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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, Jesse! If there has been substantial healing of the villi then getting glutened once in a while should not set you back to square 1 in the big picture of things. But it still might take you 2-3 weeks to feel fully recovered from the experience. Most Celiacs will tell you that after they have been gluten-free for a significant period...
  2. trents
    I think not. Biopsies to check for celiac disease are not considered valid unless the patient has been currently consuming gluten on a regular basis. So for clarification's sake, I assume you have not been officially diagnosed with celiac disease but at some point before the hemicolectomy you put yourself on a gluten-free diet.
  3. trents
    News about this research and it's phase 2 trial have been posted several times recently in various places on this forum. Again, I caution the community that the article falls short of saying this technology is a cure for celiac disease. If you read it carefully, it is saying, "After treatment with the technology, the patients were able to eat gluten with...
  4. trents
    "Fill-blown celiac disease"? I wonder what he meant by that but I'm assuming he meant significant damage to the villi. Otherwise, it's like being a little pregnant.
  5. trents
    Yeah, I was thinking that would be what you were driving at but just wanted to make sure I wasn't missing something else.
  6. trents
    What is the thought behind the remodeling question? What am I missing?
  7. trents
    You are welcome and also let me welcome you to the forum. Another thing to consider is that Celiacs often develop allergies and intolerances to non gluten foods. Soy and dairy intolerances/allergies seem to be the most common but it can be almost anything. Sometimes these go away after the gut has experienced healing with gluten-free eating. As you know...
  8. trents
    Talk to your doctor about starting either an H2 blocker or a Proton Pump Inhibitor (aka, PPI) in order to get your acid reflux under control. But make sure you get don't stay on either for an extended period of time so as to develop a dependency or other health problems related to suppressing stomach acid for long periods of time. The other thing is...
  9. trents
    I am coming to the conclusion that I have thresholds for a number of different foods. I can eat them without consequence sometimes but not other times. If I eat them too often or too much at one time, whatever the offending component is, I get ill. I think I'm seeing this pattern with nuts, dried fruit, cured meats and pickled products for instance. In my...
  10. trents
    There are brands of rice crispy type cereals I think that do not have malt flavoring.
  11. trents
    I'm being kind of picky I know but it's "celiac" not "celiacs". Hope you aren't offended by the correction.
  12. trents
    It depends on what the aging bacteria are cultured on. Often it is wheat is my understanding.
  13. trents
    I have celiac disease but In my experience, when getting "glutened" the acute symptoms (cramping, vomiting and diarrhea) lasts 3-4 hr. but I am still out of sorts for a couple of weeks. I would have drilled the eatery staff down with regard to what is meant by "gluten friendly" pancakes. Even if the pancake mix contained no gluten intentionally, if the cakes...
  14. trents
    Several possibilities: 1. You are allergic to cinnamon. 2. The cinnamon is not gluten free. It is not uncommon for seasonings and spices to use wheat as a substrate or texturing agent or to be processed on equipment that also processes gluten containing grains, such that there is cross contamination. This can be a real issue with some people who...
  15. trents
    Welcome, Nessacarrie! I don't mean to avoid your question but some additional info would be helpful to us in addressing your question. First, what testing did the doctor do to arrive at the conclusion that you are gluten sensitive? What kind of doctor are we talking about? GP? gastro enterologis? Naturopath? Second, what testing did the doctor...
  16. trents
    JulieRose, Have you had either an endoscopy (upper GI scoping) or a colonoscopy (lower GI scoping)? Those would be necessary to confirm either disease, though blood work can often spot probable Celiac Disease because Celiac Disease generally produces certain enzymes that show up in blood tests. At least get the blood work done that checks for Celiac...
  17. trents
    Several things to consider: 1. It's not uncommon for people who do have Celiac Disease to have negative blood work but show blunted villi when an endoscopy is done. Several of our forum participants had this experience. So the biopsy is still the gold standard. 2. It is very common for people with Celiac Disease to have one or more additional autoimmune...
  18. trents
    I think it was just a hypothetical "if".
  19. trents
    Welcome, Arinana! 1. Have you recently had an endoscopy with intestinal biospsy to check the condition of your small bowel villi? We have a number of forum members whose blood work is negative for Celiac Disease but a biopsy showed damaged villi. 2. Have you checked all the food labels lately of any processed/prepared foods that your eat? Do you...
  20. trents
    Welcome, Anita! I would not be concerned about gluten cross contamination in raw sugar products. Do you have a reason for being concerned about this particular product?
  21. trents
    Do any of you out there have a Nima gluten sensor? If so, try testing some distilled spirits and some distilled vinegar to see if it registers gluten. I am curious about this.
  22. trents
    You really do need to get tested for celiac disease, even if that means suffering though eating gluten for about 3 months. A couple pieces of wheat bread per day shouild accomplish what you need for a valid test. Celiac disease damages the lining (villi) of the small intestine which reduces the ability of your GI tract to absorb nutrients. Your mood...
  23. trents
    It should be cautioned that neither of these two articles claim to completely eliminate the need to eat gluten free. Both seem to target incidental gluten exposure such as we get from cross contamination. Here's a quote from the first article: "Northwestern claims after celiac patients were treated with the technology, they were able to eat gluten and...
  24. trents
    I doubt the problem was that you got glutened, at least not from the frozen vegies. Lot's of things can cause the symptoms you describe including an intestinal virus.
  25. trents
    With cross contamination, individual celiac responses will vary tremendously. And the amount of cross contamination will likely vary from batch to batch since it is incidental. It will also depend on how much of the item you eat which is something we don't see talked about in celiac circles very much. We talk about parts per million standards but in reality...
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