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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    They may have chosen to just be polite. I do computer repair and technology support and realize I can't always correct my customer's misconceptions and misnomers. I generally know what they are trying to say even if they don't say it correctly and it's often easier just to fix the issue rather than to educate. Most likely, they won't remember it anyway and...
  2. trents
    And you are sure these are swollen lymph nodes and not just some kind of cyst? https://www.healthline.com/health/sebaceous-cyst
  3. trents
    When I was a child I had frequent bouts of tonsillitis for which I was given antibiotics until age 7 when the tonsils were removed. Back in those days, penicillin was still a silver bullet. As a teenager and college-age young adult I was on tetracycline therapy continuously (if I recall correctly) for acne. I often wonder if all those antibiotics set the...
  4. trents
    Ariadne100, I think we can all relate to the skepticism you describe from people, even in the medical community. I look at it as belonging to the vanguard of medical discovery. I imagine disease researchers got the same treatment in the 1800's when they were telling doctors that infections were being caused by organisms too small to be seen with the naked...
  5. trents
    Just a reminder that though there have been laws passed to improve food labeling for the benefit of those who need to avoid certain food elements, the commercial food industry can and does change the formulation of their products without notice. We get used to buying certain things because we checked them at some point in time and they contained no gluten...
  6. trents
    To what CL said I would also add those who do have celiac disease or gluten intolerance/sensitivity will experience improvement when eliminating gluten. That would make endoscopes and lab work unnecessary except to the extent of providing peace of mind and perhaps reinforcing the need to eat gluten free. The crux of the matter, whatever your test results...
  7. trents
    Ariandne100, Sounds like you have done a good assessment here of things that likely will cause you issues. I find that over time I have developed various kinds of reactions to things that never used to bother me. Some of may be related to plain old age-related changes. Our immune system becomes more dysfunctional as we age even in the absence of celiac...
  8. trents
    Ariadne, You say you always are careful to read food labels so we assume you are avoiding gluten. But GFinDC makes a good point about about the vegetarian diet and the challenge it presents in regard to B12 deficiency. Even though you do eat fish and may be getting some B12 in the fish you consume, it may be much less than your body actually needs. There...
  9. trents
    Did you check the ingredients for the Heinz tomato soup? Many or most canned soups use wheat starch as a thickener.
  10. trents
    It is also true that those with one autoimmune disease often develop others.
  11. trents
    Have you suggested this to your primary care doc? I find that if I link some some evidence from the web I sometimes get listened to by physicians. There is much more awareness in general concerning celiac disease within the medical community than there was 15-20 years ago but there is still a lot of ignorance as well. Many of the symptoms you list are not...
  12. trents
    Very interesting and seems to be another piece of the puzzle. However, it doesn't answer the question of why this only happens with certain genotypes. Presumably, those without the Celiac genes would be exposed to the same bacteria but their immune systems would still be able to differentiate between the bacteria and the grain when encountering the same gluten...
  13. trents
    No insurance. That makes it tough to get specialty care. I guess the only thing I would suggest is keeping a food diary to see if there is an association between things in your diet and these bouts of bowel dysfunction you describe.
  14. trents
    Hi Fredo, It's very common for Celiacs to have other GI problems not related to gluten consumption such as colitis or IBS. In addition, Celiacs often develop other food intolerances such as for dairy or soy. However, the symptoms you describe in the second paragraph of your post suggest to me something something systemic and/or autoimmune related. Does...
  15. trents
    It takes about two hours for food to leave the stomach and go into the small bowel. Speaking for myself, it is at that point when, if I have eaten gluten or any of the several other foods that give me problems, that I begin to experience nausea. I would think texture issues would have a more immediate effect. Does your daughter have problems swallowing pills...
  16. trents
    Look for ingredients common to all the baked goods that are causing problems. Could this be a texture issue? How long does it take after consumption for the emesis to start? And I always caution people in the gluten intolerant/celiac community not to assume that medical issues are necessarily related to problems with gluten. If you don't find answers...
  17. trents
    The problem with this is it requires the cooperation of everyone in the house and total consistency or it becomes unreliable and risky.
  18. trents
    Thanks, Posterboy for all your diligent research on behalf of our online community.
  19. trents
    It's more involved than just asking about ingredients "purposely" put into foods when you eat out. That doesn't rule out incidental cross contamination. For instance, if eggs are scrambled on the same griddle as French toast is cooked on or French fries being cooked in the same vat that breaded fish patties are. It can only take a trace of gluten to trigger...
  20. trents
    Fatigue is a common experience with celiac disease. There are more factors involved than what standard blood work can detect. Sounds like you are not yet making a serious effort to eat gluten free. That would seem to be the next step in determining if your issues are gluten related or due to something else. You won't know until you eliminate gluten from...
  21. trents
    Good catch, PB and a nice, concise post. Thanks.
  22. trents
    Please keep us posted if you find out more. This is very weird. The two onsets of rhabdo both followed resistance type exercises. Do you know if say, jogging or swimming would do the same?
  23. trents
    I have not heard that there is any connection between the two. Are you on a statin by any chance?
  24. trents
    From your own admission, dry (toast and chips) and spicy foods seem to trigger this cough reaction and the "tickle" behind the sternum. I'm certainly no doctor but that suggests to me there is something being irritated when you eat these things. If that irritated area is on or near epiglottis (the flapper valve that closes off the windpipe when you swallow...
  25. trents
    The common denominator in all this seems to be eating. Does this happen every time you eat something or does it seem to be associated with certain foods or certain textures? Since it has been 18 months since your last upper GI I would look into another one. You may have a wound of some kind that is being irritated when food is swallowed. Not sure how...
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