Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Sorry - Another Stupid Question!

Bonnie

By Bonnie
in Coping with Celiac Disease

Recommended Posts

Bonnie Explorer
Bonnie
Posted

Hi guys,

So I started keeping a food diary a month ago. I also cut out dairy for 2 weeks. Haven't noticed much difference except maybe my bloating has been less. Friday I had cows milk in my coffee, within a minute my stomach started rumbling and I got some really "pleasant" wind! :P So Saturday I tried some fudge containing milk solids - exactly same reaction. So just to make sure :lol: I had a chocolate mousse - exact same reaction!

So I ate a bit of extra mature cheddar cheese next day - nothing! So whats the deal? I can't have cows milk but ok with cheese or just avoid the whole lot. Actually didn't find it toooooo difficult avoiding dairy. Much to my surprise! Mind you, I would do practically anything to avoid bloating.

Still can't eat any "substantial food". Made some entirely gluten-free cottage pie on the weekend. Used rice milk in the mash potatoes. Boated up like a beached whale. Ate it again a day later - same thing. I did put a bit of grated cheese on the top which may have had something to do with it but its more likely it was mixing protein and carbs. My body does NOT like that. Bummer - I enjoyed it though :lol:

Please help with this dairy issue - confused as usual!!

Yvonne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elisabet Contributor
elisabet
Posted
Hi guys,

So I started keeping a food diary a month ago. I also cut out dairy for 2 weeks. Haven't noticed much difference except maybe my bloating has been less. Friday I had cows milk in my coffee, within a minute my stomach started rumbling and I got some really "pleasant" wind! :P So Saturday I tried some fudge containing milk solids - exactly same reaction. So just to make sure :lol: I had a chocolate mousse - exact same reaction!

So I ate a bit of extra mature cheddar cheese next day - nothing! So whats the deal? I can't have cows milk but ok with cheese or just avoid the whole lot. Actually didn't find it toooooo difficult avoiding dairy. Much to my surprise! Mind you, I would do practically anything to avoid bloating.

Still can't eat any "substantial food". Made some entirely gluten-free cottage pie on the weekend. Used rice milk in the mash potatoes. Boated up like a beached whale. Ate it again a day later - same thing. I did put a bit of grated cheese on the top which may have had something to do with it but its more likely it was mixing protein and carbs. My body does NOT like that. Bummer - I enjoyed it though :lol:

Please help with this dairy issue - confused as usual!!

Bonnie,

I do recommend to eliminate all diary products.casein is very similar to gluten and makes the same damage.

elisabet

Yvonne

momandgirls Enthusiast
momandgirls
Posted

Hi - Aged cheeses/cheddar have such a tiny amount of lactose that they are allowed to state that it is lactose free so, for most people, they can tolerate it. Galaxy foods/Veggie Shreds makes a good mozzarrella substitute (it comes in a green ziplock type bag) and Rice slices makes a good american cheese substitute. We can both eat that without problems. Neither of us drink milk and I can't have soy either so we cook with rice milk and haven't had any problems. Have you tried Lactaid milk and/or taking a Lactaid pill if you're going to eat something with dairy in it? (I haven't looked at the pills so, actually, am not sure that they are gluten free).

On another note, you say that you were diagnosed using BEST. What does that mean? Thanks!

aikiducky Apprentice
aikiducky
Posted
So I ate a bit of extra mature cheddar cheese next day - nothing! So whats the deal?

Sounds like you're lactose intolerant. Lactose is the milk sugar, and it gets broken down when cheese matures, so matured cheese doesn't have lactose. This means you should either avoid milk products with lactose, or take lactase pills (the entzyme that breaks down lactose) before eating anything with lactose. But you would be ok with cheese, and possibly with yoghurt (some of the lactose gets broken down in the fermentation process), and butter (which is mainly milk fat).

hope this helps!

Pauliina

Bonnie Explorer
Bonnie
Posted
  • Author

Thanks for your help guys.

I hope its just the lactose - that's easy done. I would like a little cheese or plain yoghurt every now and again for variety!

BEST stands for Bio-Energetic Stress Testing. Its a computerised system that has a trained technician testing your pulse points in your hands and feet. The computer "reads" imbalances. I had never heard of gluten before this came up. Since then I've been to a GI and all sorts of other doctors for confirmation. Had bloods but had already been gluten free for 6 weeks so they were negative. The GI wanted to do a biopsy but I did my own gluten challenge instead. The GI and I agreed I had my answer from that. The BEST system doesn't help with cures or treatment - just picks things up. It was spot on with me - parasites, other intolerances etc.

Yvonne

momandgirls Enthusiast
momandgirls
Posted

Thanks for the explanation of BEST. Just to clarify, aged cheeses do still contain lactose, just very little. The FDA rules state that foods can still have a little lactose and still be called lactose free. Depending on how intolerant you are, you may or may not be able to handle them. We can't tolerate any dairy at all not matter how much. Hopefully, something like Lactaid pills will work for you.

Bonnie Explorer
Bonnie
Posted
  • Author
Thanks for the explanation of BEST. Just to clarify, aged cheeses do still contain lactose, just very little. The FDA rules state that foods can still have a little lactose and still be called lactose free. Depending on how intolerant you are, you may or may not be able to handle them. We can't tolerate any dairy at all not matter how much. Hopefully, something like Lactaid pills will work for you.

To be honest, I don't fancy using Lactaid pills (if we even have them here!). I would rather just stay off it altogether. I'm going to stay off dairy completely for another 2 weeks to double check that it is affecting my bloating. If my bloating gets better again, then I'll stay off for a long period. This bloating is the bane of my life. I am a slim person and it makes me feel incredibly fat and I have to wear loose tops - I hate it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

Yvonne--

Try doing dairy with a lactase supplement/lactaid pill and see if that gets rid of your symptoms or improves them. If it does, then lactose intolerance may be the problem. I would say 2 weeks may not be quite long enough to give you an accurate sense of dairy's effects in your diet though. It takes me 3 good weeks of dairy free to get rid of its negative effects on me. And honestly, when I did eat dairy, sometimes I noticed GI symptoms, sometimes I didn't, depending on what I was eating. The food journal is a good way to go for sure...what about issues with rice or soy? Keep your eyes peeled for things besides dairy as well. Something else might be sneaking up on you.

Bonnie Explorer
Bonnie
Posted
  • Author
Yvonne--

Try doing dairy with a lactase supplement/lactaid pill and see if that gets rid of your symptoms or improves them. If it does, then lactose intolerance may be the problem. I would say 2 weeks may not be quite long enough to give you an accurate sense of dairy's effects in your diet though. It takes me 3 good weeks of dairy free to get rid of its negative effects on me. And honestly, when I did eat dairy, sometimes I noticed GI symptoms, sometimes I didn't, depending on what I was eating. The food journal is a good way to go for sure...what about issues with rice or soy? Keep your eyes peeled for things besides dairy as well. Something else might be sneaking up on you.

Thanks Jen, I will stay off for 3 weeks from now. You advised me before that the dairy may be a reason for my chronic C.

I am very very intolerant to rice. Don't touch the stuff anymore and I don't really eat soya. I also bloat really badly from any type of legume or bean - lentils, aduki beans, black eyes beans - pity because I really enjoy them. No other symptoms except the bloating and terrible wind/gas.

Yvonne

jenvan Collaborator
jenvan
Posted

Let me know how it goes... Like I said, it takes 3 weeks about to get out of the "C" cycle and start going regularly after getting rid of dairy...

Bonnie Explorer
Bonnie
Posted
  • Author
Let me know how it goes... Like I said, it takes 3 weeks about to get out of the "C" cycle and start going regularly after getting rid of dairy...

Thanks Jen, great photo by the way!! :) Will let you know how I get on.

Yvonne

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...