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I've had ibs for 20+ years . When I have a flare up I sweat on a night. Get a cramping pain lower left abdomen and gurgling noise with constipation. I feel really ill for about a week and serious brain fog. I have narrowed down culprits to noodles and pasta and bread in large quantities. Carb free diets make me better. Doctor says it can't be coeliac because I can eat bread in small quantities and I eat shreddies with no symptoms. Does anybody out there manage to eat things they aren't supposed to and are anyone's symptoms like mine. Thanks

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Celiac.com Sponsor (A8):

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no offense, but go see another doctor.  a doctor can not tell you that you don't have it just from what you are able/unable to eat comfortably and without testing.   from experience, i can tell you that most doctors don't know much about celiac.  my (trusted!) doctor treated my 'ibs' for 20 plus years before he even suggested that i could have celiac (i had never even heard of it) - i was super angry that this had never been explored before they were ready to put me on a feeding tube because i was so emaciated.  the night sweats are nothing to fool with - get checked out by a gastroenterologist.  

stay on gluten until your testing is complete, you need to have the antibodies for the test to be accurate.  good luck - i have been in your shoes!  


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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Thanks . This is exactly why I went on this site. I've only just started looking up celiac disease . I am going to book to see doctor and ask again. Thing is I've asked about if it could be other things before and doctors say no it's just ibs. Maybe cos I still eat small amounts of bread with no problems. Thanks again. Sorry didn't reply sooner I was expecting email letting know of replies

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On 12/18/2020 at 3:14 PM, notme! said:

the night sweats are nothing to fool with - get checked out by a gastroenterologist.  

On 12/18/2020 at 2:58 PM, Stubbo46 said:

I've had ibs for 20+ years . When I have a flare up I sweat on a night. Get a cramping pain lower left abdomen and gurgling noise with constipation. I feel really ill for about a week and serious brain fog. I have narrowed down culprits to noodles and pasta and bread in large quantities. Carb free diets make me better. Doctor says it can't be coeliac because I can eat bread in small quantities and I eat shreddies with no symptoms. Does anybody out there manage to eat things they aren't supposed to and are anyone's symptoms like mine. Thanks

Stubbo,

To follow up on what Not me! said.....Follow up on those Night Sweats!

It could be undiagnosed Diabetes  or worse yet another Auto-Immune disease going undiagnosed.

Here is a nice overview of things that can cause "Night Sweats" and none of them are pleasant.

https://www.self.com/story/night-sweat-causes

I have had this problem lately and it turns out it was my Hereditary Hemachromatosis acting up....

I hope this is helpful but it is not medical advice.

Posterboy,

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I agree with Trents and others - research on the internet and read the symptoms of SIBO (small intestinal bacteria overgrowth) and see a gastroenterologist or an integrative family practice physician who is familiar with diagnosing (breath test) and prescribing this condition.  I suffered with this for many years adapting my diet over and over.  Carbs (especially sugar) feed the bacteria and make you feel worse.  It took three rounds of antibiotics to finally clear the bacteria and now I'm in another "phase" with healing the gut from the damage it made.  I still feel best when eating low or no carbs.  It does a number on your brain (gut-brain relationship) and with your sleep.  You will get over this but you need medical advice and treatment.

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Thanks . Best gluten free woman. Very helpful and Intetesting. I always go carb free to cure myself and could be the noodles and pasta making me I'll just cos they are carbs and not the gluten. Thanks

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