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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Kimble, welcome to the community! Have you had more than just the gene testing done? Have you had blood work done for celiac antibodies? I would not make assumptions about whether or not you have Celiac Disease based on gene analysis. And you speak of food sensitivity testing? Can you be more precise about the nature of the test? Skin prickiing? Serum...
  2. trents
    Elevated liver enzymes was what led me to a GI doc and the diagnosis of celiac disease.
  3. trents
    Ditto of what Scott said. It would seem smarter under the circumstances to assume the PCP's diagnosis of celiac disease is correct and just keep eating gluten-free. If you continue to feel better that is the proof of the pudding. No sense in risking irreversible damage to your body by continuing to eat gluten for months just to make sure your endoscopy/biopsy...
  4. trents
    Welcome, Vivian! Celiac.com does not and cannot sell or dispense test kits, drugs or medical equipment. It is simply an educational/support online community. But perhaps someone in the forum community can answer the other part of your question.
  5. trents
    I think there wasn't much more info available on the test than what the article gave at the time since the FDA approval was brand new. There is no name given for the test in the article but I image you could run it down by contacting the company who developed it. That information is contained in the article. But yes, a follow-up article on this test would...
  6. trents
    I would explore the option of an upper and lower GI with the doctors. I think docs are reluctant to do those on children but I'm sure it can be done. Maybe she has a kink in the bowel. Something is causing that abdominal pain. At her age I would not suspect Crohn's Disease. Okay, this is a little personal but how's the atmosphere in your home? Sometimes...
  7. trents
    Welcome to the forum. How old is your daughter? Has she had an upper GI with biopsy to check for the condition of the small bowel villi? The blood tests sometimes don't tell the whole story. Has she had a colonoscopy? Could there be a partial blockage in there? Gluten sensitivity instead of celiac disease? Does she get enough...
  8. trents
    Welcome, BizLarry! I would not be concerned about cross contamination from cookware. Porous things like cast iron and wood should be scrubbed thoroughly after being used to cook foods containing gluten. Are you sharing these implements with others in the household who are not eating gluten free?
  9. trents
    Do you mean an intestinal biopsy or do you refer to a skin biopsy?
  10. trents
    Costco, if you have access to one, is a wonderful resource for the gluten-free/Celiac community. Their Kirkland store brand products are clearly labeled if they are gluten-free and they seem to have made a significant effort to offer products that are gluten-free when wheat/barley/rye are not needed as essential ingredients.
  11. trents
    Yes, I would get that checked out. There is a tendency for people with celiac disease to blame everything on celiac disease when we can still have other things go wring with our bodies that are not celiac disease related.
  12. trents
    CL raises another product awareness when mentioning chocolate syrup. Some brands actually have wheat in them.
  13. trents
    We've all been there and done that and still get caught occasionally by gluten in foods you would never expect to find it in. I mean like, who would ever suspect there is wheat in most soy sauces but then you actually read the label and lo and behold, there it is!
  14. trents
    My PCP wants me to drink 64 oz. of water daily. That's in addition to what you are getting in your solid food and adding to things like hot breakfast cereal. Take seriously what knitty kitty has said about getting checked for vitamin and mineral deficiencies, particularly Magnesium. Think about it, why is milk of magnesium sold as a laxative? It would...
  15. trents
    Welcome aboard, JLF! It can take months for your body to adjust to life without gluten and to attain some measure of gut healing. What you describe is very common. But make sure you are getting lots of fluids and regular exercise. Fiber laxatives can setup like concrete in your bowels if you don't drink plenty of fluids as you use them.
  16. trents
    https://www.mayocliniclabs.com/test-catalog/Clinical+and+Interpretive/82587 >10.0 U/mL (positive) https://www.mayocliniclabs.com/test-catalog/Clinical+and+Interpretive/8156 IgA normal values vary with age. IgA 0-<5 months: 7-37 mg/dL 5-<9 months: 16-50 mg/dL 9-<15 months: 27-66 mg/dL 15-<24 months...
  17. trents
    Corn gluten is okay for Celiacs. Actually, all grains contain some form of gluten but it's only the gluten found in wheat, barley and rye that we have to avoid. So when the Celiac community speaks of avoiding "gluten" we are actually referring to those three grains. U2Jeanie, welcome aboard! Not sure where you live but if in the USA, Costco sells their...
  18. trents
    But Lemmons111's concern is that he may not be able to get testing authorized. I agree that if he can arrange for that soon, he should continue to eat gluten in the short run. But if he can't, a gluten free trial diet is the alternative. I wouldn't want him to suffer for months until a COVID vaccine is developed. And it has always been a valid approach for...
  19. trents
    What do you mean when you ask, " And is this is a case where UK (social language) nomenclature is decidedly different versus US nomenclature versus scientific nomenclature?" When I read through the article it seemed unambiguous to me, a US citizen. Does "barley malt" or "vinegar" mean something different in the UK vs. the US?
  20. trents
    Another approach would be to eliminate gluten totally from your diet as a trial and see if the symptoms disappear. It's not a matter of cutting down on gluten. You would need to be totally committed to eliminating gluten from your diet and any supplements you may be taking. You would need to educate yourself as to how gluten is hidden in prepackaged foods...
  21. trents
    Scott, did you mean to say "hour glass" or magnifying glass? Is there an hour glass somewhere that my eyes are not spotting?
  22. trents
    How is the calcium citrate administered during the donation process? Orally? Injected? Calcium citrate side effects: Get emergency medical help if you have signs of an allergic reaction: hives; difficulty breathing; swelling of your face, lips, tongue, or throat. Call your doctor at once if you have: little or no urination; swelling...
  23. trents
    Ivana, there are many on this forum who are more knowledgeable about serum tests for Celiac than I am so I will let others address that issue. I do know that some of the serum tests are pretty specific for Celiac antibodies while others do not eliminate the possibility of other autoimmune conditions. The science of this has improved since the almost 20 years...
  24. trents
    At the top of any forum page.
  25. trents
    Wow! That's blockbuster level information. Now I have some ammo to justify the expense of some extra B-vitamin supplements my wife was questioning the other day.
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