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Please Help Me Understand My Test Results?

Waitingindreams

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Waitingindreams Enthusiast
Waitingindreams
Posted

Hi everyone! I got tested back in July of 2013, and I finally remembered to request a copy for my records at home. I was wondering if anyone could explain the results to me so that I could understand what I'm actually looking at. Any help would be much appreciated! (not sure how to insert an image in here, so hopefully if you copy/paste this link it will work):

 

Open Original Shared Link

 

 

 

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frieze Community Regular
frieze
Posted

looks positive to me, did they f/u with a 'scope?

SMRI Collaborator
SMRI
Posted

I agree, you hit markers, you are Celiac.  Your TTIgA is very high.  What is the plan for you now?

BlessedMommy Rising Star
BlessedMommy
Posted

I agree! Definitely very strong positives on several of the tests.

Waitingindreams Enthusiast
Waitingindreams
Posted
  • Author

I have been gluten free (give or take a few mistakes) ever since this test, but I had never seen the results before for myself. When looking at the numbers, I really have no idea what I'm actually looking at. I was not given any follow up tests, no biopsy or anything else. 4 days after I got the bloodwork done my doctor called me to tell me I had celiac disease, and I started the gluten free diet. I was just wondering if anyone could help me decipher them so that I understand exactly what those numbers mean! I wanted to get  my blood levels re-tested after one year, but now I'm thinking maybe I'll do every 2 years instead. 

BlessedMommy Rising Star
BlessedMommy
Posted

Your Ttg was sky high! You definitely should get levels rechecked as time goes on.

SMRI Collaborator
SMRI
Posted

I have been gluten free (give or take a few mistakes) ever since this test, but I had never seen the results before for myself. When looking at the numbers, I really have no idea what I'm actually looking at. I was not given any follow up tests, no biopsy or anything else. 4 days after I got the bloodwork done my doctor called me to tell me I had celiac disease, and I started the gluten free diet. I was just wondering if anyone could help me decipher them so that I understand exactly what those numbers mean! I wanted to get  my blood levels re-tested after one year, but now I'm thinking maybe I'll do every 2 years instead. 

 

Anything over 20 is a strong positive, you were over 100, which is probably why they did not do the scope. My TT IgA came back at 35 and my TT IgG was at 65 for reference.  I guess it depends on what your doctor recommends but I know I have to go back in 3 months for follow-up testing and then if the numbers look good then, follow-up at a year.  If you feel like you need to, check with your insurance to see if they cover meeting with a dietitian and get some eating suggestions/help there.  If you are ok figuring out the gluten-free stuff on your own, then just read labels and avoid gluten.

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Waitingindreams Enthusiast
Waitingindreams
Posted
  • Author

I wanted to get my levels re-tested at 6 months or a year, but my doctor told me I didn't need to. (I still do not have a GI yet, that was my primary care physician) I plan on finding one soon, it was just difficult with my work schedule. 

 

The gluten free I don't have an issue with - it's everything else! Right now, the candidiasis is my biggest problem. It seems like I can't eat anything. I'm eating only low histamine level vegetables for the most part...just drinking water, etc etc. A dietitian would probably be helpful, yes. I asked my other doctor (naturopath - I see an MD and naturopath) if he thought the GAPS diet was worth trying...he said not in his experience. Would love to go full paleo after I lower my histamine levels. I miss dairy though :'(

GottaSki Mentor
GottaSki
Posted

I wanted to get my levels re-tested at 6 months or a year, but my doctor told me I didn't need to. (I still do not have a GI yet, that was my primary care physician) I plan on finding one soon, it was just difficult with my work schedule. 

 

The gluten free I don't have an issue with - it's everything else! Right now, the candidiasis is my biggest problem. It seems like I can't eat anything. I'm eating only low histamine level vegetables for the most part...just drinking water, etc etc. A dietitian would probably be helpful, yes. I asked my other doctor (naturopath - I see an MD and naturopath) if he thought the GAPS diet was worth trying...he said not in his experience. Would love to go full paleo after I lower my histamine levels. I miss dairy though :'(

You do indeed need follow up antibody tests. A complete panel should be run at 3-6 month intervals until all are in normal range, then annually thereafter.

If they haven't run nutrients on you...you should request those immediately. Many of us need specific supplementation until we are properly absorbing nutrients again.

I failed GAPS because of histamine intolerance. If you already have trouble with histamine you likely will not tolerate all the fermented items on GAPS...but bone broth is excellent for a damaged digestive tract.

Waitingindreams Enthusiast
Waitingindreams
Posted
  • Author

Thank you for your input! I really wanted to get the levels re-done, but my primary care doctor refused, and I didn't have a GI - and my job had limited sick time hours, so I had to be careful about how much time i asked for off. It was unfortunate (but not at all surprising, of course) that I found no GI doctors in my area with hours after 5/weekend appointments. I currently don't have health insurance, but once everything is situated again I am going to look for a reputable GI. Also, I'm not sure what you mean by nutrients. I did ask my doctor to check me for vitamin deficiencies, and he found I was low in Iron and folate, is there anything specific I should ask for? 

 

I was planning on trying GAPS after I was on the low histamine diet for awhile. I don't know how well it works. I am curious to try bone broth...I found a site online that sells their own and I was thinking of ordering from them rather than making my own. 

 

Open Original Shared Link

 

I am not a vegetarian - I eat grilled chicken, but the thought of going to a butcher and buying the whole bones and then trying to cook them and take out the marrow and everything else involved in that process completely skeeves me out, lol. It looks like their bone broth would be just as good...but I wouldn't even bother to try it at all until my histamine levels are down. I have not had any medical tests to confirm anything with the histamine, I am just going by my reactions to food with high histamine levels. No more tomatoes for me :'( If bone broth works that well, then I might just avoid the other steps and just have bone broth occasionally with some vegetables. A lot of the other steps on the diet looked kind of weird (adding raw egg to bone broth after awhile? Yikes!) 

GottaSki Mentor
GottaSki
Posted

Gotcha.

My celiac doctor ran these at Dx and now my primary orders them annually:

B1 B2 B6 B12 D K iron ferritin copper and zinc.

Also a CMP (comprehensive Metobolic panel) has additional vit&minerals.

I rarely make full bone broth anymore...I just simmer whatever bones I have for a really long time....I've always made turkey and chicken soup and now make broth regularly as I was reacting to all the brands of store bought broth...they don't have gluten, but do have other things that are an issue for me.

I never made it to the raw egg portion of gaps...failed within the first ten days...back then I didn't understand I had histamine or mast cell issues, but made sense in hindsight.

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