Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Ugh--doctors!


skyengabbie

Recommended Posts

skyengabbie Newbie

Sorry to rant being so new to the board and all, but UGH!! I called my PCP yesterday morning to request some blood work and he has yet to call back :( I called again today and was told he would call back between 12-8 p.m. and I never recieved a call. Did any of you have a problem with your doctors and them not calling back?? I just feel especially anxious because I have an Infectious Disease Appt. for my 15 month old in a week and I would hate to put her through more unneccessary tests if at all possible:( Again sorry to rant, I am just frustrated <_< Thanks for listening

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
Sorry to rant being so new to the board and all, but UGH!! I called my PCP yesterday morning to request some blood work and he has yet to call back :( I called again today and was told he would call back between 12-8 p.m. and I never recieved a call. Did any of you have a problem with your doctors and them not calling back?? I just feel especially anxious because I have an Infectious Disease Appt. for my 15 month old in a week and I would hate to put her through more unneccessary tests if at all possible:( Again sorry to rant, I am just frustrated <_< Thanks for listening

<{POST_SNAPBACK}>

Ranting is fine here, esp when it comes to the medical community. I'm sure on the average the medical community is caring and professional, it's just that this is a field where a slip up can be fatal!! It's frustrating I know. I guess call them back and ask why your messages aren't being written down and acted on. I've had to deal with insurances over the phone for years - You learn to keep a log on who you spoke with and when and what was said.

Link to comment
Share on other sites
Rusla Enthusiast
Sorry to rant being so new to the board and all, but UGH!! I called my PCP yesterday morning to request some blood work and he has yet to call back :( I called again today and was told he would call back between 12-8 p.m. and I never recieved a call. Did any of you have a problem with your doctors and them not calling back?? I just feel especially anxious because I have an Infectious Disease Appt. for my 15 month old in a week and I would hate to put her through more unneccessary tests if at all possible:( Again sorry to rant, I am just frustrated <_< Thanks for listening

<{POST_SNAPBACK}>

Oh believe me I have had problems with doctors. Do I tell you about the one who let me almost die from pernicious anemia because he was too lazy to do a blood test and tried to tell me I had the flu for a year or menopause and it was neighter. Or about the GI who only wanted to do a blood marrow test, wouldn't tell me anything and hated that I did research but had me black balled by all the GI's in the city before he moved to the US. About all the doctors who would only look at my TSH on my thyroid not the nodules or the 3.5 times more antibodies than what you should have for Hasimoto's. The fact none of them would do anything about either thing because they want them to get bigger instead of trying to shrink them. That they tell me now because now I have gone through menopause that it is all in my head and it is just menopause. Not one of these doctors would talk to me or return calls.

So, rant on.

Rusla

Link to comment
Share on other sites
darlindeb25 Collaborator

I ran into this problem 24 yrs ago when I was so sick and the doctor told me I had the flu. Well, I got pregnant and found out it was the birth control pills making me sick and that doctor told me that the pill is 99% safe and I just had to be the 1%! Of course then, doctors never looked for celiacs. Might I add that my daughter, that pregnancy, was born with a birth defect also and I am sure it was because of my celiacs. Keep on the doctors back--keep calling or find a new doctor. I just had an appt with a doctor I really liked and he still failed me. He did a blood test--said he would test for everything--he didnt test for the genes--he didnt have me fast--had a nurse call and tell me my cholesterol is too high, to watch my diet and come back for a repeat bloodwork up in 6 weeks. That wasnt a true test for chol without a fasting--I am very disappointed in him. I will return in 6 weeks and I will tell him what test I want ran. Doctors!!!!! And------I work for a doctor--he is an optomitrist, but when I tell a patient he will call back, he does. To bad he isnt a regular doctor--his patients love him. Deb

Link to comment
Share on other sites
Rusla Enthusiast
I ran into this problem 24 yrs ago when I was so sick and the doctor told me I had the flu.  Well, I got pregnant and found out it was the birth control pills making me sick and that doctor told me that the pill is 99% safe and I just had to be the 1%!  Of course then, doctors never looked for celiacs.  Might I add that my daughter, that pregnancy, was born with a birth defect also and I am sure it was because of my celiacs.  Keep on the doctors back--keep calling or find a new doctor.  I just had an appt with a doctor I really liked and he still failed me.  He did a blood test--said he would test for everything--he didnt test for the genes--he didnt have me fast--had a nurse call and tell me my cholesterol is too high, to watch my diet and come back for a repeat bloodwork up in 6 weeks.  That wasnt a true test for chol without a fasting--I am very disappointed in him.  I will return in 6 weeks and I will tell him what test I want ran.  Doctors!!!!!    And------I work for a doctor--he is an optomitrist, but when I tell a patient he will call back, he does.  To bad he isnt a regular doctor--his patients love him.  Deb

<{POST_SNAPBACK}>

The unfortunate part is that this doctor dilema seems to be universal in North America. My family doctor is Hindu, he was the one to discover my pernicious anemia when lazy bugger went on holidays. I got my celiac disease test results back which they said they consider non celiac disease but very high gluten sensitivity. My doctor who is not fond of many doctors because he said they never look at the big picture has recomended I go gluten-free for three months and then he wants me to go back on gluten for 3 days and take the test again. He was the only one who never doubted me on the thyroid when the others said it was in my mind and wouldn't even see me when the nodules had appeared they declared they were too busy or didn't see "this type of patient." I wanted to know what type of patient was I, seeing as how they hadn't seen me and did not know me. I go to my family doctor and tell him what kind of tests we should do and he does them. I am so pissed off at specialists and their arrogant ways, they make me ill. I figure maybe I should start goingto a veterinarian.

Rusla

Link to comment
Share on other sites
debbiewil Rookie

Rusla,

I agree with you about the veterinarian! :) My cats go to a clinic with multiple doctors - not one has ever not taken the time to do a thorough evaluation, explain to me any problems, medicine, possible side effects of medicine, etc. I don't get one tenth of the attention from my doctors that my cats get at the vets. I've told a couple of the vets that if they ever start treating the human animal, I'm their first patient!

Debbie

Link to comment
Share on other sites
skyengabbie Newbie

Thanks for listening, I am sorry to hear that many of you have had such bad experiences, I wish it were different in the medical community :( I went ahead and called this morning and the nurse called me back within 20 minutes, apparently the doctor put in the order on Tuesday and the nurse was supposed to call and advise me that I could go in and get my blood drawn-UHG!! Oh well, I went in today and had blood work done and am hoping to know the results within 2 days!! I asked what tests the doctor orderd and she said a Celiac Panel ( not sure what that all includes???) But am hoping it will provide some much needed answers for me and then for my daughter.

Thanks again for listening :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



floridanative Community Regular

[i asked what tests the doctor orderd and she said a Celiac Panel ( not sure what that all includes???) But am hoping it will provide some much needed answers for me and then for my daughter.

Thanks again for listening :)

<{POST_SNAPBACK}>

Link to comment
Share on other sites
Rusla Enthusiast
Rusla,

I agree with you about the veterinarian! :) My cats go to a clinic with multiple doctors - not one has ever not taken the time to do a thorough evaluation, explain to me any problems, medicine, possible side effects of medicine, etc. I don't get one tenth of the attention from my doctors that my cats get at the vets. I've told a couple of the vets that if they ever start treating the human animal, I'm their first patient!

Debbie

<{POST_SNAPBACK}>

I told my vets the same thing but I made a stipulation, they may not take my temperature the way they take the cats.

Link to comment
Share on other sites
Rusla Enthusiast
Thanks for listening, I am sorry to hear that many of you have had such bad experiences, I wish it were different in the medical community :( I went ahead and called this morning and the nurse called me back within 20 minutes, apparently the doctor put in the order on Tuesday and the nurse was supposed to call and advise me that I could go in and get my blood drawn-UHG!! Oh well, I went in today and had blood work done and am hoping to know the results within 2 days!! I asked what tests the doctor orderd and she said a Celiac Panel ( not sure what that all includes???) But am hoping it will provide some much needed answers for me and then for my daughter.

Thanks again for listening :)

<{POST_SNAPBACK}>

Best of luck. In some way it is a let down being told you are high gluten but not celieac but retest in three months, which I was told today. I feared I did not have enough gluten in my ssystem when the test was done. I am going gluten-free after this weekend. I have events I have to be at this weekend and it is too late to get the menu changed. So I will live with it this weekend and then I will quit gluten until it is time to test again.

We can all understand your frustration with the medical profession.

Link to comment
Share on other sites
  • 2 weeks later...
floridanative Community Regular

Well all I ever do when commenting on doctors is complain because I usually don't have anything nice to say about my experiences with them. With my first and former GI doc, I had to leave a message with his nurse if I had a question and I only did so twice in two months. Well she took 3 and 6 week days to get back to me respectively. She was also the rudest person I've run into in the medical profession. Okay that's negative - I apologize.

So when I switched to another practice this week, my doctors nurse was out sick so someone else was filling in. She was SOOOO nice that I was disappointed when she told me that the reg. nurse was out. Well I don't think much of the doc but he knows how to test for celiac disease which is what I need. So I called today to see when my celiac disease panel blood tests results will be in. Within TWO hours, I got a call from the reg. nurse (that I didn't meet) and she said she'd have them Monday or Tues. at the latest. She even told me to call back Monday so she'd remember to check for them for me. Now that's not normal to me but it should be. I was so happy just by someone calling me back on the same day! :rolleyes:

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...