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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    In your first sentence, did you intend to say, "too insensitive"? Might be a typo there. Otherwise I can't make sense of it. Yes, the Nima sensor is better than nothing and would be adequate I suppose for many Celiacs who are not real sensitive.
  2. trents
    David, just beware that long term use of a Proton Pump Inhibitor (aka, PPI) like Omeprazole may have negative consequences for healing with regard to your Celiac Disease. Once your gastritis is totally under control and you are confident you are eating gluten-free then please talk to your doctor about getting off the PPI. And you may have to titrate down...
  3. trents
    Scott, I disagree. This is what I read the other day: https://www.theverge.com/2019/4/1/18080666/nima-sensor-testing-fda-food-allergy-gluten-peanut-transparency-data#:~:text=There was some good news,a “gluten found” result. Seems like the Nima sensors are only reliable when the amount of gluten present exceeds the accepted standard of 20 ppm. If I u...
  4. trents
    Kind of dated information. I hope this new machine you speak of gives better results than personal gluten sensors like those put out by Nima which were kind of a bust.
  5. trents
    Okay folks, let's treat each other with respect in our replies. There is a right way and a wrong way to express your disagreement with someone.
  6. trents
    What is this new machine you speak of? Can you be more specific and do you have any links?
  7. trents
    Distillation is one thing. Fermentation is another.
  8. trents
    "DH which some also call Celiac Sprue is a skin reaction to ingesting, and even “touching” gluten." I must correct you here, Kristina. Celiac Sprue, or "sprue" for short is just an older term used for Celiac Disease and not necessarily confined to DH.
  9. trents
    There is no way around it. You need to sit down with your family members and have a heart to heart talk with them and ask them not to eat your gluten-free food. But this begs the question, do your family members understand and accept your Celiac condition or are they dismissive toward it. I ask this because it is not uncommon for people to think that needing...
  10. trents
    There has been some concern that some distilleries use a wheat containing paste to seal the barrels used for storage after the distillation has taken place.
  11. trents
    Yes, what exactly is the medicine the PPC prescribed for you?
  12. trents
    We're not entirely sure why Celiac Disease can cause elevated liver enzymes. Most think it has something to do with the "leaky gut" that Celiacs have allowing abnormally large protein fragments to get into the blood stream which then have to be processed by the liver. There is also some evidence that gluten itself can be toxic to the liver for some individuals...
  13. trents
    Celiac Disease has long fingers, often causing neurological problems and it almost always causes dysfunction in the immune system because of "leaky gut". It is also common for celiacs to develop other autoimmune diseases. Many of the same genes are involved between celiac disease and other autoimmune conditions, e.g. diabetes.
  14. trents
    No, I get all that. I'm just suggesting contact the GI ahead of time about the going back on gluten for one month being enough. If it is, proceed. If not, reschedule or look at other options to address the distress.
  15. trents
    I would ask that question to the GI doc who will be doing the endoscopy. Many Celiacs cannot tolerate dairy and soy. There are other intolerances but those are the main ones.
  16. trents
    As an alternative to rice, are yams or sweet potatoes readily available in Thailand?
  17. trents
    Welcome, Dima! All of us with Celiac Disease can certainly relate to what you are going through. Having Celiac Disease can be very socially limiting. I think it is less so if you are married and have grown children because a lot of social needs are met in that relational context and family tends to understand and make allowances. But still, one...
  18. trents
    I think it would be unlikely that the D wouldn't set in until after 4 days.
  19. trents
    For one thing, I would be concerned about the nutritional losses from dehydration v. fresh food. Certain vitamins, like C, would be virtually eliminated.
  20. trents
    Kimble, welcome to the community! Have you had more than just the gene testing done? Have you had blood work done for celiac antibodies? I would not make assumptions about whether or not you have Celiac Disease based on gene analysis. And you speak of food sensitivity testing? Can you be more precise about the nature of the test? Skin prickiing? Serum...
  21. trents
    Elevated liver enzymes was what led me to a GI doc and the diagnosis of celiac disease.
  22. trents
    Ditto of what Scott said. It would seem smarter under the circumstances to assume the PCP's diagnosis of celiac disease is correct and just keep eating gluten-free. If you continue to feel better that is the proof of the pudding. No sense in risking irreversible damage to your body by continuing to eat gluten for months just to make sure your endoscopy/biopsy...
  23. trents
    Welcome, Vivian! Celiac.com does not and cannot sell or dispense test kits, drugs or medical equipment. It is simply an educational/support online community. But perhaps someone in the forum community can answer the other part of your question.
  24. trents
    I think there wasn't much more info available on the test than what the article gave at the time since the FDA approval was brand new. There is no name given for the test in the article but I image you could run it down by contacting the company who developed it. That information is contained in the article. But yes, a follow-up article on this test would...
  25. trents
    I would explore the option of an upper and lower GI with the doctors. I think docs are reluctant to do those on children but I'm sure it can be done. Maybe she has a kink in the bowel. Something is causing that abdominal pain. At her age I would not suspect Crohn's Disease. Okay, this is a little personal but how's the atmosphere in your home? Sometimes...
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