Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Anyone Else With Lymphoma?

fran641

By fran641
in Related Issues & Disorders

Recommended Posts

fran641 Contributor
fran641
Posted

I was DX with celiac in 2009 (undiagnosed for 30 yrs) then in 2010 fNHL was found in colon during colonoscopy. PET scan showed it had spread to most of my body from ribs down. In 2011 After chemo and 3 month follow up testing it had returned in more aggressive form of DLBC lymphoma In my pancreas. Chemo again and radiation beat it back. I was wondering if anyone else around these boards had similar problems.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Glad you are giving it a beating, Fran.  :) Best wishes.

Link to comment
Share on other sites
GF Lover Rising Star
GF Lover
Posted

Hi Fran and Welcome!

 

It seems to me that the longer one goes un-diagnosed, the more damage does not reverse and the body does not completely recover.  I have cancer also, Metastatic Melanoma, diagnosed just 5 months after Celiac Diagnosis and also 4 AI Diseases diagnosed before Celiac diagnosis and 1 more diagnosed after Celiac and Cancer.  Things seem to keep going downhill at this point.  My AI system seems to always be flaring now.  I have Angina and COPD, arteries are thickening and my quality of life has gone to s$#&.  I also have granulomas growing on internal organs and more growing faster on my thyroid.  I've had surgeries and immunotherapy treatments with my Cancer and just can't seem to get to a point where I feel good and have kinda given up ever feeling good again.  When our health goes its gets depressing and exhausting and its a whole other fight to stay positive.  I have had to give up a lot of activities but have  picked up a few, like painting that are not so exerting.  

 

Just keep doing your best  :D , that's all we can do.

 

Wishing you well,  Colleen

Link to comment
Share on other sites
icelandgirl Proficient
icelandgirl
Posted

((((Hugs)))) Fran and Colleen.

Link to comment
Share on other sites
Gemini Experienced
Gemini
Posted

Fran and Colleen are the type of people who inspire so much inspiration and courage when we hear of your struggles. I went a long time undiagnosed also and ended up with 4 AI diseases but they pale in comparison with what you both deal with on a daily basis. Just keep on swinging that bat and don't give in! I hope 2015 is an uplifting and healthier year for you both!

Link to comment
Share on other sites
nvsmom Community Regular
nvsmom
Posted

Well said.  :)

Link to comment
Share on other sites
GF Lover Rising Star
GF Lover
Posted

Fran and Colleen are the type of people who inspire so much inspiration and courage when we hear of your struggles. I went a long time undiagnosed also and ended up with 4 AI diseases but they pale in comparison with what you both deal with on a daily basis. Just keep on swinging that bat and don't give in! I hope 2015 is an uplifting and healthier year for you both!

 

2015 is already better.  First full day of vacation in Florida starts today  B)

 

We all have our battles and all do our best.  I always told my kids....Just Keep Swimming!!!!  :D

 

Colleen

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

2015 is already better.  First full day of vacation in Florida starts today  B)

 

We all have our battles and all do our best.  I always told my kids....Just Keep Swimming!!!!  :D

 

Colleen

Would you, by chance, be planning a visit to that rabble rouser Irish on your Florida vacation?  :P   I hope you have a wonderful time, whatever you do! As the Rolling Stones say....get your ya-ya's out!!!!!!!  :D

Link to comment
Share on other sites
GF Lover Rising Star
GF Lover
Posted

Would you, by chance, be planning a visit to that rabble rouser Irish on your Florida vacation?  :P   I hope you have a wonderful time, whatever you do! As the Rolling Stones say....get your ya-ya's out!!!!!!!  :D

 

She's on my list !!!  So excied  :D .  This is the good stuff in life that makes the rest tolerable.  I walked 2 miles today, had a long break between the two and 1 mile was more of a stroll, but it felt great !!!  Ya-Ya's  ;)

Link to comment
Share on other sites
Gemini Experienced
Gemini
Posted

She's on my list !!!  So excied  :D .  This is the good stuff in life that makes the rest tolerable.  I walked 2 miles today, had a long break between the two and 1 mile was more of a stroll, but it felt great !!!  Ya-Ya's  ;)

You two stay out of trouble, but of course, we will want details!  ;)  This trip will do you a world of good so enjoy every minute of it.

Link to comment
Share on other sites
fran641 Contributor
fran641
  • Author
Posted

Colleen my dance with C pales in comparison with your on going fight. It is hard to keep that smile going at times. Glad you are going on vacation and hope you have a blast even if it is a slow stroll. Thanks everyone for your kind words. All of you have to keep putting one foot in front of the other to get to the other side when dealing with celiac and all is baggage.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,173
    • Most Online (within 30 mins)
      7,748
    Art34
    Newest Member
    Art34
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MMH13
      Not Sure What to Think

      By MMH13 · Posted

      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      Sore muscles

      By Eldene · Posted

      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      Trader Joe's grocery prodcuts

      By LovintheGFlife · Posted

      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      Gluten challenge

      By Beverley Ann Johnson · Posted

      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
    • Denise I
      Celiac Disease Dietician

      By Denise I · Posted

      I did reach out to them on April 4th and left a message. I will try calling again. Thank you!
×
×
  • Create New...