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fran641

Anyone Else With Lymphoma?

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I was DX with celiac in 2009 (undiagnosed for 30 yrs) then in 2010 fNHL was found in colon during colonoscopy. PET scan showed it had spread to most of my body from ribs down. In 2011 After chemo and 3 month follow up testing it had returned in more aggressive form of DLBC lymphoma In my pancreas. Chemo again and radiation beat it back. I was wondering if anyone else around these boards had similar problems.


Fran

Diagnosed Dec. 2008

Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010

Large B cell lymphoma 2011

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Hi Fran and Welcome!

 

It seems to me that the longer one goes un-diagnosed, the more damage does not reverse and the body does not completely recover.  I have cancer also, Metastatic Melanoma, diagnosed just 5 months after Celiac Diagnosis and also 4 AI Diseases diagnosed before Celiac diagnosis and 1 more diagnosed after Celiac and Cancer.  Things seem to keep going downhill at this point.  My AI system seems to always be flaring now.  I have Angina and COPD, arteries are thickening and my quality of life has gone to s$#&.  I also have granulomas growing on internal organs and more growing faster on my thyroid.  I've had surgeries and immunotherapy treatments with my Cancer and just can't seem to get to a point where I feel good and have kinda given up ever feeling good again.  When our health goes its gets depressing and exhausting and its a whole other fight to stay positive.  I have had to give up a lot of activities but have  picked up a few, like painting that are not so exerting.  

 

Just keep doing your best  :D , that's all we can do.

 

Wishing you well,  Colleen


HAVE A SUPER SHINY DAY

 

LTES gem 2014


*Multiple AI Diseases

*General Insanity


"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

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Fran and Colleen are the type of people who inspire so much inspiration and courage when we hear of your struggles. I went a long time undiagnosed also and ended up with 4 AI diseases but they pale in comparison with what you both deal with on a daily basis. Just keep on swinging that bat and don't give in! I hope 2015 is an uplifting and healthier year for you both!

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Fran and Colleen are the type of people who inspire so much inspiration and courage when we hear of your struggles. I went a long time undiagnosed also and ended up with 4 AI diseases but they pale in comparison with what you both deal with on a daily basis. Just keep on swinging that bat and don't give in! I hope 2015 is an uplifting and healthier year for you both!

 

2015 is already better.  First full day of vacation in Florida starts today  B)

 

We all have our battles and all do our best.  I always told my kids....Just Keep Swimming!!!!  :D

 

Colleen


HAVE A SUPER SHINY DAY

 

LTES gem 2014


*Multiple AI Diseases

*General Insanity


"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

smiley-face-making-cocktail.gif

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2015 is already better.  First full day of vacation in Florida starts today  B)

 

We all have our battles and all do our best.  I always told my kids....Just Keep Swimming!!!!  :D

 

Colleen

Would you, by chance, be planning a visit to that rabble rouser Irish on your Florida vacation?  :P   I hope you have a wonderful time, whatever you do! As the Rolling Stones say....get your ya-ya's out!!!!!!!  :D

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Would you, by chance, be planning a visit to that rabble rouser Irish on your Florida vacation?  :P   I hope you have a wonderful time, whatever you do! As the Rolling Stones say....get your ya-ya's out!!!!!!!  :D

 

She's on my list !!!  So excied  :D .  This is the good stuff in life that makes the rest tolerable.  I walked 2 miles today, had a long break between the two and 1 mile was more of a stroll, but it felt great !!!  Ya-Ya's  ;)


HAVE A SUPER SHINY DAY

 

LTES gem 2014


*Multiple AI Diseases

*General Insanity


"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

smiley-face-making-cocktail.gif

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She's on my list !!!  So excied  :D .  This is the good stuff in life that makes the rest tolerable.  I walked 2 miles today, had a long break between the two and 1 mile was more of a stroll, but it felt great !!!  Ya-Ya's  ;)

You two stay out of trouble, but of course, we will want details!  ;)  This trip will do you a world of good so enjoy every minute of it.

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Colleen my dance with C pales in comparison with your on going fight. It is hard to keep that smile going at times. Glad you are going on vacation and hope you have a blast even if it is a slow stroll. Thanks everyone for your kind words. All of you have to keep putting one foot in front of the other to get to the other side when dealing with celiac and all is baggage.


Fran

Diagnosed Dec. 2008

Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010

Large B cell lymphoma 2011

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