Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Could it be Celiac Disease

Jasmine900
 Share

Recommended Posts

Jasmine900 Newbie
Jasmine900
Posted

About two months ago, I started to feel this pain in the middle of my upper abdomen after eating. This was followed by diarrhea and a loss of appetite. Then, I started to get this burning sensation in my upper abdomen which almost felt like a belt as I could feel it into my back. I was initially diagnosed with gastritis and took medications that actually helped but simply stopped working after 3 weeks. The symptoms reappeared but worse than ever. I couldn't eat anything at all and constantly had this burning sensation in my upper abdomen. My stomach felt super tight, and I used to get this weird pain in different spots as if it was being pulled inward from the inside. I went to a different doctor who diagnosed Colitis. I started taking new medications which again helped at first and then simply stopped working after around 3 weeks. Woke up in the night from pain in my upper abdomen under my left rib cage. The burning started again soon after in my upper abdomen up into my chest. My stomach feels hard and tight and I have more frequent bowel movements (no diarrhea). I still have this pain on the left side and the middle and sometimes on the right side as well. I had an ultrasound done which didn't show anything abnormal. Also had a complete blood count done which showed elevated levels of white blood cells. I also felt extreme pressure on my chest which makes it difficult to breathe. In addition, I have been experiencing tingling in my hands and in my right leg from the knee down but don't know if that is in any way related (I sit all day at work so that could also be a reason). Has someone else experienced anything like this? I am really sorry for this lengthy post, but I don't know what to do anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Sounds like it could be Celiac Disease but could be other things too or Celiac and other things. Request Celiac antibody blood tests before you attempt to eliminate gluten. What meds are you taking for the colitis?

cyclinglady Grand Master
cyclinglady
Posted

You should really get to a Gastroenterologist and get screened for celiac disease (blood tests to start)  and checked for other illnesses like Crohn’s or a non-functioning gallbladder.  It can be impossible to diagnose based on symptoms alone because they often overlap.  But it could very well be autoimmune disease.  The elevated white blood cell count usually indicates infection.  Please find a doctor who can help you.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,076
    • Most Online (within 30 mins)
      10,442
    Murielle Beaulieu
    Newest Member
    Murielle Beaulieu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...