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trents

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Everything posted by trents

  1. trents
    Hi Dawn. Yes, it seems overwhelming at first and you will make some mistakes in the process of learning where gluten is found in processed foods. There is a significant learning curve. We have all been there. Some questions: 1. Are there other family members living in your house besides you and your husband? If not, the best way to ensure his safety...
  2. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    First of all, Celiac Disease is not an allergy. A FST is pretty worthless for diagnosing Celiac Disease. Celiac Disease is an autoimmune condition in which the body is triggered to attack the lining of the small bowel in response to the ingestion of gluten. Second, the FST is often very unhelpful when it comes to identifying food allergies. There are...
  3. trents

    Wheat and durum

    trents commented on johnyji123's blog entry in Johny

    Johny, we need some clarification. What kind of testing did you have done? Was this for allergies or antibodies that would be associated with Celiac Disease?
  4. trents
    It would be nice if doctors could give definitive answers but that is not always the case. But with proper testing doctors should be able to give a definitive answer about whether or not you have celiac disease.
  5. trents
    Okay. Well, we would have given you a different answer had we known it was malt flavored. Malt is made from either barley or wheat. Unflavored seltzer would be gluten free.
  6. trents
    The symptoms you describe are certainly common to those with Celiac Disease. The symptoms associated with Celiac Disease are indeed wide and varied. Celiac Disease is an autoimmune disorder (not an allergy) defined by the gluten present in wheat, barley, rye and possibly oats (for about 10% of Celiac sufferers) triggering inflammation of the lining of...
  7. trents
    Do you know more specifically what blood tests are being done for Celiac Disease? There are several antibody tests that should be done for Celiac. It also sounds like to me you ought to get an upper GI done to check for things like peptic ulcers. If the Celiac Antibodies are positive then there is a good chance they would do an upper GI and biopsy anyway...
  8. trents
    Some tips, Kelly: 1. Familiarize yourself with food industry terminology that can disguise the presence of wheat, barley and rye. For instance, "malt flavoring," "malt extract," "bulgur," "durum" and other wheat varieties. Be suspicious of food label allergen tipoffs to the likely presence of gluten like, "may contain wheat," "processed on the same equipment...
  9. trents
    dee, first of all, let me assure you that you are not alone in dealing with the frustrations of sharing life with celiac skeptics. Many in this forum community face that same barrier to guarding their health as diligently as they would like. And it's a situation that not only has a physical health dimension but a relational one as well. There is no easy answer...
  10. trents
    Even with the burger salad at Burger King, do you know that they are not cooking the burger the same grill just used to cook some breaded thing? And Arbys. Are the spices they use on the meat gluten-free? You are taking macro precautions but overlooking potential sources of small amounts of gluten. I occasionally eat out at chains like you describe...
  11. trents
    I think it needs to be said that some Celiacs are more sensitive to cross contamination issues than others. For some, even the FDA standard for labeling something gluten free of 20ppm is not good enough to prevent reactions. I would not necessarily stop eating at places that have gluten-free menus unless I had good reason to believe they aren't living up...
  12. trents
    Bat, have you actually been tested for Celiac Disease? celiac disease is not an allergy or an intolerance but an autoimmune condition that damages the small bowel lining because of inflammation over time. Blood in the stool is not something to be alarmed about if it is very occasional. It can simply mean a ruptured capillary from hemorrhoids or diverticular...
  13. trents
    Yes, healing of the villi blunting after eating gluten-free for a significant period of time does not mean you aren't a Celiac anymore.
  14. trents
    "Is it possible that being gluten-free for a year healed the villous blunting?" Certainly. If you have been on a gluten-free diet for any length of time it would be necessary to resume eating a significant amount of gluten for 4 to 6 weeks for either the blood tests or the endoscopy/biopsy to be valid. But at this point, further testing for Celiac activity...
  15. trents
    The discovery of your Celiac Disease after the gallbladder removal may have been coincidence or the surgery itself could have been the triggering event. You might also benefit from a lower fat diet since you don't have a gallbladder any longer. If a food label says something may contain gluten it could mean one of three things or all of them: 1...
  16. trents
    What do you mean when you say having our gallbladder removed caused your Celiac Disease? The gallbladder produces bile which aids in the digestion of fats. Celiac Disease is and autoimmune disease rooted in a genetic predisposition that often is latent until some triggering stress event activates it. The stress event can be anything from a viral infection...
  17. trents
    Creon is given for Exocrine Pancreatic Insufficiency (EPI) which can accrue from the damage done to the small bowel lining by Celiac Disease. EPI resulting from Celiac Disease usually goes away when people are truly practicing a gluten free diet. Creon does not directly address Celiac Disease. Currently, there are no medications available that work directly...
  18. trents
    Medication for your Celiac? I didn't know there was such a thing? What is it if you don't mind me asking?
  19. trents
    If you are still having problems with diarrhea then I would take a close look at cross contamination sources and other food intolerances. Cross contamination issues are of major importance when people are still eating out. For instance, you will get "glutened" if you eat things that in themselves contain no gluten but have been cooked on the same grills and...
  20. trents
    Have you been tested for and diagnosed with Celiac Disease? Simply cutting down on gluten consumption or being hit and miss with it really doesn't allow for healing in the gut. When you have Celiac Disease the mucosa of the small bowel is damaged when you consume gluten, even minor and trace amounts. Eating gluten-free doesn't have to be expensive...
  21. trents
    If you refer to diarrhea, it is a very common symptom with Celiac Disease but not universal. Many Celiacs do not have dramatic GI symptoms. I would think stress can exacerbate most health issues. If you are truly eating gluten-free then the big "D" should improve. If not improving, maybe there are other medical issues coming into play or, more likely, you...
  22. trents
    False positives on both the blood tests and endoscopy do happen and a number of our forum members can attest to that. Not every GI doc seems to do a good job of taking the biopsies in the right place to show the disease. The proof is in the pudding, so to speak. If you feel better after a few months on the gluten-free diet that is all you need.
  23. trents
    I expect that if you had been eating significant amounts of gluten on a daily basis leading up to the tests the results might have been more conclusive in the direction of Celiac disease. Personally, I feel you should do a gluten-free trial diet for several months and see if you don't feel better. Test confirmation, particularly the biopsy, can be helpful...
  24. trents
    You have classic symptoms of Celiac Disease but it could also be gluten intolerance. If the blood tests come back negative, pursue an endoscopy/biopsy of the small bowel lining which is the gold standard for diagnosing Celiac Disease. We do have some forum members who have had negative blood tests but positive endoscopy/biopsy. If all tests/endoscopy/biopsy...
  25. trents
    In our current healthcare climate, most doctors have a hard time thinking outside the box. Everything is metrics driven. Why did they give you folate for the high homosystine levels? Does folate counteract that?
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