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Celiac_survivor

When does celiac recovery get better?

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In April of this year I have been diagnosed celiac and I’ve been following strict gluten free since. In the beginning, I’ve felt better. However, now I’m feeling bad again. I’ve completed cut out gluten, lactose and even fructose and I still feel very fatigued, have muscle pain and my stomach swells up to looking 9 months pregnant. I also have quite bad joint swelling and rarely have any appetite. It’s been past 5 months since I have been strictly gluten free and I was hoping to feel a lot better than this. I’m beginning to lose hope and it’s stressing me out quite a bit. Has anybody felt like this during recovery? How long before you noticed a positive change?

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It is certainly possible/probable that you have developed an allergy/intolerance to some other foods. Due to the "leaky gut" syndrome that accompanies Celiac Disease, the immune system becomes dysfunctional and reacts to some benign food substances as if they were invaders.

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The distention makes me think you could have gotten gluten in somehow, perhaps some contaminated cookware (cutting boards, colanders, scratched pots/pans, cast iron, wooden utensils, etc). Double check everything on this note and consider a elimination diet to see if it is a new food issue or if a condiment/food you thought was safe is not. Also do not trust others cooking, or eating out.

Look at going to eating 2-3 only safe whole foods (one ingredient no seasoning or minimal salt/pepper) for days up to a week only these ingredients, then change one out for a new one every 2-3 days and note any changes. (IE Eat only Eggs, Baked Chicken, Beef, for a week then change out Chicken or beef for for sweet potatoes or some kind of greens for 2 days and note any changes. If fine then choose one food to drop and try adding another change out.)  Many end up with common ones like dairy, soy, nightshades (potatoes, tomatoes, peppers), garlic, onions, corn, legumes (peanuts, lentils) as problem foods. These are normally intolerance or sensitivity issues but sometimes can be allergies. The former can go away with time and healing, allergies can lessen in severity but will always need to be avoided.

Edited by Ennis_TX

Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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All great advice.  I would call your doctor, because you are approach8 g six months.  You should get those antibodies tests again to see if they are on a downward tread.  If still very high or higher, you could be getting gluten into your diet.  
 

Do not eat oats, avoid processed foods as much as you can, or do not go out to eat until you see improvement.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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dont have appetite issues tho or muscle pain, no joint pain.. energy levels normal...stool looks normal.. 

main issues for me still are some dizziness and some GI discomfort still...

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