic to wheat. With something like that its hard to say what the trigger is given the fact that the cold and flu season is upon us and the heating season as well. Are you experiencing...
  25. trents
    All of the symptoms and lab value irregularities you describe could be related to celiac disease. They are all well documented problems frequently accruing from or associated with celiac disease. Most or all of the things you mention may have a vitamin/mineral deficiency basis. Celiac Disease damage the villi lining the small bowel which is where essentially...
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