Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,193

  • Joined

  • Last visited

  • Days Won

    476

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Having a "sensitivity" to gluten is not the same as having Celiac Disease. Celiac Disease is an autoimmune disorder that is triggered by gluten ingestion. It's not a sensitivity, an allergy or an intolerance.
  2. trents
    It may depend on the company producing it and their particular formulation. Apparently, "pepcid" is made by more than one company. The OP states that one company making pepcid products specifically told her that their's was not gluten free. Another company, Johnson and Johnson, told her they don't test for gluten. This state of affairs is so frustrating...
  3. trents
    PB, if I understand what you're saying, you mean that her celiac disease could have been reactivated without gluten exposure?
  4. trents
    Just for the sake of clarity here, GINAGF was diagnosed with celiac disease almost three years previous to starting the use of an H2 blocker. The upcoming endoscopy should provide some helpful information about what is going on with the state of her recovery and perhaps even the unexpected weight loss.
  5. trents
    Yes, you don't want to purposely expose yourself to gluten before the followup endoscopy. The purpose of the followup would be to see if the villi have healed. I would be concerned if after 2+ years of maintaining a steady weight that you lose 10 lbs. in three months when nothing else about your lifestyle has changed except the addition of Pepcid AC...
  6. trents
    I would ask for a repeat on that test as there can be false positives: "The accuracy of blood tests can depend on the laboratory and the manufacturer, the review found. It points to a 2009 study in which 150 samples from patients with known celiac disease status were used to compare the accuracy of tTG tests at 20 laboratories in the U.S. and Europe...
  7. trents
    Hannah9, I just want to add, don't be afraid to advocate for yourself with medical professionals. It is really important to be assertive when you feel they are not hearing you or are blowing you off. Push back when you feel this is happening. They are busy people and tend to treat in a formulaic way unless you push them to go deeper.
  8. trents
    Julia, I see this was your first post. Sorry, I neglected to say, "Welcome"! You should also look at the possibility of having developed allergies to non gluten food items. Last year I experienced several periods of intractable vomiting and diarrhea. I began to look at the patterns of my eating at those times and came to realize I had developed...
  9. trents
    What do you mean when you say your blood work is "almost normal"? What is not normal about it? A number of recent studies have demonstrated that many or most celiacs who believe they are eating gluten free are actually practicing "low gluten" eating because of cross contamination. This is particularly true of those who are still eating out. And gluten...
  10. trents
    Ditto. It sounds like to me you may need inpatient care to help you manage your various issues and get them back under control. And hiding your current struggles from your fiance is probably not good for the health of the relationship, though I understand there is probably a strong element of shame in this.
  11. trents
    If you GI doc doesn't know much about Celiac disease it's time to get a new one. There's no excuse in in the year 2020 for any physician not to have a good awareness of Celiac Disease, much less a GI doc. There is a much better general awareness, even in the nonmedical public, than there was 15 years ago.
  12. trents
    Not sure what the latest figures are but I've read that about 10% of Celiacs react to oat gluten like they do wheat/barely/rye gluten.
  13. trents
    I have no bright ideas about this one. That has got to be tough to live with! At least you can eat eggs and they are the single most nutritious food on the planet. But seriously, I would keep looking for a medical professional who will take you seriously. This might help get you started: http://toyourhealthllc.com/2018/12/23/the-mystery-of-mast-cell...
  14. trents
    These are absolutely delicious! Soft and kind of chewy. Green! https://www.missionfoods.com/products/gluten-free-spinach-herb-tortilla-wraps/ 6 gm. fiber 130 calories per tortilla 3 gm. of protein Contains soy.
  15. trents
    Infections and other bodily stress events have long been thought to trigger the onset of Celiac disease. So have frequent administrations of antibiotics because, or so it is presumed, they change the micro organic environment of the gut.
  16. trents
    knitt kitty, that was quite the tome! But I agree. The traditional food pyramid we all grew up on has done our society and immense amount of medical harm and is largely responsible for the spiraling numbers of obesity (with all it's attendant vascular problems) and diabetes, just to name a few. We have shot ourselves in the foot with the emphasis on...
  17. trents
    Energy for brain activity or any other of the body's fuel needs can also be derived from proteins and fats, just not as readily. That's why the keto diet works so well. It trains the body to more efficiently use non carb sources (particularly fats) for it's energy needs.
  18. trents
    Sounds to me like you might be on the right track.You might test your theory by trying the keto diet. It's an effective way to lose weight and manage it long term as well if that is needed.
  19. trents
    No, I wasn't counting the very first endoscopy that was part of the diagnosis. So counting that one, there have been four I think. It is not uncommon to take years to heal the villi, especially when you're getting inadvertently glutened on a semi-regular basis. In my working years I did my best to avoid gluten when eating in the company cafeteria, meetings...
  20. trents
    Thanks for the clarification. But you did not answer the main issue. What were the results of the endoscopy? Did it show healing of the villi? I have had three endoscopies since my celiac disease diagnosis about 18 years ago. The first one was done maybe after one year, the second one done at about year three I think and the last one about two...
  21. trents
    Wait. You mention a polyp was removed from your colon. That would be found in a colonoscopy, not an endoscopy.
  22. trents
    What is your gender? Though you state you no longer ate out after being diagnosed with celiac disease, it is still very possible to get gluten exposure from grocery store purchased items that, though they don't contain gluten as an intentional ingredient, have experienced cross contamination during harvesting and processing. And other covert sources...
  23. trents
    I think this forum has a time limit on the edit function. I have run into that problem of not being able to go back and edit a post as well but it only happens after it's been up for awhile.
  24. trents
    Are you taking the need to eat gluten free seriously? How are you doing with that?
  25. trents
    IMO, and many physicians would concur, allergy testing is too often not very helpful. I have had them done, both epidermal and serum testing, and they don't agree well with one another and they don't agree well with what I experience in real life. You can have the same serum samples sent to different testing labs and you will get significantly different results...
×
×
  • Create New...