Jump to content
  • Sign Up
Jamie1450

Eaten Gluten Twice With No Obvious Reaction?

Rate this topic

Recommended Posts

My now 3 year old son was diagnosed with Celiac Disease at 18 months after having problems maintaining his weight. I actually asked his pediatrician to run the blood test on him after reading all the symptoms on line. All his levels were normal except his TTG was was point over normal. Anything 4 and over was considered abnormal per the test and his was 5. Because he was only a year old we decided not to do the biopsy and just went gluten free. Since going gluten free he has grown right on track but he also stopped being such a picky eater. He's had some loose stools here and there and we thought he was being glutenized but he's been fine in that department for a while now. Then 2 days ago he ate half of a regular gluten filled hamburger bun. No obvious reaction what so ever. This has now happened 2 in the last couple of months. Ate something with gluten and did not have a reaction. I don't know what to think. 

Share this post


Link to post
Share on other sites

People don't always react, and by that I meant that they are showing no noticeable symptoms. You can be sure that an autoimmune reaction has begun in his body, but it might not manifest with regular symptoms.

 

Some people have symptoms that seem to have nothing to do with gut issues. My 12 year old cousin was diagnosed after he had cognitive issues.  Others get headaches, more tired, anxiety, joint pain, or their hair thins.  He could be having symptoms but not ones that he has had in the past or ones that you would recognize. Slowed growth would take a while to show itself.  ;)

 

Also, many of us find that we feel worse after repeated glutenings. I know this is true of me.  Perhaps his symptoms will not show up yet, but that does not mean he is not having an autoimmune reaction.

 

I suppose there is a chance that his tTG was a false positive, but it is very unlikely. The tTG IgA is about 95% specific to celiac disease so 95 out of 100 positive tests are due to celiac disease.  The other positives are caused by something else - the tTG IgA should not be elevated for no reason at all. If it is not celiac disease, he should be checked for thyroiditis, diabetes, colitis, crohn's, chronic liver disease or a serious infection.... but my guess is that it is celiac disease since his symptoms have improved after going gluten-free and he had a positive celiac disease test.

 

Best wishes. I hope he stays out of the gluten.  ;)

Share this post


Link to post
Share on other sites

Perhaps he doesn't have Celiac disease?  He only had 1 test very slightly over normal, so there is no way to really know without a endoscopy while eating gluten.  

 

Here are a couple of things.  There is more info on the U of C site about slightly elevated TTGs not necessarily pointing to Celiac.  

 

http://www.cureceliacdisease.org/archives/faq/how-does-one-rule-out-other-possible-causes-of-the-positive-ttg-blood-test

 

How does one rule out other possible causes of the positive tTG blood test?

We rule out other causes of elevated tTG by evaluating the other known possible causes, such as liver diseases or the concomitant presence of other autoimmune disorders.

 

http://www.cureceliacdisease.org/archives/faq/can-you-confirm-celiac-disease-from-only-a-blood-test

Can you confirm celiac disease from only a blood test?

Never, in fact. Other variables must be part of a diagnosis. New guidelines in 2011 allow for diagnosis without a biopsy, but only in very rare cases. In these rare cases at least one of the genes must be present, both tTG and EMA blood tests must be more than 10x normal, and there must be a positive response to a gluten-free diet.

Because the above cases are so rare, the gold standard for diagnosis is still an endoscopic biopsy of the small intestine.

Share this post


Link to post
Share on other sites

I was diagnosed with just a blood test. I had an endoscopy years later which confirmed celiac but my gastro MD said the blood levels I had were some of the highest he'd ever seen. I went gluten-free the next day. THEN... a few months later, I scarfed down a huge thick slice of homemade bread (w/ gluten) and had NO reaction whatsoever. Holy cow... I spent days thinking about all the cool things I could "cheat" with... maybe once a month or something like that. I didn't do it. Fast forward several years and an accidental glutening produced some not-so-nice symptoms. The last accidental glutening was so horrible I'll never forget it!

Share this post


Link to post
Share on other sites

Not all people with celiac disease get the breakthrough diarrhea and glutening symptoms.  Some people don't develop them until long after they heal, and others like me have no conclusive reaction, or mixed reactions.  

 

Because the entire diagnostic process wasn't completed, it may be something that can be re visited in the future to verify the diagnosis of Celiac disease is correct.  Of course, if you didn't want to put him through an endoscopy then, you may not want to do it with a gluten challenge now.  Maybe by the time he is in his twenties, there will be some more advances in medical science that will make diagnosis easier.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...