Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

A Little Update

beth01

By beth01
in Coping with Celiac Disease

Recommended Posts

beth01 Enthusiast
beth01
Posted

After searching and searching for a possible source of cc and not finding anything, I switched back to my original thyroid medication about a week ago.  I woke up this morning feeling GREAT!  Crossing my fingers hoping it isn't a fluke. 

 

I really wish they would quit putting allergens in medications, or at least do more extensive testing on each lot to make sure they are putting out a gluten free product.  It's frustrating to be told a product is gluten free to find out the hard way it isn't. 

 

Now, hopefully my levels stay stable.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

Which thyroid hormone brand are you using?  I use Nature-throid as I really need a T3/T4 combo and have never had any troubles from it. 

 

Glad to hear you are feeling GREAT again!  :)

StephanieL Enthusiast
StephanieL
Posted

I have mentioned this before, but with cheaper meds it may be useful to buy a full, unopened bottle.  At the pharmacy they use the same trays for counting all the meds they do. Many times pills get broken/crushed in the shipping process and leave pill dust all over including the counting trays.  So even if a med is safe, depending on a persons sensitivity, they could be x-coned on the sorting tray. On something expensive, ask them to clean the tray and spatula and get them from a new unopened bottle.

cyclinglady Grand Master
cyclinglady
Posted

I can not believe that you have had to suffer for so long! It makes me ! Glad you are feeling better!

Oh, I use Armour.

cyclinglady Grand Master
cyclinglady
Posted

I have mentioned this before, but with cheaper meds it may be useful to buy a full, unopened bottle.  At the pharmacy they use the same trays for counting all the meds they do. Many times pills get broken/crushed in the shipping process and leave pill dust all over including the counting trays.  So even if a med is safe, depending on a persons sensitivity, they could be x-coned on the sorting tray. On something expensive, ask them to clean the tray and spatula and get them from a new unopened bottle.

Steph!

You are so clever! I buy in bulk, so I typically get the original bottle. Will be sure to try to remember this when I am at the pharmacy.

icelandgirl Proficient
icelandgirl
Posted

Congrats Beth! What were you on and what are you on now? I want to feel great too!

mamaw Community Regular
mamaw
Posted

Glad  you are doing better.....I love nature-throid....   

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Congrats Beth! What were you on and what are you on now? I want to feel great too!

I have used Armour Thyroid for 18 years. I have never used anything else.

My thyroid has wacked out over the years (hyper to hypo swings), so just taking hormone replacement does not insure that you will never have a flare-up.

icelandgirl Proficient
icelandgirl
Posted

I have used Armour Thyroid for 18 years. I have never used anything else.

My thyroid has wacked out over the years (hyper to hypo swings), so just taking hormone replacement does not insure that you will never have a flare-up.

Hi cyclinglady...I know. I've been swinging hyper to very hypo over the past few months. It stinks. But when someone says they feel great I get really excited and say I want some of that too!
cyclinglady Grand Master
cyclinglady
Posted

Hi cyclinglady...I know. I've been swinging hyper to very hypo over the past few months. It stinks. But when someone says they feel great I get really excited and say I want some of that too!

Yeah, I hear you!

cyclinglady Grand Master
cyclinglady
Posted

This is off topic, but I put a little "angry" face on one of my replies and I do not see it. I think it is an iPad issue. I guess I have to keep track of what device I am on. Otherwise, my posting does not make sense!

StephanieL Enthusiast
StephanieL
Posted

;)  I only know these things because I worked in one for many years!  Our brand of generic synthroid is $12/bottle of 100 pills.  Kiddo takes 1/2 a pill a day so it lasts forever! lol

 

 

I would LOVE to try the natural thyroid stuff (his goiter has gotten bigger in the last year :( )I just am hesitant to use it on a kid :(

GF Lover Rising Star
GF Lover
Posted

Good to hear Beth.  Every little victory feels great  :D

 

Colleen

beth01 Enthusiast
beth01
Posted
  • Author

Thanks you guys.  Day 2 and I'm feeling good so far.  It was so nice here yesterday, the kids and I walked into town and back, about two miles, something I couldn't have done a week ago.  It felt really good.  Hopefully I can keep it up, I have a lot of muscle mass to try and get back after all the weight I have lost.  My insurance won't pay for anymore physical therapy and I really can't afford to pay it out of pocket.

 

I will look into getting full bottles of my meds, especially since the are only ten more pills than my script is written for now.  I was taking thyroxin to begin with at a dose of 200 a day which is rather high for my weight and my levels haven't been stable which they thought was due to me having some major absorption issues and they said that some people just don't do well on the generic so they switched me to the Synthroid.  I expressed my concern with the doctor about the product being gluten free so she personally called Abbott and talked to them,  They stated it's gluten free so I never questioned it.  That was over three months ago.  The weird thing is, my antibody levels really haven't changed much at all.  I did switch doctors in between having my levels drawn and the normal ranges are a little different, but the results seem pretty comparable.  It was 9 at one place with normal being <4 and then 12 at the other lab with normal being <10.  But, anywho... A week ago I switched back to the thyroxin and am feeling good, so I'm pretty sure that was my issue.  I'm still really foggy, but that isn't even bad compared to right around diagnosis lol.  Just some garbled speech and problems figuring out words.  At least I haven't called my BF by my ex-husband's name yet, so this is good.  I don't have an appointment with ENDO again until August, but I'm going to ask her if there are any other meds I might be able to take.

 

Another nice thing that has happened is I'm having a wonderful experience so far with my new doctors.  It's nice after the roller coaster ride I took with the last facility.  I have had appointments with ENDO, GI, and my new GP, but they couldn't get me into Rheumatology until October, but I'm on a call list for that if they have cancelations.  Hopefully they can get me in sooner.  I'm still having the dizziness and fainting issues, that hasn't seemed to get better, but I might have to give it some time.

 

Does anyone have any good suggestions on when to get my levels checked again?  Not sure if August would be too soon or if I should wait until October?

GF Lover Rising Star
GF Lover
Posted

I like every 2-3 months if levels seem to be in transition.  At the end of March, my TSH and T4 were normal after rising a bit and two dose changes over 6 months.  I had them drawn again 2 weeks ago, I had a feeling, and my TSH fell to 0.06 and T4 up to 2.0 so went Hyper after 35 years of Hypo.  The gland started swelling also so I had clues something was up.  

 

Again, when numbers are transitioning I like 2-3 months otherwise, Quarterly seems sufficient.

 

Colleen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat. In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue. A wedge...
    2. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired. I haven’t been to an allergist in a few years, I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young...
    3. HelloFlowersGoodbyeFlour
      - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply
    4. cristiana
      - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways. I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux. Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following...
    5. trents
      - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442
    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...