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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I wonder if you have developed an allergy/insensitivity/intolerance to some food or foods that do not contain gluten. This is common with celiacs because of leaky gut syndrome and the immune system dysfunction it produces. I was also going to suggest a SIBO eval but you are onto that already.
  2. trents
    "Can you eat vanilla ice cream?"
  3. trents
    Your gluten relapse over the holidays may not have been long enough to give a valid blood antibody test for celiac disease. Six to eight weeks eating a significant amount of gluten daily (equivalent of 1-2 slices of bread) is the guideline for pretesting gluten ingestion in order to ensure a valid antibody test. You might also look into SIBO testing...
  4. trents
    You may very well be correct in your assessment but it sounds like his parents are not open to the idea. That's a very touchy situation as you don't want to get pushy and alienate his parents. In the end, you are not his parents and have no control over the situation. Sounds like you have breached the idea with his parents and that is about all you can do...
  5. trents

    Head ache after eating

    trents commented on JCH13's blog entry in JCH13's Blog

    The headaches could be triggered by something in her diet besides gluten. Over time, celiacs commonly develop allergies/intolerances to other foods besides those containing gluten. This is because of damage to the mucosal lining of the small bowel which allows larger than normal protein fractions to cross into the blood stream. We call this "leaky gut syndrome...
  6. trents
    Glad you liked it and it's good to hear you are feeling better.
  7. trents
    From your link, AZCeliacWife, I don't see any mention of their meals being gluten free.
  8. trents
    If they have been Certified Gluten Free that means they have been tested such that any cross contamination that might occur in the production environment has proven to be less than the 20ppm of gluten threshold needed to qualify for the CFG label. However, 20ppm is still enough to trigger reactions in some celiacs who are especially sensitive to gluten. It...
  9. trents
    https://www.imaware.health/at-home-blood-test/celiac-disease-screening
  10. trents
    Welcome to the forum, Ellis! Sounds like you are on the right track now. You have other health issues in addition to probably celiac disease so it will take awhile to get things balanced out, meds tweaked, etc. Glad you are already feeling so much better. I applaud you for taking the bull by the horns and appropriately asserting yourself with your GP...
  11. trents
    Here's some specifics: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  12. trents
    The fact that there isn't any history in the family of celiac disease doesn't mean that there wasn't any. It just means that no one was diagnosed with it. Many celiacs are largely asymptomatic for many years. We call that "silent celiac disease." You have many symptoms that directly or indirectly point to celiac disease. I would certainly request that from...
  13. trents
    Let me reinforce something I stated in my earlier post. There are several gluten-related medical disorders. There can be an allergy to gluten. There can be a sensitivity to gluten. There can be an intolerance to gluten which causes diarrhea such as you see when people have lactose intolerance to milk sugar. These are all distinct medical conditions but none...
  14. trents
    Welcome to the forum, Dandysam. First, you use the term "gluten allergy." People can have an allergy to gluten but I suspect you are referring to celiac disease which is not an allergy but an autoimmune disorder. Your hubby's stomach pain, anemia and fatigue can be indicators of celiac disease. Celiac Disease ("celiac disease") cannot be diagnosed with...
  15. trents
    What makes you think you are still dealing with leaky gut/permeability issues?
  16. trents
    Welcome to he forum, baby.alpaca! I'm a little confused by your post. Doctors don't use a colonoscopy to diagnose celiac disease. They use an "endoscopy." A colonoscopy examines the lower intestinal track below the area that is directly affected by celiac disease. Celiac disease directly affects the small bowel, the area just below the stomach. It damages...
  17. trents
    Melissa, may I presume to answer the question you have directed at Scott? I think the confusion is a result of misunderstanding what the term "gluten free" means in the food industry. It does not refer to an absolute "0" amount of gluten. The FDA (USA agency) uses the term to refer to food items that contain less than 20 parts per million (ppm) of gluten...
  18. trents
    Welcome to the forum, Bunnehlvr! You've come to the right place. Many come here not having been officially diagnosed with celiac disease and with stories not unlike your own. Let us know how we can help and encourage you. Don't be afraid to ask specific questions. Until such time as you can get testing done and an official diagnosis you should assume...
  19. trents
    eah4me, thanks for this post. It really corroborates what a number of us have been saying. That is, damage to the SB mucosa can be spotty rather than global. And if the doc doing the biopsy is inexperienced and doesn't realize this, he or she might not sample enough nooks and crannies to catch the damage.
  20. trents
    Historically, it hasn't been routine but because the diagnosed incidence of celiac disease continues to rise and be much higher than was believed even 15-20 years ago when I was diagnosed it may be something that is becoming routine, especially if there are other symptoms that are often found in conjunction with celiac disease, like GERD and other food intolerances...
  21. trents
    Yes, the buckwheat is more expensive than oats for sure. I get this: https://www.amazon.com/Organic-Hulled-Buckwheat-Groats-Anthonys/dp/B00QKXVAN2/ref=sxts_sxwds-bia-wc-rsf-lq2a2_0?cv_ct_cx=buckwheat&dchild=1&keywords=buckwheat&pd_rd_i=B00QKXVAN2&pd_rd_r=a9d54a83-8755-490d-b9df-ff9d8f63375f&pd_rd_w=MrgJi&pd_rd_wg=yb09e&pf_rd_p...
  22. trents
    About 10% of celiacs react to even gluten free oats like they do wheat, barley and rye. Eliminating oats is where I would go next if I were you. Have you tried buckwheat? It's not wheat at all but related to rhubarb. Delicious and more nutritious than oats. Takes about 10 minutes to cook. If you're interested, make sure you purchase buckwheat that is gluten...
  23. trents
    Wait a minute, GFinDC. By definition, celiac disease is an autoimmune condition that damages the small bowel mucosa: "Celiac disease is a serious autoimmune disease that occurs in genetically predisposed people where the ingestion of gluten leads to damage in the small intestine," from https://celiac.org/about-celiac-disease/what-is-celiac-disease/ So...
  24. trents
    Thanks for the response, GFinDC. Very informative. Do you know if those celiacs with DH or ataxia will necessarily not have gut damage? Is it either or or can it be both and?
  25. trents
    GFinDC, if anti-gliaden antibodies don't form from gluten sensitivity, whey would declining anti-gliadin antibodies indicate gluten sensitivity. Did you mean to type what you typed?
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