Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Possible Celiac?

Fenrir

Recommended Posts

Fenrir Community Regular
Fenrir
Posted
  • Author

Glad you are now ready to start your new gluten free life.  I am so glad you got a definitive diagnosis and so soon after the scope!

 

Dee

 

 

Wow, those were quick test results!

 

So, time to learn how to eat gluten-free then.  There is a whole new world of whole foods and gluten-free alternatives to explore.  It can be kind of fun to try out new foods that you may not have considered in the past.  Welcome to the 1% club Fenrir! :)

 Yeah, it wasn't even 24hrs before the results were back. That's about as fast as it gets. 

 

Not to mention instead of taking years to figure out it "only" took about 4 months. 

 

The GI group I go to has a PA that is a specialist in Celiac so I have an appointment with him coming up and he will likely monitor the situation. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 66
  • Created
  • Last Reply
moosemalibu Collaborator
moosemalibu
Posted

Glad to hear you got your diagnosis! Welcome to the team ;) .

Fenrir Community Regular
Fenrir
Posted
  • Author

I was just lucky to have good Drs. who listened really well to what I was telling them, knew very well about Celiac and how to DX it. 

 

Anyone in the Twin Cities are of MN that is having possible Celiac issues would get my recommendation of going to Minnesota Gastreoenterology Group, they have several GI specialists and locations in the Twin Cities Metro. I would recommend specifically Dr. Kandiel and Dr. Henninghake, but they have several specialists who I'm sure are very capable. They also have a PA that specializes in caring for Celiac patients. 

NoGlutenCooties Contributor
NoGlutenCooties
Posted

Welcome to the Club!  And I know what you mean about feeling oddly happy.  You know what's wrong and there is a relatively simple way to fix it, that does not involve surgery, or kemo, or a lifetime of medications with all kinds of side-effects.  If you have to have a disease... this one ain't so bad.

GFinDC Veteran
GFinDC
Posted

I was just lucky to have good Drs. who listened really well to what I was telling them, knew very well about Celiac and how to DX it. 

 

Anyone in the Twin Cities are of MN that is having possible Celiac issues would get my recommendation of going to Minnesota Gastreoenterology Group, they have several GI specialists and locations in the Twin Cities Metro. I would recommend specifically Dr. Kandiel and Dr. Henninghake, but they have several specialists who I'm sure are very capable. They also have a PA that specializes in caring for Celiac patients. 

 

That's great Fenrir that you found a good bunch of doctors.  Maybe you'd consider adding a thread to the Doctor's sub-forum?  People go there to look for dr recommendations.

 

Looks like there are a couple threads there already, so maybe adding to one of them is better.

 

Twin Cities (Mn) Recommendations?

https://www.celiac.com/forums/topic/103783-twin-cities-mn-recommendations/?hl=%2Btwin+%2Bcities

 

Great Experience - Twin Cities Minnesota

https://www.celiac.com/forums/topic/106051-great-experience-twin-cities-minnesota/?hl=%2Btwin+%2Bcities

nvsmom Community Regular
nvsmom
Posted

Thanks for the welcomes.

 

This is the coolest uncool club that I never wanted to be a part of...... :P

LOL  :lol:  Hope you feel well soon!

ezgoindude Explorer
ezgoindude
Posted

Good stuff buddy, your scope results sounded similar to mine... since that was still a wash I won't get my HLA genetic typing back until mid May.....

 

 

Now that you're official you have to let me know what comfort/easy to make foods you find comfortable,  as a dude I never realized how much damn time you spend in the kitchen when ALL you meals/snacks are from your house.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fenrir Community Regular
Fenrir
Posted
  • Author

Good stuff buddy, your scope results sounded similar to mine... since that was still a wash I won't get my HLA genetic typing back until mid May.....

 

 

Now that you're official you have to let me know what comfort/easy to make foods you find comfortable,  as a dude I never realized how much damn time you spend in the kitchen when ALL you meals/snacks are from your house.....

Still figuring food out but I have found corn tortillas to be a be a pretty good replacement for bread in most cases.

 

Ham and cheese rollups, PB&J rollups, pizza, tacos....ect.

 

I'm also a big fan of wild rice and brown rice so I make brown rice, mix in some beans, some ham or chicken, corn and some Mrs. Dash Chipotle Southwest seasoning and it's pretty darn good.

kareng Grand Master
kareng
Posted

Still figuring food out but I have found corn tortillas to be a be a pretty good replacement for bread in most cases.

 

Ham and cheese rollups, PB&J rollups, pizza, tacos....ect.

 

I'm also a big fan of wild rice and brown rice so I make brown rice, mix in some beans, some ham or chicken, corn and some Mrs. Dash Chipotle Southwest seasoning and it's pretty darn good.

 

I use some of the tortillas like Rudis, Udis or Sandwich Petals to make grilled sandwiches or pizzas.  I never have much luck getting them to roll.  I like to roll ham around a little cheese and maybe a slice of red pepper.  I also like Cruchmaster crackers and am happy with cheese and crackers instead of a sandwich.

 

I make rice and beans like you are talking about.  I use jarred salsa in mine.  I will look for that Mrs. Dash seasoning.  It sounds like something we might like.  Crockpots make cooking really easy, too.  

 

You might want to look at the What's for dinner chat to get some ideas.  Some are pretty fancy cooks but some of us aren't.  They are also a group that would be happy to give you some suggestions.

 

https://www.celiac.com/forums/topic/75238-the-whats-for-dinner-tonight-chat/

kareng Grand Master
kareng
Posted

Good stuff buddy, your scope results sounded similar to mine... since that was still a wash I won't get my HLA genetic typing back until mid May.....

 

 

Now that you're official you have to let me know what comfort/easy to make foods you find comfortable,  as a dude I never realized how much damn time you spend in the kitchen when ALL you meals/snacks are from your house.....

 

You, too.  come on over to the Dinner chat.  Don't be put off by the ones that fancy themselves "gourmets".  Some of us like to spend less time cooking.  I like 1 dish meals that have left-overs!  And cook extra to use later in the week.  LIke - grill some chicken for tonight with BBQ sauce on it & grill some plain at the same time to add to your tacos or salad.   :D

 

 

https://www.celiac.com/forums/topic/75238-the-whats-for-dinner-tonight-chat/

GFinDC Veteran
GFinDC
Posted

I get the Food for Life brown rice tortillas.  The are kinda stiff so I run a little water over them on both sides and zap them in the nuker for 15 seconds to soften them.

 

Food for Life tortillas

Open Original Shared Link

 

The real gourmet meals are in these threads:

 

Super Easy Meal Ideas Anyone?
https://www.celiac.com/forums/topic/97027-super-easy-meal-ideas-anyone/

Good Gluten Free Meals Prepared Using A Microwave?
https://www.celiac.com/forums/topic/102685-good-gluten-free-meals-prepared-using-a-microwave/#entry885634

Fenrir Community Regular
Fenrir
Posted
  • Author

Thanks for all of the suggestions.

 

At first it seemed like it was going to be very hard to find things I can eat but now I have tons of things I can make myself. It is a good thing that I learned to cook for my wife 7 years ago when we got married because I think I will have to cook a lot more now than I did before. I'm also looking at this as being a new step in life, in that I'm really going to focus on eating healthy now and I can do that gluten-free.

Fenrir Community Regular
Fenrir
Posted
  • Author

Got some new labs back:
 

deamidated gliadin abs, igg     42  Range: 0-19 units

deamidated gliadin abs, iga     73  Range: 0-19 units

 

These labs were drawn about 6 days of being gluten free.

 

Just some more confirmation and a baseline to go on.

Fenrir Community Regular
Fenrir
Posted
  • Author

Just continuing to post here just in case someone looking for answers finds this thread, maybe my experience will help them out:

Got my Pathology Report and it was graded Marsh Grade 3b, so there is quite a lot of villous damage going on apparently.

moosemalibu Collaborator
moosemalibu
Posted

Wow! That explains how crummy you were feeling. Glad you are on a journey to heal. :)

  • 2 weeks later...
ezgoindude Explorer
ezgoindude
Posted

wow, been a few weeks was swamped with finals.  Thank you Kareng for the links, i'm slowly building a a reference list of favorites from the forum I can get easy reference too, the recipies are great.  especially if I would get off my lazy @$$ and use the crockpot, looks like alot of good stuff can come from that.

 

Fenrir i'm glad they found the damage after 6 samples.  My doctor is hesitant on telling me how many he sent through (which I'm assuming is one)  but the labs came back normal, which he knows is crap since he saw flattenned villi with his own two eyes...... ugh, my blood work won't support celiac so I'm trying to push for non celiac gluten intolerance. 

 

it's been 9 months and there's only so many scopes on my body they can put a damn camera down ha, I was asking about gallbladder/pancreas issues and his reply is there would be other painful symptoms, to keep a food journal and i'll see him in 3 months.

 

But yea, how's it been in terms of post diagnosis?

Fenrir Community Regular
Fenrir
Posted
  • Author

wow, been a few weeks was swamped with finals.  Thank you Kareng for the links, i'm slowly building a a reference list of favorites from the forum I can get easy reference too, the recipies are great.  especially if I would get off my lazy @$$ and use the crockpot, looks like alot of good stuff can come from that.

 

Fenrir i'm glad they found the damage after 6 samples.  My doctor is hesitant on telling me how many he sent through (which I'm assuming is one)  but the labs came back normal, which he knows is crap since he saw flattenned villi with his own two eyes...... ugh, my blood work won't support celiac so I'm trying to push for non celiac gluten intolerance. 

 

it's been 9 months and there's only so many scopes on my body they can put a damn camera down ha, I was asking about gallbladder/pancreas issues and his reply is there would be other painful symptoms, to keep a food journal and i'll see him in 3 months.

 

But yea, how's it been in terms of post diagnosis?

 

So for so good. I've been glutened a few times. Once out of habit and twice because I didn't realize something had gluten in it.

 

Still learning but feeling better already. Joints are starting to get better, mind isn't as cloudy, don't have constant bloating and gas. So there has been pretty good improvement over the last few weeks. A long way to go yet but so far so good.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,076
    • Most Online (within 30 mins)
      10,442
    Beck21
    Newest Member
    Beck21
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...