Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How Long Does It Take You To Get "well" After Being Gluttened?

key

By key
in Coping with Celiac Disease

Recommended Posts

key Contributor
key
Posted

I know we have discussed this, but I was wondering how long it takes you guys to get over the stomach symptoms of being gluttened? I am trying to figure out if I am still getting gluten or if it is dairy or what? I am frustrated that I am not doing better at this. I have decided to not cook gluten for my kids anymore. I felt SO awesome for like four months gluten free and now can't seem to get back to feeling well.

I started getting heartburn about a month ago and didn't relate it to gluten at first, but now I am wondering if it may be that. I gave up caffeine and seemed to feel better for almost a week, but then now at night my lower stomach is just miserable. I don't know how else to describe it. My BM's aren't normal again yet. It has been about 11 days since I know I had gluten. I guess dairy is the next thing to give up, but I am honestly getting depressed over all of this. I just want to get better. I did find out too that Stonyfields yogurt may have gluten. WHen I called them they told me that they had distilled vinegar in it and that was what was in their natural flavoring, so I thought that distilled vinegar was ok. THen when I read yesterday on their website, non of it made sense and it sounds like they may add wheat to it. I feel like my diet is so restrictive. I would look into the SCD diet, but I don't eat meat, so feel like it would be very limiting.

I am at the point that I feel like just not eating anything anymore. SOmetimes I just want to stop eating! I feel very up and down with all of this. Somedays are better and I feel in control of my life and then bam, I am down again! I just had the "flu" virus too for a week. Fever, aches, etc. I catch every bug that comes around. I have three little kids to take care of. I do cook! I really try quite hard at all of this, so I am frustrated.

I guess I am venting and thanks for listening.

Monica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ebrbetty Rising Star
ebrbetty
Posted

It normally takes me a few days, if I get glutened my mistake..

have you tried Kava Coffee for the heartburn? I have can get terrible heartburn/ Gerd and since I switched last year its helped..Google it and you'll see its made to help w/ heartburn, its 90% acid reduced.

I also sleep with a 6 inch wedge, one of the best ideas from my Dr.

I had to give up dairy too :angry: and most all chocolate, no spicy foods, VERY LITTLE butter, no sauce, no mayo

I have days when I think I'm healing and other times were I go for about a week straight when I feel I want to give up and order a big ol' sub. it can be very frustrating

hope I could help

((hugs))

Betty

Guest nini
Guest nini
Posted

Stoneyfield Farms yogurt is safe... they just have a standard disclaimer to cover their butts on the website on the advice of their attorney. I eat Stoneyfield Farms yogurts with no problems and so does my daughter, and both of us are extremely hypersensitive to minute amounts of gluten.

Oh and to answer your question, normally I'm over the worst of an accidental glutening in a few days, but it takes a good three weeks to get back to feeling "normal"

Moongirl Community Regular
Moongirl
Posted
Stoneyfield Farms yogurt is safe... they just have a standard disclaimer to cover their butts on the website on the advice of their attorney. I eat Stoneyfield Farms yogurts with no problems and so does my daughter, and both of us are extremely hypersensitive to minute amounts of gluten.

Oh and to answer your question, normally I'm over the worst of an accidental glutening in a few days, but it takes a good three weeks to get back to feeling "normal"

Do you also have the flavored stoneyfield yogurt as well?

Lollie Enthusiast
Lollie
Posted

I'm sorry you are feeling so bad! :( I know how you feel about not wanting to eat anything at all, I have definately been there for a big part of my life! I have only been gluten-free for a little over 2 months, I'm feeling pretty well, I hope it continues.......but who knows! I don't cook gluten in my house at all. I have 2 kids and husband who can have gluten, but it's just not worth it to me to have it in the house at all. I'm not a good enough house keeper to risk the CC! :P

When I think I've had gluten, it has taken about a day for the worst part and up to a week for all of it to get out! I've considered eleminateing dairy too, but I just can't do it yet! I think I would double check everything and make sure your not getting any gluten and I'd stop cooking gluten too! See if it helps before eleminateing anything else!

Good luck, and I hope this helps a little! :)

Lollie

lorka150 Collaborator
lorka150
Posted

Hi Monica,

I am also looking into the SCD but I am hardly a meat eater. Please keep me posted if you decide to give it a try, as it would be nice to have you along with me on the journey.

key Contributor
key
Posted
  • Author

Betty,

I will look into that coffee, but I have heard that even decaf can give people trouble. The reason I think something else is bothering me and may be that I am getting gluttened, is that I feel that I have been gluttened lately. I had Kettle chips and didn't check about CC. Also had the yogurt. I also haven't been careful lately about products like shampoo. I also have had the Bob's Redmill hot cereal and think this bothers me. So no more of that. The heartburn hasn't been terrible since going off of caffeine and i didn't have it at all for like 5 days off the Prilosec. I actually thought it was just caffeine causing it, but now I am thinking gluten, because I used to have heartburn before gluten free almost a year ago and remembered being gluttened a few times months ago and getting it. It is frustrating though. I went to a GI doctor and he did NOTHING. Told me to keep taking Prilosec. Well thanks, but why am I having heartburn?? It isn't just that. I have other GI issues too. My lower stomach at night especially feels bloated and just overactive. It just seems to spasm or something strange. I slipped today with the caffeine and had sweet tea. Ugh! I am such a loser, but I did GREAT on this diet for like six months and then I tried reintroducing McCann's oats back in the end of September and that is when everything got bad. I ate them for weeks before I realized how miserable they were making me. Then my doctor told me to do the gluten challenge to be sure it was wheat and not just plain old IBS! SO I thought I would try and so I have "attempted" it several times, only to make myself sick and unable to continue eating it for any benefit of a biopsy. I hate not having my mom and family be supportive and thought if I just had "proof" then I would help them believe it! My husband does believe it, just by the changes. I have had many positive changes, but the last few months I have been gluttened so many times, It would be hard to know! I am now recommitted to not care what anyone else says about what I eat. Part of the problem is I think I became more sensitive as time went on and that is why I felt SO great for like 4-6 months. I feel like a nut case, but I know what you mean about giving up when you feel like crud anyway. THat is what I did 11 days ago!! BIG mistake. I figured, well I will have the biopsy, but I can't afford to be sick for weeks without anyone to take care of my kids and I wouldn't probably figure much out anyway. IN the beginning the GI doctor told me he thought I did have celiac, because I had borderline blood results aftering being gluten-free for like 2 months already. Then the next time I go back, he said that maybe it was just IBS and was doubting everything and made me doubt it too. So I am starting fresh and realizing that I DO indeed have some kind of gluten intolerance and I don't care what anyone else tells me.

Lollie,

Yeah, I am going to look for CC and not cook gluten for my family. I don't ever willing cheat, but thought I would try and do the biopsy, etc. and have attempted this several times. Plus I think I have had some by accident. HOpefully once I heal from the last episode, the dairy may not bother me.

Lorka,

Yeah, I will look into the SCD and think about it. I don't know much about it yet, but I will let you know. I think I will give myself a few more days to feel better. INitially I felt great gluten-free for like 4 months, so I am hoping to get back on track somehow. I need to keep a food journal. THat may be my best bet first off, but I am just rebelling against giving up anymore foods! My mom thinks I am anorexic now and I am not. I eat, but just don't seem to gain weight. Even I think I look I little bit cruddy lately! HA! I am too young to have so many digestive problems.

THanks for listening and sorry this got so long!

MOnica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

It depends on how badly glutened I got. If it is minimal it can take a day or three if it is severe, then it takes much longer.

aikiducky Apprentice
aikiducky
Posted

It takes me about three weeks before everything is completely back to normal. If I get glutened again during that time it takes another three weeks plus some.

Actually it sounds like you have been glutened quite often in the last months? It might take a while to get over that again.

Pauliina

Guest Robbin
Guest Robbin
Posted

I have been badly glutened by Kettle chips. I don't know what it is, but I just can't tolerate them. (Too bad, they are sooo good) A number of people here have been bothered by Bob's Redmill products, so I haven't used them for that reason. The longer I am gluten free, the more sensitive I get and realize just how crappy I felt before. This may be happening to you. One of the advantages of this forum is that you get the experiences and knowledge of so many people who have "been there, done that"! It is very helpful, especially in this society where people just don't have the time or relatives are spread out across the country. It's like a family. We are all here for you and each other. :) Take care and keep us posted on your recovery ups and downs. Who knows who you may be helping by your experiences, right?

Guest nini
Guest nini
Posted
Do you also have the flavored stoneyfield yogurt as well?

Yes I have. I currently get the Cascade Fresh flavored yogurts because they clearly label gluten-free... I try to support companies that do this. But up until I discovered them several months ago, I ate all the flavors of Stoneyfield. I also get the yogurt tubes by them and I freeze them, they make awesome popsicles! My daughter and I both love them.

I was under the impression that Kettle Chips were not gluten-free, or could not be guaranteed gluten-free because of cc.

I also recently got glutened by cheap coffee.

penguin Community Regular
penguin
Posted

I got badly glutened by Kettle Chips. It was my first glutening, actually. I've also been glutened by Bob's Red Mill so I don't eat anything by that company either.

A lot of Lay's products are gluten-free. I miss the kettle chips, they were good, but not good enough to suffer like I did to eat them :rolleyes:

key Contributor
key
Posted
  • Author

Thanks for the tip on the Kettle chips and I will definitely not eat Bob's Redmill again. I thought maybe it was all in my head, but I ate it several times and same problem each time. It doesn't agree with me.

Yeah, I think my problem is being gluttened so much recently that I don't even know what normal is anymore. If I can just get myself back to normal, then I can know what is bothering me. I am going to go to a pretty basic diet for awhile with foods that are made in a gluten free plant without any other gluten or fresh stuff. Hopefully this will help for awhile.

Someone mentioned coffee. Is Maxwell house Hazelnut coffee gluten free?? I thought that almost all coffee's were and failed to check this one. I will look for it myself too.

Thanks guys. I am feeling better today and hopefully if I can avoid gluten, I can get better.

Monica

lorka150 Collaborator
lorka150
Posted

just so everyone knows, bob's red mill has two plants - one that is gluten-free and one that isn't.

some of the 'gluten-free' flours and whatnot are made in the non-gluten-free plant.

i was glutened for the longest time unknowingly from the carob, assuming that it was okay because he made gluten-free products and it's gluten-free... anyway, it was in the other plant.

just so you guys know.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      These articles may be helpful:
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      5

      Skin issues

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph, by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some...
    3. N Young
      - N Young posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Frustrated with Providers

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time. Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten...
    4. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    5. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Test interpretations

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,115
    • Most Online (within 30 mins)
      10,442
    Ginarwebb
    Newest Member
    Ginarwebb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Iron loss and potential celiac.

      By Scott Adams · Posted

      These articles may be helpful:    
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph,  by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some pills ! I made the mistake of saying Im waiting on Infectious disease. She asked how did I get referral and I said I did it online.The next day I checked the status and it was denied! I did get  a referral to the dermatology office i went to last year that over charged me and did a biopsy on me stating inconclusive! I went to another dermatologist and he stated I should see Infectious disease at place i put in referral. With that I contacted that dermatologist and waiting to see if he thinks dermatology or Infectious disease is the route.I do have appointment for dermatology next week.Until then i did purchase Zahler paraGuard advance intestinal  flora support  from Sprouts. Im also very alarmed that the fact celiac isn't addressed properly infact its downplayed. When I had my son tested for HLA-DQ2 and it came out positive because he is eating everything and he is extremely skinny but he isn't dealing with severe diagestive issues because thats all he knows NOW or yet because he is still young 21.I too didn't know any difference when i was that age because thats all we know.Life changes will get him in latter years im afraid because what im dealing with.That scares me.The specialist we went to was only about congestion he is getting.He is getting congestion because he is eating what he isn't supposed too! Zero talk about celiac and HLA-DQ2 positive. Only talk was he is congested because we live in the Valley! They wanted to do surgery! I did write again to our district leader considering when I did call, the guy stated he knew all about celiac. I really wanted to tell him NO YOU DON'T but held my tongue. For my skin sores the cream given didn't do anything because ive also had in past.Ive been putting liquid vitamin c on it and taking vitamins which is making a little difference just with the last few days of doing.
    • N Young
      Frustrated with Providers

      By N Young · Posted

      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time.   Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten challenge. I went on an elimination diet and found relief on the Dermatitis within a month. I have no doubt that I am celiac and very sensitive now. Now my issue is that I changed physicians due to retirement and he performed a blood test and included a celiac test. I was very upset because I did not request the test and had not been eating gluten for 25 years. Of course the test was negative.  My question - Will this cause me any issues with health treatment if my records now have that I dont have celiac? I like this physician and I am appalled that he performed the test. (he told me his brother is also celiac).  I feel that we are still living in the dark ages. I dont want to cause problems because I rarely need health treatment since I live a fairly healthy lifestyle.  Since I am at this age and been through so much getting to this point am I being unreasonable for being upset? I am not expecting to see this physician for another 2 months.  Need to know if I can expect issues with future treatments. How can a physician not know about the gluten challenge this day and age?   
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    • trents
      Test interpretations

      By trents · Posted

      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour bread) for at least two weeks prior to the day of the procedure. @Ginarwebb, your tTG-IGA >250 would seem to be a pretty high test result, though to be sure of that statement, I would need to see what the lab used for a "normal" range. Do you have that number also? Different labs use different scales. There isn't an industry standard yet. The tTG-IGA is the centerpiece of celiac blood antibody testing. Your ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER (aka, "EMA") is positive as well. This is an older test, and a relative expensive one, compared to the tTG-IGA which has largely replaced. But the EMA is still ordered by some docs and is highly reliable. That both of them agree in your case and this is strong evidence that you have celiac disease. Concerning the ENDOMYSIAL ANTIBODY TITER (aka, "total IGA") being high, there are two things of importance. First, it tells us you are not "IGA deficient" such that your tTG-IGA test result is reliable. Second, a high total IGA test score can suggest other health concerns, some of which are serious. It can also mean nothing. Talk to your doctor about this. I would also suggest you research the implications of a high total IGA. In addition to IGA celiac diagnostic tests there are also IGG tests which are handy when total IGA is sub normal.  Here is an article outlining the various tests that can be run for diagnosing celiac disease:  
×
×
  • Create New...