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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Posterboy, I did not see in this link you provided any mention of a connection between tryamine and histamine storms. "But my bet is on Tyramine ....it is connected to a histamine storm. Here is a nice Webmd article on it. https://www.webmd.com/migraines-headaches/tyramine-and-migraines#1" Did I miss something?
  2. trents
    "The reason the Imitrex triggers your histamine storm is MAO/DAO shares the same pathway." Huh? Imitrex seems to counteract the effects of histamine storms I'm thinking. It takes away a migraine which can be triggered by high histamine levels. Imitrex is a vasoconstrictor. Most medical people feel migraines are brought on by dilation of the blood...
  3. trents
    My head is spinning!
  4. trents
    My labs are all in the normal range now. Total protein and albumin are near the low end of normal but that is an improvement. For 20 years one or both were below normal. That includes about a 6 or 7 year pre celiac disease Dx span. I've been on PPI therapy for GERD/hiatal hernia for 16-17 years. But all this discussion has started me thinking that when...
  5. trents
    Yes, I am aware that the sulfites in wine can be the culprit. But thanks for the reminder. Sometimes with multiple options it can be difficult to sort out. I recently switched to Mg Gycinate and so far no issues.
  6. trents
    If the pills don't work with the wine test, I can take my Imitrex which does.
  7. trents
    Thanks for the info and the links, Posterboy. I note one factoid from the last link you gave that caught my eye and that is a risk factor for SIBO associated with low gastric acid. Since I'm on long term PPI therapy, that could be relevant to me. I wonder how hard it would be to get a primary care provider to order a breath test. But then again, those breath...
  8. trents
    Well the DAO pills came last week but I'm kind of at a loss as to how test their efficacy. I've been migraine free of late. I'm thinking I'll have to buy a bottle of wine to test this. If I drink a full glass of wine it will almost always give me a headache and alcoholic beverages are one of the high histamine foods you see in most lists. But some people...
  9. trents
    Not sure if my primary offers the FIT annually but I'm sure she would be willing to order it again seeing as how it was positive recently. Yes, it would be prudent. I agree.
  10. trents
    I assume you mean the FIT when you inquire about the GI doc repeating the test. He did not mention that and I got the impression he's not a real fan of the FIT since a positive result can be produced by so many things that are just transitory in nature. But I'm sure my primary would be open to it.
  11. trents
    I recently had an upper GI endoscopy and a follow-up visit with my gastro doc. While waiting for him in the exam room I was reading the headlines of some medical research articles he had pinned to the bulletin board that had to do with PPI research. At the end of my follow-up visit with him I asked him about some of those things on the bulletin board. The...
  12. trents
    I was diagnosed with celiac disease about 16 years ago but a couple of upper GI endoscopies within the first three years of diagnosis showed villi blunting still unchanged. I was discouraged then because I was making every effort to eat gluten-free. I had pretty much concluded I had the refractory type of celiac disease. A couple of weeks ago, however, I...
  13. trents
    Will do. I'm already taking loads of B vitamins and some magnesium supplementation. I have to be careful with magnesium and zinc supplementation because they definitely have a laxative effect on me.
  14. trents
    Also found this: https://www.ncbi.nlm.nih.gov/pubmed/29475774 The link above particularly relates low DAO with migraines, which is what I need help with as a Celiac. Sounds promising and I note there seemed to be no side effects with the supplementation: "No adverse effects were registered in patients treated with DAO enzyme." Where can...
  15. trents
    Scott, What does the testing involve?
  16. trents
    It's no secrete that foods high in nitrates (found in bacon and other processed meats, for example) seem to trigger migraines in some people. Now there is research to indicate that an abundance of certain bacteria in the digestive system may be the key to this phenomenon. These bacteria convert nitrates into nitrites that then enter the blood stream and are...
  17. trents
    No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn...
  18. trents
    I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them...
  19. trents
    Our systems are all so different. Corn (and rice) are easiest on me whereas I know corn and corn products give lots of others issues. Good suggestion, notme! about varying the diet to avoid histamine buildup. I've thought about that. I tend to get in ruts with my menus.
  20. trents
    https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--114197/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=72478196&_hsenc=p2ANqtz-8cBCeWpQSG8tjxT3AC5kO9JlVU9sKiGcArKDefDbz0UI0-FrJiSWvmuEAJ7HWszix_3WVyFj1AaK8h8iqwb5bG0LBdew&_hsmi=72478196 A potpourri of issues discussed in this...
  21. trents
    Meat and dairy seem to be the easiest things for me to digest. I know that is the opposite of many peoples' experience. I can do essentially all veggies as long as they are cooked well. I don't do good with "woody" things. Posterboy, sometimes it just boils down to pick your poison. None of us likes taking these prescription meds but it might...
  22. trents
    What were you originally put on H2 antihistamines for if I might ask? Was this done to to treat reflux issues or some other allergic condition?
  23. trents
    The problem with H2 blockers has always been you build up a tolerance to them whereas that is not a problem with PPI meds. In addition, PPIs are considered more appropriate for GERD whereas H2 blockers are generally used for peptic ulcers: https://www.healthline.com/health/gerd/h2-blockers#h-receptor-blockers-vs-proton-pump-inhibitors-ppis
  24. trents
    Meat and dairy seem to be the easiest things for me to digest. I know that is the opposite of many peoples' experience. I can do essentially all veggies as long as they are cooked well. I don't do good with "woody" things.
  25. trents
    Thanks for the links. Lots of reading there for me to do. Concerning low stomach acid and inability to digest proteins, I am on long term PPI therapy for GERD. Tried going off of them but just can't. Lab work always shows my total protein and albumin are borderline low but I have always attributed that to leaky gut, i.e., losing protein to the lumen...
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