Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

A Cheesy Note To Newbies With Secondary Lactose Intolerance

ABQ-Celiac

By ABQ-Celiac
in Coping with Celiac Disease

Recommended Posts

ABQ-Celiac Rookie
ABQ-Celiac
Posted

For those newish celiacs with secondary lactose intolerance, like me, I wanted to give a shout-out of encouragement.

 

When I was first diagnosed in October 2012, one of the hardest pills to swallow was my secondary lactose intolerance. I couldn't imagine living without dairy. I read on this forum and many others that secondary lactose intolerance often went away in 6 months to 2 years. I banked on it. I prayed for it.

 

Every once in a while I'd try to a small milk chocolate candy or a small piece of cheese, but I always felt nauseous a short time later.

 

Until 5 and 1/2 months passed. Then I had a small amount of cheddar cheese on my eggs. No problem. I tried shredded cheddar on my potato fine. I've not yet experimented with REAL milk yet, or ice cream, but being able to add cheese to my daily bowl of rice has made me happy.


I feared, after the first couple of months, that I had lost dairy forever. Now I'm hopeful one day to glug a big glass of REAL milk again, and dive into some ice cream.

 

Hang in there, I guess, is the message. I've received so much support from these forums, I wanted to share this encouragement with others.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


alesusy Explorer
alesusy
Posted

Hi ABQ - good for you!

I still have a severe lactose intolerance (gluten-free since December 2012) but I've found out thankfully, that I can eat well seasoned cheese (Parmesan cheese more than 24 months old is available here in Italy) because it does not containt lactose any more (or less lactose). However I can't have milk nor fresh cheese nor butter nor even large quantities of de-lactosed milk and mozzarella that are on sale in some shops here. Having Parmesa grated on my rice is a big help.

Link to comment
Share on other sites
Patrish Newbie
Patrish
Posted

For those newish celiacs with secondary lactose intolerance, like me, I wanted to give a shout-out of encouragement.

 

When I was first diagnosed in October 2012, one of the hardest pills to swallow was my secondary lactose intolerance. I couldn't imagine living without dairy. I read on this forum and many others that secondary lactose intolerance often went away in 6 months to 2 years. I banked on it. I prayed for it.

 

Every once in a while I'd try to a small milk chocolate candy or a small piece of cheese, but I always felt nauseous a short time later.

 

Until 5 and 1/2 months passed. Then I had a small amount of cheddar cheese on my eggs. No problem. I tried shredded cheddar on my potato fine. I've not yet experimented with REAL milk yet, or ice cream, but being able to add cheese to my daily bowl of rice has made me happy.

I feared, after the first couple of months, that I had lost dairy forever. Now I'm hopeful one day to glug a big glass of REAL milk again, and dive into some ice cream.

 

Hang in there, I guess, is the message. I've received so much support from these forums, I wanted to share this encouragement with others.

I am totally lactose intolerant yet I can eat most Cabot cheeses.  It says right on the package 0 grams lactose.  The same with some Kraft cheeses, especially the low moisture mozorealla.  I have had no reactions.  Please be careful if you are sensitive to casseine.

Link to comment
Share on other sites
Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I am 7 months in and I think I just got parmesan back, as long as I don't overdo it. Couldn't manage cheddar, yogurt or milk, but I am hopeful for one day :)

Thanks for sharing, I love the positive stuff

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

Thank you for posting with such encouraging news for the newbs! :)

 

We all say "hang in there" and "you can get those foods back someday", but it ALWAYS helps to have someone say "Look at me, I'm eating cheese (or some other food that gave them grief) again!! whoohoo!" .

 

It took me almost 15 months to get back small amounts of dairy but I seem to have my own slow , steady pace of healing.

After 2 years, I can have ice cream. yaay!!

 

Not sure I am ever going to glug a big ole glass of cow's milk again, but that's okay. I'm good with it.

 

Good for you and when you do have that ice cream---let us know. 

Cheers!

Link to comment
Share on other sites
Ninja Contributor
Ninja
Posted

I'm at 14 months and can handle all dairy - foods with high amounts of lactose in moderation. I don't think I'll ever go back to drinking cow's milk straight though...

 

Thanks for sharing, I love reading about progress others have made/continue to make. :)

Link to comment
Share on other sites
Pegleg84 Collaborator
Pegleg84
Posted

I didn't develop problems with dairy until a couple years after going gluten-free (or was in denial about any problems beforehand, so kept eating it.) I'm pretty sure casein is my problem more than lactose. I've been dairy free for over a year. I'm finding now that I can handle very small amounts of aged hard cheeses, and small amounts of clarified butter. So here's hoping that I'll be able to nibble on some cheese without fear sometime in the next year.

I haven't drank a full glass of milk in years, so I can survive without that. Almond milk is doing just fine as a substitute, but I need cheeeeese!

 

Cheers

Peg

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,073
    • Most Online (within 30 mins)
      7,748
    rusky
    Newest Member
    rusky
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Nacina
      14 year old with Celiac & EOE still suffering...

      By Nacina · Posted

      Well, that's a big question. When he was seeing the nutrition response testing dr. that changed each time we went in. He hasn't been seeing him regularly for theist ten months. When he had a horribly week in March I started him back on the 4 that were suggested to keep him on. Those are: Standard Process Chlorophyll Complex gluten-free, SP A-F Betafood gluten-free, SP Tuna Omega-3 Oil gluten-free, And Advanced Amino Formula. He also takes a one a day from a company called Forvia (multivitamin and mineral) and Probiotic . Recently he had to start Vitamin D as well as he was deficient.  
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
×
×
  • Create New...