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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, many of us suffer from migraines.
  2. trents
    Aye! Discretion is the better part of valor. But your experience, Scott, makes me inclined to ask questions up front when I go to restaurants having gluten-free menu sections an/or to request the "gluten-free" food be cooked in clean and separate pots and pans.
  3. trents
    I don't think there is anything that will eliminate migraines completely on this side of the grave.
  4. trents
    There is also at least one at home test kit available: https://www.imaware.health/at-home-blood-test/celiac-disease-screening
  5. trents
    Sounds like a good, tactful approach.
  6. trents
    It's called tact. When it comes right down to it, the physician is the one who has the authority to say yea or nay when it comes to ordering tests. It also recognizes the fact that many or most people uncomfortable with giving the appearance of upstaging a professional and the question I suggested may provide a way of making it easier to start the conversation...
  7. trents
    The TTG is the most sensitive antibody test for Celiac Disease.
  8. trents
    You are absolutely correct. The testing done was much less than complete. The most important antibody test (tTG) for Celiac was omitted as were some others. Was this a primary care doc or a GI doc? You might go back to him/her and say something like, "I'm just not feeling good and there is significant history of Celiac Disease in my family. Are there other...
  9. trents
    That's a bummer revelation, Scott. But unfortunately it's probably a normal occurrence in the eatery industry as there is such incomplete understanding about how little gluten it can take to initiate a reaction.
  10. trents
    Essentially all meds that address autoimmune diseases will be immunosuppressants. There's just no other way to do it at this time.
  11. trents
    Sam85, sorry. I made an assumption based on your user name that you were male and the dad. What I will say is that the celiacs in your home would be safer if you committed to eating gluten-free as well. Trying to keep gluten-free foods separate from foods that contain gluten, keeping cookware and utensils separate or at least thoroughly cleaned consistently...
  12. trents
    Did they include tTG in the testing? But I think you have your answer if she is feeling better. Now you need to educate yourself on how and where gluten is found in the food system. You will be shocked at where it shows up, like canned tomato soup (and most other canned soups), soy sauce, chips, vitamins and supplements. And then there is the issue of cross...
  13. trents
    Yes, there are those eatery chains like Red Robin and Chick Fil A that do have gluten-free menu items but whether or not they are foods that will appeal to young children is another issue. If your two children have celiac disease, have you and their mother been tested? There is a pretty high probability that first degree relatives will have celiac disease...
  14. trents
    So what I hear you saying is that you feel you are caught between the two horns of a dilemma. The medical community is refusing to explore other potential issues until you get your celiac disease under control and that is escaping you despite extraordinary efforts to eat gluten-free.
  15. trents
    Bob, my feeling is something else besides gluten is causing these bowel issues. Either some other food in your diet or another medical problem. I'm with what others have suggested and would start by eliminating dairy and see if there is any improvement.
  16. trents
    You're having 1-2 BMs per day 30-40 minutes apart but spending 4-5 hours in the bathroom? Do you mean occasionally or regularly? I'm just doing the math here.
  17. trents
    1-2 BMs per day is not abnormal, at least for people getting plenty of fiber as long as the volume each time is not excessive or, on the other hand, is of diarrhea consistency. Budesinide is usually given for Crohns or IBS and is an immune system suppressant. You say the medication hasn't helped? If I am following the chronology correctly, it sounds like...
  18. trents
    Your tTG has remained low and it is the most sensitive marker for celiac disease. But I'm confused. Your first testing was done in May of 2019 but you were not officially diagnosed until late July of 2020? Is this correct? When was the biopsy done? So you have been gluten-free for about four months, correct? Is frequent bowel movements the...
  19. trents
    Good advice, Kate, about the excessive amount of processed food products the OP is using. Your admonishment about using the term "refractory" when responding to a newbie post is well-taken but my concern was that after making a serious attempt to eat gluten-free for five months there should have been some improvement in symptoms and blood work. Correct...
  20. trents
    Because of damage to the small bowel villi and resultant "leaky gut syndrome," Celiacs often develop allergies/intolerances to non gluten foods. Allergies/intolerances to dairy and soy are very common but it can be almost anything, like corn, for instance. But since you are still producing celiac antibodies it would seem you are getting gluten from cross...
  21. trents
    There are many contributors to this forum that will tell you that many products labeled "gluten free" aren't gluten free enough to prevent them from having a reaction when consumed. Apparently, the FDA standard of 20ppm is not stringent enough for some. And I note that nothing on our list is "certified gluten free" as opposed to "gluten free." https...
  22. trents
    The vast majority of the things on your list would be naturally gluten-free and would not come in contact with gluten in production. If the chicken and steak are fresh and not breaded then cross them out too. I would be suspicious of any processed foods labeled "gluten free" that you may be using. Look for "Certified gluten-free" for any processed foods you...
  23. trents
    "I consulted a gastroenterologist 2 months after going gluten free, we did a test. He said I hadn't been gluten free long enough for the antibodies to disappear - but it came back negative for celiac. (I did IGA and TTG)." Yeah, I don't know if he was correct about that.
  24. trents
    Not necessarily so. I gained 10 lb. after diagnosis and going gluten-free. There are still lots of carby foods you can eat to replace the carbs from bread and noodles you used to eat. And many celiacs gain weight after going gluten-free because they now absorb nutrients better.
  25. trents
    That's a tuff one. Kids that age tend to be picky eaters and to put things like baked potatoes, steamed rice and steamed veggies in front of them won't be appealing. We typically advise even adult celiacs to avoid eating out if possible because studies show that's where gluten cross contamination happens most often. If an eatery had fresh fruit, that would...
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