Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Soothing A Child After Accidental Glutening?

ImaMiriam

Recommended Posts

ImaMiriam Apprentice
ImaMiriam
Posted
  • Author

Sorry to hear that you've had a rough couple of days!

 

Just like getting oxygen on an airplane in an emergency, you have put it the mask on the adult first and then the child! Please take care of yourself (we moms are so bad at this)!

 

I just wanted to point out that at this point in your daughter's healing that the tiniest amounts of gluten can be magnified tens times over!  A little gluten now knocks me for a loop for seven days!  Before my dx, I had no symptoms other than a little anemia and I already had a genetic anemia.

 

Take care!

Hi, I'm so glad and appreciative that you said this about the "tiniest amount."

 

 

It kind of disgusts me that the medical community doesn't know this about the heightened sensitivity -- I feel fairly certain that my daughter's symptoms right now are not a set-back....just another glutening. I'm not rushing her to the doctor now for a biopsy, etc.

 

I feel strongly that the medical community needs to come up with a new "gold standard" for Celiac disease. There's no way I'm going to put her through a gluten-challenge, and I also feel that removing pieces of her small intestine is a poor way to determine the disease.

 

 

One of my biggest challenges is to get her to drink more fluids. I think that contributes greatly to her headaches.

 

I'm doing my best to stay calm and to relax and get enough sleep, etc. 

 

We have a family wedding to go to in a week, and I'm starting to try to figure out how to handle the food aspect. One thought is to not even go to the reception, just go to the ceremony! :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

You might want to pack a picnic lunch and eat it between the wedding and the reception.    You can still dance and have fun socializing!  Be sure to pack pieces of gluten-free cake or cupcakes, so you and your daughter won't feel left out.  You can always have drinks/sodas during the reception.   We did this a few years back (hubby gluten-free).  We didn't even miss anything at the reception since they were taking photos.  

 

In the past, I have always brought gluten-free treats and snacks for my hubby (I love my garage freezer) for weddings and parties.  We have an RV now, so it's a lot easier and a little more discreet that tailgating it!  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,199
    • Most Online (within 30 mins)
      10,442
    Tricia01
    Newest Member
    Tricia01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Ectopic heartbeats - any relation to digestive issues?

      By cristiana · Posted

      I just thought I'd update this post. My father has had some issues with his heart rythym and we found giving him an electrolyte drink plus a vitamin D supplement with extra calcium containing food (yoghurt) made a big difference, and very quickly. My own problems with ectopic heartbeats started up again with warmer weather so I thought I'd take a leaf out of his book, and now, for the second time, after just one Phizz Electrolyte Drink, and a dose of vitamin D (Fultium D 800 x 4) with a milkshake, my ectopics disappeared within the hour.   Probably the Phizz drink rather than the D with calcium, but maybe it all helped?  Just mentioning this in case anyone is looking for answers.
    • Russ H
      Coeliac or not coeliac

      By Russ H · Posted

      Do you have the standard range for the test results you received? A level of anti-tTG2 antibodies at least 10x the standard range is almost certainly (>98%) due to coeliac disease. Moderately raised levels can be caused by other conditions as well as coeliac disease. Accuracy of the No-Biopsy Approach for the Diagnosis of Celiac Disease in Adults: A Systematic Review and Meta-Analysis It is possible to have latent or early stage coeliac disease without histological changes visible by microscope. As has been suggest in this thread, if the repeat test comes up negative and serology is high, request an HLA genetic test from your specialist. Only 40 % of the population carries an HLA gene variant enabling the development of coeliac disease - if you test negative for this, it is quite unlikely that you have coeliac disease.  
    • Wheatwacked
      The Struggle Has Overtaken Me

      By Wheatwacked · Posted

      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
×
×
  • Create New...