Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Feel Like It's Always Something...so Frustrated!

icelandgirl

Recommended Posts

icelandgirl Proficient
icelandgirl
Posted

I am feeling so frustrated that I just want to cry. It really feels like it's always something and all I want is to feel good and be healthy so I can take care of my kids.

I've been gluten free since diagnosis on January 23rd. I am only eating whole foods that I prepare and I'm starting to feel like I'm getting the hang of this thing.

3 weeks ago I got a uti. Ugh. The doctor put me on an antibiotic...it cleared up. But 5 days later I was hit with the worst case of D since diagnosis. Watery...10 -20 times a day. Felt so awful. On the 4th day I went to see my doctor because I was getting dehydration and I was scared about c. Diff. He had me do stool samples and as of yesterday I ever heard nothing on those. The D went away thankfully...but 2 nights ago the uti symptoms start again. I spent all of yesterday drinking water and cranberry juice...hoping somehow to flush it out. But after waking up many times last night in pain I went in this morning and sure enough...I have another one. She put me on macrobid. Also...she's sending it off to be cultured to see what it is.

Anyway...I'm so tired of feeling bad! I can't believe I'm on antibiotics for the 3rd time this year...I had to take them in January for h.Pylori. I'm really worried about what they will do to my poor gut and if I'm ever going to get to a point where I don't have D for a month...feel good for a month.

Thanks for letting me vent. Any suggestions are always appreciated. Or feel free to share your own frustrations.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beth01 Enthusiast
beth01
Posted

Talk to the doctor and ask what they can do to get your normal bacteria level up.  All your healthy bacteria are kaput from the antibiotics.  Are you taking probiotics?  If not, I would get a good one and take it.  You need to find a balance for your normal flora.  The second UTI might have to do with the large amounts of diarrhea.  Things can get messy down there if ya know what I am saying.

icelandgirl Proficient
icelandgirl
Posted
  • Author

Talk to the doctor and ask what they can do to get your normal bacteria level up.  All your healthy bacteria are kaput from the antibiotics.  Are you taking probiotics?  If not, I would get a good one and take it.  You need to find a balance for your normal flora.  The second UTI might have to do with the large amounts of diarrhea.  Things can get messy down there if ya know what I am saying.

Thanks Beth. I take a probiotic twice a day. I agree about them being kaput. I really don't want to be on an antibiotic again. I'm 42 and with the constant issues I'm starting to feel 82. Sigh...

kareng Grand Master
kareng
Posted

Sometimes the standard dose doesn't get rid of the UTI. It's good that they are culturing it. That way you can take what you need to wipe it out and not have to do this again in a month! Hope you feel better soon.

icelandgirl Proficient
icelandgirl
Posted
  • Author

Sometimes the standard dose doesn't get rid of the UTI. It's good that they are culturing it. That way you can take what you need to wipe it out and not have to do this again in a month! Hope you feel better soon.

Awww...thanks kareng. I would like to not have this happen ever again! Have you had this issue? Anything I can do besides probiotics to help myself?

kareng Grand Master
kareng
Posted

Awww...thanks kareng. I would like to not have this happen ever again! Have you had this issue? Anything I can do besides probiotics to help myself?

My mother had this. Every couple of months - another UTI. Finally landed her in the hospital - UTIs in the elderly can lead to some other things. Then they cultured it and she was able to get the right meds to wipe it out! It didn't come back!

I think things like yogurt and other probiotics are all you can do. I don't think they are supposed to be in the stomach with the antibiotic? Seems they might mess it up. I don't have any link for that, just makes sense to me.

Hopefully, this will take care of it .

kareng Grand Master
kareng
Posted

Oh! THere is that stuff you can get to make it feel better. Azo? It was gluten-free last time I checked. Doesn't cure it but makes you feel better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted
  • Author

Oh! THere is that stuff you can get to make it feel better. Azo? It was gluten-free last time I checked. Doesn't cure it but makes you feel better.

I got some yesterday when I was thinking maybe I could muscle through it somehow. Flush it out with water...didn't work...just got no sleep last night.
kareng Grand Master
kareng
Posted

I got some yesterday when I was thinking maybe I could muscle through it somehow. Flush it out with water...didn't work...just got no sleep last night.

There is one for the pain and one to try to prevent.

icelandgirl Proficient
icelandgirl
Posted
  • Author

There is one for the pain and one to try to prevent.

I didn't realize that. I got the one for pain. I'm going to have to check into the other one. Thanks!
beth01 Enthusiast
beth01
Posted

Walmart or Walgreen's can't remember which, sells over the counter pain relief for UTI's and cranberry pills to take to help prevent them. I believe they are the AZO brand.

icelandgirl Proficient
icelandgirl
Posted
  • Author

Walmart or Walgreen's can't remember which, sells over the counter pain relief for UTI's and cranberry pills to take to help prevent them. I believe they are the AZO brand.

I have the ones for pain and they do seem to be helping. Will be taking my second antibiotic with dinner. Already feel nauseous.
SMRI Collaborator
SMRI
Posted

Antibiotics can do that to you as well so the combination might just be overload for you!!  It sounds like whatever antibiotic they prescribed didn't get the bacteria the first go-round so the culture is good so they can get you on the right medication.  My daughter has been on I don't know how many antibiotics and it helps her to take them with yogurt.  I hope you feel better soon!!

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thanks smri...I really hope this one does the trick. It's making me really nauseous though. My kids start school 2 weeks from today and it's another day of mom feeling bad.

Thanks for the yogurt tip...I will try that!

kareng Grand Master
kareng
Posted

Thanks smri...I really hope this one does the trick. It's making me really nauseous though. My kids start school 2 weeks from today and it's another day of mom feeling bad.

Thanks for the yogurt tip...I will try that!

Open Original Shared Link

I have always heard you shouldn't take yogurt with the antibiotic for various reasons. Maybe eat something other than a dairy product?

LauraTX Rising Star
LauraTX
Posted

Yes, there are many antibiotics that do not absorb well around dairy.  Call your pharmacist and ask first.

icelandgirl Proficient
icelandgirl
Posted
  • Author

Open Original Shared Link

I have always heard you shouldn't take yogurt with the antibiotic for various reasons. Maybe eat something other than a dairy product?

Oh interesting. Thanks for that. I've taken 3 of the pills so far...11 to go. I really don't feel any better. Anyone with experience in this know how long it usually takes? This is the pits.
SMRI Collaborator
SMRI
Posted

Open Original Shared Link

I have always heard you shouldn't take yogurt with the antibiotic for various reasons. Maybe eat something other than a dairy product?

 

That is for 2 specific classes of antibiotics.  If she is not one one of these, yogurt is fine and recommended.  She can call her pharmacist to double check.

icelandgirl Proficient
icelandgirl
Posted
  • Author

Got a call from my Dr's office. The cultures came back negative. I don't have a uti. WTH. I'm still peeing all the time and have all of this pelvic pressure. I go in on Wednesday for a pelvic exam and ultrasound. I'm so tired of all of this. It really feels like there is always something wrong. Just want to cry.

nvsmom Community Regular
nvsmom
Posted

(((HUGS)))

icelandgirl Proficient
icelandgirl
Posted
  • Author

(((HUGS)))

Thanks Nicole...really needed that. Feeling scared.
beth01 Enthusiast
beth01
Posted

I have had this same sort of problems.  Been through multiple bladder scans and bladder washes trying to figure it out.  They never seem to figure what causes it and then it runs it's course.  I usually keep up with the over the counter pain meds for UTIs and drink tons of water.  I hope you figure it out.  It really is a pain thinking you have a UTI all the time.

 

have you been glutened recently?  I seem to get this problem after a glutening.

icelandgirl Proficient
icelandgirl
Posted
  • Author

I have had this same sort of problems.  Been through multiple bladder scans and bladder washes trying to figure it out.  They never seem to figure what causes it and then it runs it's course.  I usually keep up with the over the counter pain meds for UTIs and drink tons of water.  I hope you figure it out.  It really is a pain thinking you have a UTI all the time.

 

have you been glutened recently?  I seem to get this problem after a glutening.

Thanks Beth. That sounds annoying. I've been feeling like this since last Wednesday. How long do yours usually last? The nurse I talked to mentioned ultrasound to look for ovarian cysts and uterine fibroids. I had uterine polyps removed in February along with my gallbladder. This isn't fun ya know? When do we get to feel good? Speaking of...how are you feeling? I know that you were having a rough time last week.

Oh...and I don't think I've been glutened...just feel like a walking symptom all the time.

SMRI Collaborator
SMRI
Posted

Got a call from my Dr's office. The cultures came back negative. I don't have a uti. WTH. I'm still peeing all the time and have all of this pelvic pressure. I go in on Wednesday for a pelvic exam and ultrasound. I'm so tired of all of this. It really feels like there is always something wrong. Just want to cry.

 

Any chance you are pregnant?

icelandgirl Proficient
icelandgirl
Posted
  • Author

Any chance you are pregnant?

Gosh...I don't think so. Had my period 2 weeks ago. Also...my hubby had a vasectomy after my little one was born.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat. In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue. A wedge...
    2. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired. I haven’t been to an allergist in a few years, I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young...
    3. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply
    4. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways. I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux. Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following...
    5. trents
      - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442
    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...