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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Newly Diagnosed - Symtoms
trents replied to Walter123's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, Walter. You have several things going on there that need attention. The swollen glands in the cheeks is a new one I haven't heard of before. The numbness could be due to Celiac disease as neurological problems are common with celiac disease. Hashimoto's is a thyroid disease and likely causing the low levels of thyroid... -
Results and questions
trents replied to Jaguar jack's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Many celiacs do not have significant GI distress before diagnosis. I was one of them. Absence of significant GI distress does not mean there is no damage occurring to the small bowel villi and also causing other health issues that may take some time to surface. We call this "silent celiac disease." -
Newb Celiac/G Sensitive here
trents replied to ButWhatCanIEat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I wasn't diagnosed until my early 50s and have found healing. Certainly you can. There are still many things you can eat and the best part is you will find yourself switching over to eating more fresh foods and less processed foods, thus healthier eating. It will put a severe limit on eating out in restaurants and at other people's houses unless they are... -
My 3yr old's 690 IgA Result
trents replied to Kifaya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A delicious alternative IMO to oatmeal is buckwheat. It is also packed with nutrition. Takes about 10 minutes to cook. It is not related to wheat or any other cereal grain. It is actually the seeds of a plant related to rhubarb. -
My 3yr old's 690 IgA Result
trents replied to Kifaya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Look for the logo "Certified Gluten Free" when you have a choice. "Certified" would have been tested for sure. I see a lot of stuff on Amazon that is labeled "Naturally Gluten Free" and I'm suspicious of it as that would not seem to preclude cross contamination. I purchase a lot of "gluten free" products from Bob's Red Mill and even though not "Certified... -
My 3yr old's 690 IgA Result
trents replied to Kifaya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think La Choy brand soy sauce is wheat free. -
An endoscopy and biopsy will not yield valid results if you have been eating gluten-free for any length of time before it is done.
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Did you mention to your physician that you had been making an effort to eat gluten-free for a week, two weeks before the test but that you had returned to eating gluten a week before the test? Not sure that brief hiatus from gluten would totally invalidate the test but it might have some mitigating effect on the actual scores. I would bring that up with the...
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What Are the Symptoms of Celiac Disease?
trents commented on Scott Adams's article in Celiac Disease Basics
Yes, many of us suffer from migraines.- 144 comments
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Aye! Discretion is the better part of valor. But your experience, Scott, makes me inclined to ask questions up front when I go to restaurants having gluten-free menu sections an/or to request the "gluten-free" food be cooked in clean and separate pots and pans.
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Positive / negative
trents replied to Rick Williams's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't think there is anything that will eliminate migraines completely on this side of the grave. -
how to get dr give test
trents replied to lacylacy421's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is also at least one at home test kit available: https://www.imaware.health/at-home-blood-test/celiac-disease-screening -
Celiac Screening
trents replied to ethos35's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds like a good, tactful approach.- 8 replies
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Celiac Screening
trents replied to ethos35's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's called tact. When it comes right down to it, the physician is the one who has the authority to say yea or nay when it comes to ordering tests. It also recognizes the fact that many or most people uncomfortable with giving the appearance of upstaging a professional and the question I suggested may provide a way of making it easier to start the conversation...- 8 replies
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Positive / negative
trents replied to Rick Williams's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The TTG is the most sensitive antibody test for Celiac Disease. -
Celiac Screening
trents replied to ethos35's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are absolutely correct. The testing done was much less than complete. The most important antibody test (tTG) for Celiac was omitted as were some others. Was this a primary care doc or a GI doc? You might go back to him/her and say something like, "I'm just not feeling good and there is significant history of Celiac Disease in my family. Are there other...- 8 replies
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That's a bummer revelation, Scott. But unfortunately it's probably a normal occurrence in the eatery industry as there is such incomplete understanding about how little gluten it can take to initiate a reaction.
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Sam85, sorry. I made an assumption based on your user name that you were male and the dad. What I will say is that the celiacs in your home would be safer if you committed to eating gluten-free as well. Trying to keep gluten-free foods separate from foods that contain gluten, keeping cookware and utensils separate or at least thoroughly cleaned consistently...
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My 3yr old's 690 IgA Result
trents replied to Kifaya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did they include tTG in the testing? But I think you have your answer if she is feeling better. Now you need to educate yourself on how and where gluten is found in the food system. You will be shocked at where it shows up, like canned tomato soup (and most other canned soups), soy sauce, chips, vitamins and supplements. And then there is the issue of cross... -
Yes, there are those eatery chains like Red Robin and Chick Fil A that do have gluten-free menu items but whether or not they are foods that will appeal to young children is another issue. If your two children have celiac disease, have you and their mother been tested? There is a pretty high probability that first degree relatives will have celiac disease...
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1-2 BMs per day is not abnormal, at least for people getting plenty of fiber as long as the volume each time is not excessive or, on the other hand, is of diarrhea consistency. Budesinide is usually given for Crohns or IBS and is an immune system suppressant. You say the medication hasn't helped? If I am following the chronology correctly, it sounds like...