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popoki321

Today, I Am Angry.

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I have been to many social gatherings and felt like the outcast in the room because I couldn't eat what everyone else was eating. It's a very lonely and depressing feeling, but it's even worse when some ignorant person adds to what you're already dealing with inside by making some comment about your situation. :(

SOCIAL EATING EVENT HORROR STORY... :o

My very first social gathering I attended was only a week after I was diagnosed so I had NO clue what I could eat. I had found some microwave popcorn that I knew was safe so I took it to the event and casually popped and ate my popcorn in the kitchen, minding my own business and I was talking with some of the other ladies that were involved in the preparation of the meal (who were not eating at the time). Then this woman came in there KNOWING MY SITUATION and that I'd JUST found this out.... she offered me (more like tried to force upon me) some of her homemade chili that I had no idea if I could have, but I was pretty confident that I couldn't have it. I kindly said, "no thank you" and she proceeded to become offended saying "Well I know what's in MY chili, so just tell me what you can't have and I'll tell you if it's in there or not". I kindly said "I appreciate that, but I'm fine eating my popcorn, really!" I even went on to say how it's not that I didn't want to try her chili, but that in doing so I'd risk getting sick. Then she said "Well how long do you have to eat this way before you can go back to normal?" and I told her that I'd have to eat this way for life. She then proceeded to say "For LIFE?! How can they expect you to do that...I couldn't do it...I'd just have to kill myself" I thought....hmmm....what an encouraging thing to say to me during one of the most difficult times in my life. <_< On the way home, I cried to my husband telling him how absolutely devastated I was due to this encounter. He reassured me and eventually I learned to get over it....I mean this is the same woman who came up to me and point blank asked me if I was pregnant right before I got diagnosed (because I'd been so sick and not myself) and wouldn't accept no for an answer.

Biggest lesson I've learned....people who say ignorant things are exactly that...ignorant. (This morning on CNN news Soledad was pronouncing celiac "cheliac"). Sigh!


Heather

Gluten Free since 2005!

Am I falling apart??...

Diagnosed with celiac disease, February 2005

Diagnosed with arthritis of the spine, Fall 2005

Diagnosed with GAD, Spring 2006

Diagnosed with hypothyroidism, Fall 2006

Diagnosed with High BP, Summer 2007

"I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future"

Jeremiah 29:11 (NIV)

GO VOLS!!

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Heather - I'm so sorry that you endured such a....... okay I'll call her an unenlightened friend....to be nice. If that were me I guess I'd have to leave her behind as life's too short to deal with people like that.

I didn't even know Soledad was talking about Celiac on CNN so I'm going to their site now and I'll try and e-mail her as to how to pronounce it correctly.............gosh, getting the word out about this condition is a never ending job. But together we can make a difference!


Dx'd with anemia - March 2005

Positive blood tests - Sept. 2005

Positive biopsy - Jan. 2006

Gluten free since 1-23-06

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She then proceeded to say "For LIFE?! How can they expect you to do that...I couldn't do it...I'd just have to kill myself" I thought....hmmm....what an encouraging thing to say to me during one of the most difficult times in my life. <_<

oh my... a horribly mean image came to mind...

after she says that, since you're in the kitchen, find one of the sharp cutting knives, take a really deep breath, pretend to emotionally collapse, start crying, and say "you know, I suppose you're right. no pizza? no bagels? death is nothing. I'm sorry to make a mess of the kitchen, but you're right, I may as well kill myself" and then take the knife, slowly, towards your wrist. (of course, not going through with it.)

ok, I'm sure someone in the group would be offended, probably to the point of not getting it, but maybe it'd be the smack over the head someone needs? stupid, stupid people.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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Until Celiac disease is "outed" these are the kinds of comments that celiacs will continue to hear, unfortunately. People have no brains on regular subjects, they have less when it comes to medical & health conditions they can't see (like would they ridicule someone in a wheelchair? No, because it's visual).

About 8 years ago while my husband was still misdiagnosed we went to our County's Dept. that helped people with medical problems (handicapped if we can still use this word) to find work from home. They turned him down saying that he had no physical handicapp. So the world is selective in what they perceive as a "real" disease - until they or their loved ones have it.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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oh my... a horribly mean image came to mind...

after she says that, since you're in the kitchen, find one of the sharp cutting knives, take a really deep breath, pretend to emotionally collapse, start crying, and say "you know, I suppose you're right. no pizza? no bagels? death is nothing. I'm sorry to make a mess of the kitchen, but you're right, I may as well kill myself" and then take the knife, slowly, towards your wrist. (of course, not going through with it.)

ok, I'm sure someone in the group would be offended, probably to the point of not getting it, but maybe it'd be the smack over the head someone needs? stupid, stupid people.

LOL.....considering who this person was, that would have been CLASSIC...too bad I didn't think of that at the time :P

Thanks for the laugh :D

Heather - I'm so sorry that you endured such a....... okay I'll call her an unenlightened friend....to be nice. If that were me I guess I'd have to leave her behind as life's too short to deal with people like that.

I didn't even know Soledad was talking about Celiac on CNN so I'm going to their site now and I'll try and e-mail her as to how to pronounce it correctly.............gosh, getting the word out about this condition is a never ending job. But together we can make a difference!

Yeah, it was frustrating...I don't know if anyone else caught it but Soledad was talking to a nutritionist about celiac in regards to the glutened McDonald's french fries issue. I was so frustrated every single time she said celiac b/c it seriously sounded like she was saying "CHILI-ac". My husband said...."I guess she thinks you are all chili intolerant" LOL. :P


Heather

Gluten Free since 2005!

Am I falling apart??...

Diagnosed with celiac disease, February 2005

Diagnosed with arthritis of the spine, Fall 2005

Diagnosed with GAD, Spring 2006

Diagnosed with hypothyroidism, Fall 2006

Diagnosed with High BP, Summer 2007

"I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future"

Jeremiah 29:11 (NIV)

GO VOLS!!

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Cheliac? :blink:

I can understand (maybe) people mistaking it for Keliac instead of Seliac (the same as some say Keltic instead of Seltic), but Cheliac? Sheesh!

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Sorry to go off subject but I did e-mail CNN last night and told them to tell Soledad and everyone else there how to say Celiac and that there was no H in the word.


Dx'd with anemia - March 2005

Positive blood tests - Sept. 2005

Positive biopsy - Jan. 2006

Gluten free since 1-23-06

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Sorry to go off subject but I did e-mail CNN last night and told them to tell Soledad and everyone else there how to say Celiac and that there was no H in the word.

Great--were you able to find a link?

I ck'd the videos section and it wasn't there.

Guess i just missed it.

Judy


Judy in Southern CA

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Guest Robbin
I want to slap that twit. What an ignorant bimbo. I am sorry, I am a terribly blunt person. I would have asked her if she had a genetic disease that renders her as stupid as she has shown herself to be. I would have said I was sorry for my disease which I can control. But that I feel more sorry for her because unfortunately she can't find a way to control her stupidity disease.

Rusla, You crack me up--your reply has had me chuckling all day!! I always like your responses! I just want to add -Tell these unbelievable people it's highly contagious-you only have to breathe the same air--and stand really close to them as you say it.

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