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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Good point, Posterboy about the lag time between research and findings becoming common knowledge in the medical community.
  2. trents
    That article cites a pretty dated study. Doesn't necessarily make it invalid but does make me a little cautious about buying into the premise.
  3. trents
    Do you have references that support this assertion? Oats producing a Celiac reaction has always been a controversial topic, anecdotally, anyway. But as far as I know all the studies done have not supported this when cross contamination with wheat is ruled out. Here is an example from a pretty recent study: https://www.livescience.com/59002-can-celiac-disease...
  4. trents
    There is a question in my mind as to whether the canker sores are actually caused by your celiac disease. Sounds like the doctors pinned it on celiac disease as there was laboratory evidence proving you were a Celiac. And having canker sores is in fact one of the documented medical conditions associated with celiac disease. But there are many other possible...
  5. trents
    Before I say anything else I just want to make sure you realize that Celiac Disease is not an allergy. Neither is gluten intolerance and allergy. I could not be sure from your question whether or not you understood this. Celiac Disease is an autoimmune disorder. People who have it get an autoimmune reaction that does damage to the lining of the small...
  6. trents
    If you are not getting any cooperation from your healthcare providers you can also just try a gluten free diet for a few weeks/months and see if symptoms improve. You would need to educate yourself on where gluten is found, especially how it is hidden in prepared foods like canned soups and condiments. You would need to become a dedicated fool label reader...
  7. trents
    If this is a pattern I would see an gastroenterologist but I would not put much emphasis on one incidence of abnormal colored stool. Many things we eat as well as certain medications can change the color of our stools but so can certain diseases. If this is a pattern I would certainly get liver enzymes checked and gall bladder.
  8. trents
    I tried to quit PPI cold turkey this summer. Went without them for 3 weeks and by then I thought the rebound would be past but my symptoms just got worse. I can go without the PPI for two days and the heartburn starts to come back. Not sure if a more gradual titration would have helped or not but it would have to be very incremental to work at all. And I...
  9. trents
    I'm very skeptical of food allergy testing. I had an eye opening experience with it when I had two different labs evaluate the same test samples but report vastly different results. I also saw poor correlation between symptoms and test results. And I think if you do some research you will see there are a number of variables that often render food allergy...
  10. trents
    So I'm not clear on a couple of things after reading your narrative. First, are you a confirmed Celiac or are you saying you are suspecting you have Celiac disease? Second, is this excessive mucous a new phenomenon after being put on the anti Gerd meds or was it present before?
  11. trents
    Sure sounds like low thyroid symptoms to me. I understand thyroid level assessment can be tricky and the tests ordered by most doctors often aren't much help. Do you have access to an endocrinologist? And concerning B12, are you taking folate? Folate supplementation can render B12 level testing invalid.
  12. trents
    Long post and, excuse the pun, there's a lot to digest there! How many grams of fiber per day do you figure you are getting with all that? I would look at the 1500 mg of C you are taking. That's a lot of ascorbic acid and may be changing the PH of your gut to contribute to the soft stools. Same with coffee/caffeine.
  13. trents
    Wheat provides certain nutritional elements that would need to be compensated for after going gluten free. This is especially true with commercially produced wheat containing foods because they are "fortified" with added vitamins. Does your daughter eat healthy and does she use a quality brand gluten-free multivitamin? If you live near a Costco they sell...
  14. trents
    Not sure what you mean by "celiac growth spurt." How was the celiac diagnosis arrived at? Based only on symptoms? Genetic testing? Endoscopy? Are you making sure that your daughter is strictly following a gluten free diet? Gluten is hidden in so many manufactured food products you really have to be scrupulous with checking ingredient labels and...
  15. trents
    After doing some research, apparently there is a connection between Celiac Disease and sex drive. Here are just a couple of links I found: https://www.youtube.com/watch?v=PnGq_Vz6TuE http://www.naturalnews.com/037361_sex_bread_gluten.html
  16. trents
    Are you on any prescription meds? Particularly, a statin?
  17. trents
    How old are you? Have you had your testosterone levels checked? You say it "came to light that it could be the gluten." Do you mean that it occurred to you that gluten could be causing the ED or do you mean you were told that by a physician or somehow ran across information to that effect? I personally have not heard of a connection between gluten sensitivity...
  18. trents
    Yeah, I think we need to see this kind of experimental therapy be repeated and vetted before people jump on the bandwagon and start ordering home kits.
  19. trents
    But what doesn't make sense to me is that this procedure would seem to only transfer microbiota from and into the lower intestine whereas Celiac Disease involves the upper section of the intestine. Do you suppose they crawl up?
  20. trents
    Ah, makes sense now. I was thinking that was a pretty articulate post for a 3 year old. I 'm thinking a turkey baster would work well for the transfer. People could probably do it at home.
  21. trents
    What do you mean by saying you are "actually 3 years old"?
  22. trents
    Yes, Rachel. Our thoughts and prayers are with you. Please keep us posted.
  23. trents
    I find it interesting that the doctors have ruled out congestive heart failure because most or all of the symptoms your pop is having would seem to fit with CHF. When there is fluid buildup in the body like that the serum protein levels become diluted and those numbers will be low.
  24. trents
    I wonder if he has refractory celiac disease. Also, has he been checked for pernicious anemia? Are they giving him diuretics to remove the water?
  25. trents
    10-15 years ago there was not much general awareness in the medical community about celiac disease. I was diagnosed 15 years ago with celiac disease and what actually led to the diagnosis was I had mildly elevated liver enzymes for about 15 years previous to that which could not otherwise be explained. It all started with a rejection of my donated blood...
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