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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,182 topics in this forum

  1. Cara in Boston
    mommida
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  2. Cara in Boston
    africanqueen99
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  5. Quaylern
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  6. cmc811
    ArPlasma
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  7. amcclain32
    blmoreschi
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  8. ELCJet
    africanqueen99
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  9. ArPlasma
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    africanqueen99
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  12. langone7
    africanqueen99
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  13. Austins-Mom
    Cara in Boston
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  14. kareng
    dilettantesteph
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  15. theresa70
    africanqueen99
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  16. sriddle
    howlnmad
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  17. AGsMom
    mommida
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  18. cosmicmouse
    ays2974
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  19. my3yo
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  20. GwenO
    • 4 replies
    • 1.8k views
  21. Nebraskamommy
    Cara in Boston
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  22. Dloi
    kareng
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  23. dilettantesteph
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  24. omgmegg
    GottaSki
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  25. simplemom
    cyclinglady
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  26. ryo
    mommida
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  27. africanqueen99
    Cara in Boston
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  • Posts

    • Joel K
      Okay.  That doesn't answer the question, but thanks anyway.
    • MelissaClinPsyD
      A confirmed diagnosis of refractory coeliac disease is required to participate in the study unfortunately. Apologies you are feeling miserable even though you have remained gluten-free, I hope you are able to receive further understanding as to why from the relevant medical professional. I am hoping to provide copies of the content used in this study following its completion end of this year so will make a note to post on here when the study is complete, a copy of the resources used from the group. 
    • DanteZaffar
      Do you think it’s a vitamin issue that could make celiac symptoms worse during recovery ? 
    • trents
      Multivitamin products are seldom potent to offset the vitamin and mineral deficiencies that typically result from long term undiagnosed celiac disease. We commonly recommend sublingual B12, a B-complex 5-10k IU of D3, 400 mg daily of magnesium glycinate, and zinc picolinate. The forms of certain vitamins like magnesium and zinc are important since it has a significant impact on absorbability. If you live near a Costco, the Kirkland Signature series and Nature Made lines are good quality choices and economical. And they will indicate on the packaging if they are gluten free.
    • DanteZaffar
      I’ve been taking a multivitamin however my doctors appointment is not available till next month for any specific vitamin tests 
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