Still Reacting To An Exposure From Last Wed?

[e&j0304]

Last wednesday I went to my friend's house to take some pictures of her newborn for her and I brought Ella to play with her other little girl who is Ella's age. The girls were playing and then it got a little quiet in the toy room so I went in there and they were eating a Nestle crunch type candy (little wrapped bars) that I assume have gluten in them since there were crispy things in it. I think she had two mini bars.

The next day she complained ALL DAY that her tummy hurt and was just not herself. She also had lots of mushy, undigested stools. The tummy complaints lasted two days and then after that she was acting extra hungry and was still kind of grumpy but said her stomach felt better. However, she continues to have really mushy, gross stools that aren't at all formed. It's not watery diarrhea, but just really loose.

Does this sound like it's still a gluten reaction or maybe just a bug? She hasn't had her reactions drag out this long in the past, but I wonder if she is just more sensitive to it now.

Also, she does not have a fever, but can a gluten reaction cause a fever? I thought I heard that once and wasn't sure if it was true.

Thanks so much for any thoughts on this.

Also, we ordered enterolab tests for Jack, so we'll have some answers for him. I'm not bothering with blood tests for him since he is so young and they didn't come back pos. for Ella when she has obvious problems with gluten. He will be on the diet regardless of the test results and I know I don't really need them, but both dh and I wanted them for peace of mind. I know it's probably a waste of money, but we feel it was well spent.

Again thanks!

Shannon

[Kasey'sMom]

Sharon,

Poor Ella, I hope she gets to feeling better soon.

My dd symptoms vary depending on how much gluten she injests. Loss stools and diarrhea at first and then constipation. Usually her symptoms start to let up a week after she's eaten gluten. I guess we're all different in how long it takes our bodies to start to recover. My dd has been gluten-free for months now and her stools are sometimes normal and then sometimes their not. Since going gluten-free, we both seem to have gotten more sensitive to smaller amounts of gluten.

I've not seen any documentation stating a connection between a fever and gluten injestion. However, when I have anaphylaxsis with any IgE reaction my temp. becomes elevated. I think it's the immune systems response to a foregin invader.

I think it's great that you're doing the gene test for Jack. As soon as we can, I want to order the gene test for dd and me. I really am curious what genes we have and maybe we can find where they came from.

[VydorScope]

My son takes around 2 weeks to totaly recover, with the worst of it being in the firs 4-6 days.

[happygirl]

I know I'm not a kid but it takes me a minimum of 3 days to feel remotely normal....and sometimes, it takes up to 2 weeks. In the cases where I get glutened twice over a couple day period (very rare, but awful!) it usually takes a lot longer to heal.

I hope that Ella continues to improve!!

[eeyor-fan]

November 17, 2005

Dear Bridget,

Thank you for contacting Nestlé. We welcome questions and comments from our consumers.

For several years now we have been following a strict labeling policy with regard to any of the "Big Eight" allergens in our foods and incoming ingredients. We have insisted that our suppliers notify us if gluten is used in any of their ingredients and yet is not declared on their labeling. So, we believe we have uncovered any potential uses of gluten – containing ingredients. Therefore, any Nestlé products will be fully labeled for any presence of gluten or gluten – containing ingredients.

Attached is the information you requested - we hope you find it helpful.

We appreciate your interest in our products and hope you'll visit our website often for latest information on Nestlé products and promotions.

Sincerely,

Tara L Burney

Consumer Response Representative

Ref: N13495506

Nestlé Confections & Snacks Gluten Free Products

This information includes products, which, to the best of our knowledge, do not contain wheat, rye, or barley/malt ingredients. The list may not be complete subsequent to the date of issue due to formula changes and new product information. Please read each product ingredient statement for the most current information.

Candy Bars-Baby Ruth; Butterfinger; Chunky; Nestlé Milk Chocolate; Oh Henry!

Candy Pieces-Nestlé Turtles; Sno-Caps; Butterfinger BB’s; Goobers; Raisinets; Nestlé Treasures; Bit O Honey

Sugar Candy- SPREE; Nips

Wonka Candy-Bottlecaps; Fun Dip (Lik-M-Aid); Gobstopper; Laffy Taffy; Mix Ups; Nerds; Nerds Rope; Shock Tarts; Tart N Tiny; Runts; Tangy Taffy; SweeTARTS

Seasonal Candy/Easter-Milk Chocolate NestEggs; Caramel NestEggs; Peanut Butter NestEggs; Butterfinger NestEggs; Baby Ruth Crème Egg

Seasonal Candies/Christmas-Milk Chocolate Jingles; Baby Ruth Winter Wobbler; Spree and SweeTARTS Candy Canes; Butterfinger in Milk Chocolate Jingles

Seasonal Candies/Valentine’s-Milk Chocolate Hearts; Butterfinger in Milk Chocolate Hearts; Butterfinger in Milk Chocolate Solid Tigger; SweeTARTS Lollipop

[KaitiUSA]

Yep, reactions can last a while. My reactions last a good 2 weeks.

[jerseyangel]

Yea--I'm still sick after 10 days--enough, already

[e&j0304]

Wow, thanks for all the responses. I guess this must be what it is. She was still complaining of her tummy hurting this morning and then had a huge, loose, undigested food stool. I feel so bad for her. She seems to feel better right after she goes and then she'll start to feel bad again.

I just feel like we're so careful at home and I didn't even think that they would be eating candy down in that playroom. I guess accidents happen, right?

I just hope we can steer clear of them for awhile now!

Thanks to all and I'll let you know what Jack's tests come back as.

Shannon

[e&j0304]

also, thanks to the person who posted the response from Nestle. I didn't see crunch bars on there so I assume that they do have gluten in them.

[jerseyangel]

Crunch bars most definately have gluten in them.

[eeyor-fan]

also, thanks to the person who posted the response from Nestle. I didn't see crunch bars on there so I assume that they do have gluten in them.

Your welcome. In November I wrote over 150 companies....you can see replies under my posts (Usually under Product Update headings). Tomorrow I'll be posting the new Paul Mitchell gluten-free list I got today.

Hugs

Bridget

[taweavmo3]

Hope she feels better soon! Gluten accidents are the worst........Emmie takes forever before she's back to normal. She doesn't even get so much as a cold, ever, but an accident makes her sick for weeks. Her minimum recoup time is two weeks, but the fatigue usually lasts for longer than that. And she also gets a fever with gluten ingestion, usually a high one, around 102-104.

What always takes me by surprise is the moodiness that follows the actual physical symptoms. Whenever I think she's on the mend, that's when the horns sprout and tantrums from the old days ensue. Even my 6 year old knows to stear clear of her when she's in a "gluten rage". She becomes super sensitive with anyone touching her, loud noises bother her, she goes around screaming, hitting, biting, etc. The last time we went through this was when I went through the pantry, throwing out all the gluten snacks we had left.....it was a bit rash looking back now, but I couldn't stand seeing it in the house, knowing what it did to her!

And good luck with the Enterolab testing with Jack, I definately see your point in getting some testing done. I'm keeping Ben off of all diary and soy right now to see how he does. I never got our results for celiac back, the lab actually lost his blood sample! I told the ped maybe soy is a problem, and he said "oh yeah, 50% of kids with milk allergy are also allergic to soy" I'm wondering WHY the heck he didn't tell me this 8 months ago when I explained Ben had a milk allergy, and we were still having diarrhea problems. Once again, I found out more info here than I ever have from a doctor. I should just donate my $20 copay to this website once a month instead of wasting it at the doctors office!

Anyhoo, I'm derailing a bit. Take care of little Ella....hopefully she's over the worst of it!

[e&j0304]

thank you Bridget and Tamara.

It's so nice that you post those lists, Bridget and I'm sure they help so many people!

Tamara, I hope you figure things out with Ben. I know you have said in the past that Emmie has terrible reactions. It's so sad when they get this sick over gluten! She had such a small amount too...

I think she is finally starting to feel better although her stools are not yet back to normal. She had another huge loose one just a little bit ago. You know, I can't think of anywhere else where I would just so openly talk about my child's bowels!

Thanks again to everyone and I hope we're all able to keep our kids safe and gluten-free through the holiday season!

Shannon