Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Jay4G

Girlfriend newly Dx'd

Rate this topic

Recommended Posts

Hi I'm Jay and my longtime girlfriend was just diagnosed with Celiac via Lab results and biopsy ( I actually have type 1 diabetes). I have a few questions about this disease and the gluten-free lifestyle.

Is this an "All or none" kind of thing? Can some people cheat occasionally and sneak a little Gluten here and there or does she have to completely cut out the Gluten, forever?

The biggest concern for her is the beer. Beer is her hobby, sounds funny and no she is not an alcoholic but she loves craft beer and beer culture. Most of our vacations are mapped out by which new brewery we will be close to. I have tried gluten-free beer before in the past and it was NOT good. Does anybody have any good hoppy beer recommendations? 

Does anybody have a favorite book on Celiac disease. I'm trying to keep things positive but as soon as you do an internet search on the topic, things get pretty scary (just like any other medical condition). 

 

Good cookbook recommendations?

Finally, what is the biggest misconception you have heard about this disease? What was the hardest thing for you to cope with?

 

Thanks,

Jay

Share this post


Link to post
Share on other sites

Welcome!  So nice that you are helping your girlfriend.

Here is a biggie: you can gluten her by kissing her after a gulp of beer or by the remenents of your sandwich.  Yep.  Your toothbrush and gluten free toothpaste will be your new protection!  Look it up, if you do not believe me!   Also look at how bars rinse their glasses....glasses should be run through dishwashers or ask for plastic or paper  cup. 

As a celiac she can NEVER consume gluten. Celiac  is not an allergy.  It is an autoimmune disorder like your diabetes.  It just happens to be the only one triggered by food -- gluten.  Gluten can set up a reaction that can last for days, weeks or months.  It turns on the autoimmune response.  Once it starts....it keeps going and doing damage until the body decides to stop. everyone has a different cut-off time.

Did you know that T-1 diabetics have a 10% chance of developing celiac disease?  Why?  They share the same genes!  Google that!  Now doctors are testing t-1s even if they are symtom free.  Goggle that.  

Go to the University of Chicago's celiac website for testing and the list of 300 symptoms and there are many documented asymptomatic patients too! 

Recipes?  Go the the library or Google.  

Hardest thing?  Not eating out.  Doable but really hard!  

Questions, ask away!  

Share this post


Link to post
Share on other sites

America's Test Kitchen put out a gluten-free cookbook a while ago. I think it's called "How Can It Be gluten-free?" Everyone here raves about it.

In the coping section on this website, pinned to the top, is a thread called "Newbie 101". Make sure both of you read that. Click on all the links provided. Take notes.

Now, the hard part - the lifestyle change. Beer is her enemy now. Sure, there are some new gluten-free beers available that are pretty good. I think there are even some dark beers. But they aren't going to taste the same. Once she's been away from regular beer for a while they will taste better to her, but she shouldn't try them right away. And it would be a good idea for you to switch to gluten-free beer too so there won't be any accidents (where she takes a sip of yours by mistake) or kissing issues.

We all had to make some heavy duty changes. Some folks here worked in bakeries or pizza joints and had to quit. Others were gourmet chefs and had to switch all of their cooking to gluten-free. I myself am a guitarist, music store owner, and teacher, who due to different health problems, can no longer play guitar. It was my LIFE, and now although I can still run the store, I can't play at all and had to turn all of my students over to other teachers.

But my Dad taught me a valuable lesson when his asthma got so bad he could no longer do a lot of the things he had always loved to do - "It frees up time to learn something new." So after the initial mourning period and adjustment, perhaps you and your girlfriend can find a new hobby that you can share together. And keep in mind, she will start feeling better and better as time goes on so any new ventures and adventures will be more fun for both of you.

Share this post


Link to post
Share on other sites

Hi Jay. It's really wonderful to see a supportive partner - that is going to be paramount to her health & sticking to the diet. You didn't ask what 1 of the most important things is but I told you anyway.:lol:

Biggest misconceptions:

Paper plates contain gluten

A tiny bit of gluten won't hurt me

I can cheat once in a while

Now for your question of what was the hardest thing to cope with....... For me, the hardest thing to cope with was all the symptoms pre diagnosis. I was on my way to dying from them. Sure, I mourned at first realizing I could never have all those "normal" foods again and I threw myself a few pity parties but then I straightened my shoulders, lifted my chin & said, "What the hell is so bad about eating whole foods?" Then I answered myself, "Not a damn thing! In fact, whole foods are Grrrrrrrrrrrrreat!"

I really have not missed anything. When what you're eating makes you so sick and you know your body is slowly dying from eating those foods --- it's a cinch to say sayonara to them with no regrets. Just my experience & my opinion.

Share this post


Link to post
Share on other sites

You can continue the beer hobby, if you make it gluten free yourself.

That being said, oh my God, if someone would just start making some good gluten free beer!!?  You'll make a fortune if you can do it!

Share this post


Link to post
Share on other sites

I really appreciate everybody's response. I have to say that I was really very ignorant to this disease before coming here. I think the biggest shocker is the kissing part. I really thought if she just limited the Gluten, everything would be fine. We are really going to have to get after it. I'm up for the challenge!

\

Share this post


Link to post
Share on other sites

Bully for you Jay!!! It won't be easy combining strict gluten free with your diabetic diet but you sound like you're willing to go the distance. We do have some diabetics on here so I'm sure they can give you some pointers on handling the requirements of both diets at one time. 

I've been thinking about how you said she loves beer & even trips & vacations were centered around brewery tours. Maybe she can switch her beer love to a wine love & pursue that. Visiting wineries and doing wine tastings??? She probably already learned everything there is to know about beer anyway. Time to learn something new.:D

Share this post


Link to post
Share on other sites

I'll drink to learning about wine!  It's gluten free!!!   (except wine coolers.  Forget the wine coolers. )

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,781
    • Most Online
      4,125

    Newest Member
    TDZ
    Joined
  • Forum Statistics

    • Total Topics
      112,056
    • Total Posts
      956,614
  • Who's Online (See full list)

  • Forum Discussions

    Hello, new here and new to the whole thing! My husband has been battling this rash and assorted digestive issues for years. He was diagnosed with contact dermatitis by the dermatologist, had some steroid injections and various creams over the last couple of years, and then in November he went to the ER and they said eczema and gave him steroid pills. This was after a huge bloom that pretty much hit him from head to toe, where it had been mostly arms and legs before. He finally concluded he
    For making oven-roasted pototoes, I cannot recommend highly enough using chicken fat, duck fat or goose fat, for those who can find or have access to these fats.  Not only are they significantly unsaturated, being almost liquid at room temperature (unlike say lard), they are surprisingly light in texture and "feel", and overall quite healthy.  I carefully skim off and save ALL the rendered fat when I make chicken soup from organic chickens, to use in later dishes. Another perfect fat for th
Oh yes, that does sound good!  I've always been fine with potatoes, but just haven't eaten them all that frequently, and usually in a recipe that specifically needed or called for them.  But for the next few months, at least, I think I'll be using them much more. Not that I want to try to subsist mostly on carbs here, but I am also going to be using more sweet pototoes, and also trying to incorporate both plantains (cooking bananas) and yuca (cassava root) into my diet as well.  Both of the
  • Blog Entries

  • ×
    ×
    • Create New...