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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor

That's interesting about the nuts. The two older ones are intolerant to peanuts. We've challenged almonds and so far so good. I'm beginning to wonder if cashews are a little problem. We'd be lost without our cashews. Talitha seems to get a tummy ache after she eat Mac and Cheese (cashew cheese).

I need to challenge eggs. I already have a small headache so maybe I should see if tomorrow is better. My daughter isn't too thrilled with me trying them again. I might as well get it over with.

Rachel, you sound like my hubby. He ate 3 things this weekend that have been known to cause him problems. Now we don't know if it was all of them or some of them.


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Rachel--24 Collaborator
That's interesting about the nuts. The two older ones are intolerant to peanuts. We've challenged almonds and so far so good. I'm beginning to wonder if cashews are a little problem. We'd be lost without our cashews. Talitha seems to get a tummy ache after she eat Mac and Cheese (cashew cheese).

Cashew cheese??? :unsure:

I never heard of such a thing. :lol:

Andrea, I didnt eat cashews or peanuts. I wouldnt test those....they are the moldiest nuts. Peanuts are the worst of all nuts..because they're pretty much always contaminated with alflatoxin.

I ate Brazil, almond, hazelnut, pecan and walnut.....but I wont do it again. :P

AndreaB Contributor
Cashew cheese??? :unsure:

I never heard of such a thing. :lol:

I ate Brazil, almond, hazelnut, pecan and walnut.....but I wont do it again. :P

That reminds me. Talitha seems to have a problem with walnuts too. Maybe nuts are becoming a problem for her.

We use cashews for cheese and gravy because they blend easy. I still have about 5-10 lbs worth of them I think.

I don't know what we'll do if we have to leave off all nuts. That's about the only top 8 allergen food we are eating. Still have some salmon for the rest of the family to finish though.

I'm beginning to hate these intolerances! :angry:

diamondheart Newbie

Hi NoGluGirl,

I think your ritual is a good idea :) . Setting your intention for healing is a very powerful thing, no matter how you do it. Let us know how it goes.

Claire

CarlaB Enthusiast

Sounds like the butter to me, Rachel. Is there any oil you can use? I grease my skillet with safflower oil.

dlp252 Apprentice
I'm beginning to hate these intolerances! :angry:

I'm right there with you my friend! :angry: {stomping foot} I cut out all nuts for the candida diet, and in the last couple of days have added about a half tablespoon to my morning and evening pectasol shakes (sounds yummy huh, lol).

I LOVE nuts! All kinds of nuts! Rachel - I reacted to all the nuts too...I'm wondering if it was because of the mold or because of the oil or if I reacted to the oils because of the mold...oh my mind just can't deal with it all, lol.

I'm leaving in a few minutes to have my hair done...that always makes me feel better. :)

diamondheart Newbie
I'm not too sure on the eggs anymore. <_<

I started having real bad headaches. It could have been from butter....but I was only using it to grease the pan. :huh: Butter gives me headaches though.

I dunno....my friend said that veggie-fed means they're probably eating grain....and probably corn....which would have the most mycotoxins. She said chickens eat grains. I still dont know for sure though. <_<

Have you tried ghee? I don't have any problems with that and I use it to cook my eggs instead of butter.

When you think of how much grains cost versus vegetables, you gotta figure that "veggie-fed" eggs means the chickens get fed mostly grains and probably just a little bit of vegetables.

Claire


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rinne Apprentice
I kicked ice cream, potatoes, popcorn and apples out of my diet. There went 4 out of my 5 safe foods. :o

I've added in soymilk, eggs, oats and a few veggies.

Wow Rachel, that is huge. Thanks for the information about mycotoxins. I am wondering how a healthy body deals with them.

And now for something completely different... :P

Rachelville reminds me of Pudgeland. I had a friend in high school who's nickname was Pudge. On one of our crazy weekend partying sprees, I invented Pudgeland, the place we went when we were doing you know what. Of course Pudge was the Prez. We appointed our friends to various offices. I can't remember them all now :huh:. Somewhere it's all written down. I was the Ambassador to Outer Pudgeland, meaning I was the one who was the link to reality for those in Pudgeland! Sadly, Pudge isn't around anymore, but it was fun while it lasted B) .

Claire

Claire, Pudgeland sound fabulous.

It is just, I am done being disrespected. I feel like I am cursed! I have nothing to be happy about. I cannot remember the last time I was happy. I wonder if I am cursed by my parents' bad choices and actions. I am so tired of paying the price for other people not being responsible. I have just become angry and depressed. On the bright side, I am delightfully dark and twisted! ;)

NoGluGirl, I can relate though it has been a long time. I have found this prayer helpful, "may I love my life and find a way to live that expresses that love".

NoGluGirl, I would do whatever I could to move out ... do you have grandparents? Aunts and uncles? I had a bad home situation growing up, so I understand. I wasn't neglected, but the rest rings true. I eventually had to break things off with them when my kids started asking about the abuse. I had thought it was best for them to know their grandma, but it wasn't. My dad is very supportive (they're divorced). The stress is not helping you at all! Stress and depression is a bad combination for anyone, especially the chronically ill.

It's apparent that they don't believe you're sick and that they're frustrated that they're still supporting you. I'm afraid they've labelled you as "lazy" (I used to hear that a lot myself) ... I'm sure if they believed you, things would be different.

And I'm with Carla on this.

Rachel--24 Collaborator
Have you tried ghee?

Claire,

I've eaten ghee and had some really really bad reactions to it....WAY worse than what butter does. :blink:

This was quite awhile ago...before this thread even. I went casein free since gluten-free didnt solve all my problems and thats why I was trying ghee....because it was labeled casein free. I kept trying to figure out if there was some casein still left in it that I may be reacting to.

I eventually ruled that out...and obviously dont have a problem with casein. Truckloads of ice cream have proven that. :lol:

I never did figure it out...now I'm thinking the ghee has to contain fungi/mycotoxins....moreso than other dairy products. I was actually looking at the ghee tonight at Whole Foods and thinking about this. <_<

Rachel--24 Collaborator

Ok...I think we are really getting somewhere with my BioSET sessions!!

Check this out...

Tonight Anna wanted to check the virus panel...to see if anything was cross reacting with HHV-6 or what other virus I might have.

I did not react to anything in the panel! YAY....I think its a first for me. :o

She said we can pretty much rule the whole panel out...virus is not an issue for me. YAY! :D

The HHV-6 did show up but doesnt mean its active. It most likely isnt. She said virus often leave behind fragments...parts of the virus may always be present. She wanted to see if anything was cross reacting with HHV-6.

Last week we had checked to see what might be cross reacting with Lyme and it was molds/mycotoxins....bigtime.

So guess what showed up this time??? MOLDS :o

I have issues with many species of mold/fungi....but particularly....Aspergillus. Several species of Aspergillus always show up.

Going back to my initial testing and the report Anna had sent to my Dr.....this is something that was written on the report....as part of my history.

Rachel began smoking cigarettes at the age of 17 and continued to smoke as much as a pack per day for the next 14 years. I advised Rachel that cigarette smoke is a huge source of over 3500 chemicals and aspergillus and other pathogenic molds that will become deposited into the body and contribute to the overall toxic burden.
So this was a few months back at my initial visit.

Now....we are discovering week after week that molds/mycotoxins are obviously a big reason for my illness. Aspergillus showed up in my initial testing as far as pathogenic molds/yeasts go.

Tonight there were several species of Aspergillus showing up as cross reactive with HHV-6.

Here is a list of different species....

Aspergillus caesiellus

Aspergillus candidus

Aspergillus carneus

Aspergillus clavatus

Aspergillus deflectus

Aspergillus flavus

Aspergillus fumigatus

Aspergillus glaucus

Aspergillus nidulans

Aspergillus niger

Aspergillus ochraceus

Aspergillus oryzae

Aspergillus parasiticus

Aspergillus penicilloides

Aspergillus restrictus

Aspergillus sojae

Aspergillus sydowi

Aspergillus terreus

Aspergillus ustus

Aspergillus versicolor

Not all of these showed up but the most common and pathogenic ones did.

Its been awhile since my first appt. so Anna forgot my history as far as the smoking goes. She was looking at the list of Aspergillus and asked me if I'd been around someone who smoked alot. I told her I smoked alot!! :unsure:

She asked how much? I said a pack a day. :ph34r:

She said this is ALOT....a pack a day is ALOT. :(

She then asked me how long? I said 14 years. :ph34r:

She said "OMG" :blink:

She said that cigarette makers put aspergillus into cigarettes for flavor and to make them more addictive. She said they put mold into the cigarettes purposely! :o

She said this is not a harmless mold....this one is pathogenic and opportunistic.

I told her that I know lots of people who smoke a pack a day...for longer than I did...and they are FINE.

She said that they are NOT FINE.....even after they quit...they are not FINE...and they can still develop cancer or other disease due to these toxins....long after they stop smoking. :(

I told her about how after I got sick I went through my bad break-up and I couldnt cope because of the illness and I resumed smoking....even more than a pack a day and I also wasnt eating much. She said I went back to the cigarettes for comfort. Yeah...thats pretty much what happened. :(

I knew the cigarettes were making me worse...and I eventually stopped. Even one cig. will mess me up REALLY bad so I dont touch them and havent for a long time. They produce the same symptoms as some foods I eat but to a more severe degree and the effects last several days....much like drinking a beer.

She said that this problem was occurring for a long time....it was going on w/out my knowledge....before I ever felt sick.

The chain of events that occurred in my life was extremely unlucky. Lyme, stress, mercury, Graves Disease, radiation, antibiotics, a break-up....all making my body a perfect place for Lyme and yeasts to have a party. :(

So now she thinks I may have an Aspergillus infection. She was wondering if I could get tested specifically for antibodies to Aspergillus. She was gonna call my Dr. to see if he could order a test. She said if the antibody titer comes back high he can prescribe meds to treat it.

She said that Aspergillus can affect me anywhere....but it primarily affects the liver. It could be causing the detox issues...or at least playing a big role.

On the computer it was showing that Aspergillus and the other molds were really affecting my brain. She said its a big reason for my brainfog and other brain-related symptoms.

She said she has one other patient....a little girl....who is as sensitive to molds as I am. She goes off if she even eats a strawberry. She just gets crazy...her parents didnt understand and thought she was possessed. Anna explained that this is like an allergy that is directly affecting the brain. The girl is doing better now. :)

When I came out of the treatment room Anna had already called the lab which tested for yeasts and bacteria last month. She asked if they did an Aspergillus test. They said they dont do it anymore because they were being threatened to be shut down or something. She said apparantly its all political like Lyme Disease....people saying that Aspergillus cant make you sick or cause disease and making it so that we cant get tested. :angry:

I'm sure the tobacco companies are involved in some way. <_<

Anyways, she went online and found a lab that runs the test. There were so many diferent tests for so many diferent fungus and alot of different Aspergillus tests. We didnt know which one was the best test. I want more than just IgG testing.....as many antibodies as they test for and they also have a DNA test....I want the most comprehensive.

Shes gonna call them...get the kit for the best test and then she'll do the bloodwork. If its positive she said my Dr. will be more likely to prescribe the meds....without worrying about backlash from anyone. Its better when the Dr. has a positive test to go on......just like with Lyme.

So thats the gameplan for now.....find out how much this Aspergillus is affecting me.

She said Candida treatment doesnt treat Aspergillus infection. This could be why I dont get better treating candida! :blink:

The other test I had with extremely high antibodies to yeast was a gut test. She went over those results again tonight. She said the yeast was at least 4 times the normal level....the bacteria was a little more than twice the normal rate....and dietary proteins was a little elevated.

Those are the things causing leaky gut...mainly yeast and bacteria with food protein playing a smaller role. It could be gluten mainly but since I'm off it....the levels arent very high. Thats my guess anyway.

The yeast doesnt necessarily have to be candida. The test wasnt species specific....it could be different strains....or it could be candida. The Aspergillus could also be responsible or contribituting to the high antibody levels in that test.

I have so many exciting things coming up....I feel like we're getting closer and closer and stuff is really making sense.....after all this time. :o

I looked up some stuff about Aspergillus...

Species

The genus Aspergillus includes over 185 species. Around 20 species have so far been reported as causative agents of opportunistic infections in man. Among these, Aspergillus fumigatus is the most commonly isolated species, followed by Aspergillus flavus and Aspergillus niger. Aspergillus clavatus, Aspergillus glaucus group, Aspergillus nidulans, Aspergillus oryzae, Aspergillus terreus, Aspergillus ustus, and Aspergillus versicolor are among the other species less commonly isolated as opportunistic pathogens. See the list of obsolete names and synonyms for older names of these species.

Pathogenicity and Clinical Significance

Aspergillus spp. are well-known to play a role in three different clinical settings in man: (i) opportunistic infections; (ii) allergic states; and (iii) toxicoses. Immunosuppression is the major factor predisposing to development of opportunistic infections [1048]. These infections may present in a wide spectrum, varying from local involvement to dissemination and as a whole called aspergillosis. Among all filamentous fungi, Aspergillus is in general the most commonly isolated one in invasive infections. It is the second most commonly recovered fungus in opportunistic mycoses following Candida.Almost any organ or system in the human body may be involved.

Aspergillus species are highly aerobic and are found in almost all oxygen-rich environments, where they commonly grow as molds on the surface of a substrate, as a result of the high oxygen tension. Commonly, fungi are grown on carbon-rich substrates, mainly monosaccharides such as glucose. Aspergilli, however, can also secrete amylase enzymes, which allow it to use polysaccharides as a carbon source, for example starch.As a result of this, Aspergillus species are common contaminants of starchy foods, for example bread and potato, and grow in or on many plants and trees.

In addition to growth on carbon sources such as glucose, fructose, maltose, and starch, many species of Aspergillus demonstrate oligotrophy: they are capable of growing in nutrient-depleted environments, or environments in which there is a complete lack of key nutrients. A. niger is a prime example of this; it can be found growing on damp walls, or as a major component of mildew.

Perhaps the most well-known application of A. niger is as the major source of citric acid; this organism accounts for over 99% of global citric acid production, or more than 4.5 million tonnes per annum. A. niger is also commonly used for the production of native and foreign enzymes, including glucose oxidase and hen egg white lysozyme

I am really excited about this info. One of my very first threads when I joined this board was titled "Citric Acid". I was wanting to know if it contained gluten because I was having really obvious and BAD reactions to it. I've never been able to figure out a definite cause. <_<

A week or two ago someone posted on another thread about citric acid being derived fom mold.....it really made me think....considering all that is showing up in my testing.

Now I am pretty much 100% certain thats why I react to citric acid. YAY for getting answers....finally!! :D

This also very much explains why I cant tolerate any enzymes....most are grown on Aspergillus or other fungi.

This is what I found about treatment....

Invasive aspergillosis is treated with several weeks of amphotericin B, an antifungal medication given by an IV. Itraconazole or voriconazole can also be used.

Antifungal agents do not help people with allergic aspergillosis. Allergic aspergillosis is treated with prednisone taken by mouth.

Gradual improvement is seen in patients with allergic aspergillosis

I also saw that alot of other mediactions can be used for treatment as well.

I guess we'll just have to wait and see what shows up in the bloodtest....SHEEESH...I really do hate the "waiting" part. :(

The next thing I want to find out about is this....Saccharomyces yeast (Florastor).

I took this while I was on the Flagyl (metronidazole) last year. I was really sick the entire time and even after the Flagyl was over I reamined sick and very constipated...until I finished the Florastor....which contained Saccharomyces Yeast. <_<

It was a probiotic but now I'm very curious as to whether this was actually making me sick...another question for Anna. Considering its a fungus....I'll bet money it was causing me the symptoms I had during that time.

Anyways...thats it for the latest from the BioSET files. :P

Dont know if I'll be able to post for lunch tomorrow. I have to go to a meeting...I didnt know about it till yesterday and all my good clothes are home in Manteca. Of course I had to go shopping...and of course I found more than just what I needed for work. :P

YAY for shopping! :D

NoGluGirl Contributor
Hi NoGluGirl,

I think your ritual is a good idea :) . Setting your intention for healing is a very powerful thing, no matter how you do it. Let us know how it goes.

Claire

Dear Claire and rinne,

Thanks for the support. I am only one supply short. Somewhere is bound to have a black candle. 40th birthday parties usually have that theme for over the hill. Black candles are the only ones used to break curses. I am tired of dealing with everyone else's bad karma. It is my turn to be happy. I have waited long enough and worked too hard not to be. I will keep you updated.

Sincerely,

NoGluGirl

AndreaB Contributor

Rachel,

Wow, lots of stuff and learning going on.

All these things that could contribute to problems.

Donna,

Hope things go ok with the little bit of nuts you added back in. I'm trying to figure out how to go nut free over here. Bread with fruit spread sounds kind of boring for the kids and I used the nut butters to get a little more protein into them. Well Talitha is the only one that probably needs to go nut free. I should so it's one less allergen for Seth to possibly react to. I think I need to keep the almond butter for Micah as he's not real fond of meat. Was just talking to Mitch tonight and we're going to try and make gravy from vegetable broth, don't really know how that will work. Nuts take the place of dairy in most things. :(

miamia Rookie
Rachel,

Wow, lots of stuff and learning going on.

All these things that could contribute to problems.

Donna,

Hope things go ok with the little bit of nuts you added back in. I'm trying to figure out how to go nut free over here. Bread with fruit spread sounds kind of boring for the kids and I used the nut butters to get a little more protein into them. Well Talitha is the only one that probably needs to go nut free. I should so it's one less allergen for Seth to possibly react to. I think I need to keep the almond butter for Micah as he's not real fond of meat. Was just talking to Mitch tonight and we're going to try and make gravy from vegetable broth, don't really know how that will work. Nuts take the place of dairy in most things. :(

Andrea-

can they have seeds? I cannot tolerate nuts but I seem to be ok with seeds- sunflower and pumpkin are what i use- i make vegee pastes and so on- I have made fake cheese with sunflower seeds instead of cashews becasue I am allergic- you could try it. Also I have not had it lately but quinoa is a good source of protein as opposed to most grains which don't have much. Oh they also do make sunflower butter- its different but its pretty good. Just some ideas

Miamia

AndreaB Contributor
Andrea-

can they have seeds? I cannot tolerate nuts but I seem to be ok with seeds- sunflower and pumpkin are what i use- i make vegee pastes and so on- I have made fake cheese with sunflower seeds instead of cashews becasue I am allergic- you could try it. Also I have not had it lately but quinoa is a good source of protein as opposed to most grains which don't have much. Oh they also do make sunflower butter- its different but its pretty good. Just some ideas

Miamia

Thanks Mia.

For some reason I think of sunflowers as nuts. :blink::lol: I'll switch to using those and see how she does. We have used sunflowers to make sourcream. Mitch just bought a quinoa hot cereal I need to try for the kids.

CarlaB Enthusiast

Andrea, what about eggs?

I've used tahini for many things, too. It's from seeds.

Or, if there are ways Micah will eat meat, maybe just be sure to prepare it that way a couple times per week. I've been buying wonderful, uncured brats and sausages that everyone seems to love. I'll also saute some ground meat, add veggies, then flavor with gluten-free Cream of Mushroom soup.

I find meat pretty boring myself, actually. I made many more interesting dishes when we ate primarily vegetarian!

AndreaB Contributor
Andrea, what about eggs?

I've used tahini for many things, too. It's from seeds.

Or, if there are ways Micah will eat meat, maybe just be sure to prepare it that way a couple times per week. I've been buying wonderful, uncured brats and sausages that everyone seems to love. I'll also saute some ground meat, add veggies, then flavor with gluten-free Cream of Mushroom soup.

I find meat pretty boring myself, actually. I made many more interesting dishes when we ate primarily vegetarian!

We used to use Tahini a lot. I need to try it again. Both Talitha and I tested real low on sesame.

Micah loves taco seasoned meat (beef or chicken) and he ate the chicken breast cooked with crushed tomatoes last time we had that. He likes turkey patties, bacon and I think hotdogs. Basically he seems to like the processed meats. We only buy the natural stuff, no nitrates/nitrites.

I love cream of mushroom soup but haven't had it for awhile. I forget if it had soy in it and we are dairy free as well.

I guess if I think about it he is getting a little better about eating meat.

We actually had collard greens this weekend and everyone loved them so they will go into the mix of things a couple times a week. Cooked them with garlic which everyone loves. :)

dlp252 Apprentice
Its been awhile since my first appt. so Anna forgot my history as far as the smoking goes. She was looking at the list of Aspergillus and asked me if I'd been around someone who smoked alot. I told her I smoked alot!! :unsure:

...

She said that cigarette makers put aspergillus into cigarettes for flavor and to make them more addictive. She said they put mold into the cigarettes purposely! :o

...

She said Candida treatment doesnt treat Aspergillus infection. This could be why I dont get better treating candida! :blink:

...

I am really excited about this info. One of my very first threads when I joined this board was titled "Citric Acid". I was wanting to know if it contained gluten because I was having really obvious and BAD reactions to it. I've never been able to figure out a definite cause. <_<

..

The next thing I want to find out about is this....Saccharomyces yeast (Florastor).

Holy mole...My aunt and brother smoked like fiends when I was growing up...my mom and dad used to, but quit when I was pretty young although dad smoked an ocassional pipe.

Stupid cigarette manufacturers!!! :angry:

I'm wondering if why this is why I didn't get 100% better on the candida routine too...I did feel better, and was definitely less sick, but never 100% well.

I am interested in what you find about Florastor, cuz I'm about 99.9% sure that is what made me really sick one day. I stopped taking it about 3 days into the diet cuz I just had the worst cramping and noisy bowels and, well, exlosive D. Things have been okay since not taking it and I seem to be okay with the HLC probiotics. At first I thought it was the coconut oil I used, but I used that on the same day as the Florastor, and I just tried the oil again and it was fine.

Donna,

Hope things go ok with the little bit of nuts you added back in. I'm trying to figure out how to go nut free over here. Bread with fruit spread sounds kind of boring for the kids and I used the nut butters to get a little more protein into them. Well Talitha is the only one that probably needs to go nut free. I should so it's one less allergen for Seth to possibly react to. I think I need to keep the almond butter for Micah as he's not real fond of meat. Was just talking to Mitch tonight and we're going to try and make gravy from vegetable broth, don't really know how that will work. Nuts take the place of dairy in most things. :(

I decided to take out the nuts...I was just having the almond butter, and just a little, but I haven't felt normal in the gut for the last few days, so decided to just stop it. :( Fortunately for me, eggs seem to be okay, so I've been eating a couple every day, plus the egg white powder I use for in my pectasol shakes.

I find meat pretty boring myself, actually. I made many more interesting dishes when we ate primarily vegetarian!

Oh thank the Lord, tee hee, I LOVE meat...I'd be in a world of hurt at the moment if I didn't like that since that's mostly what I'm eating. :P

AndreaB Contributor

Just got a call from my mom who got a call from a friend in Arizona yesterday I think. My dad has gone downhill fast. I just talked to him Saturday and he sounded fine aside from his voice not being very good. I think it was Monday night that he lost it and got violent, then after that weepy. They had to call the paramedics twice. He's in hospice care and they are trying to get his meds evened out to send him back home to die. He's been pulled off dialysis. Doctors have determined it will do no further good. Death is imminent. He's totally incoherant. I'm hoping his wife will call at some point but she's under a great deal of stress and is not doing well with this either.

jerseyangel Proficient

Andrea,

I am so, so sorry. I will keep your dad in my prayers.

Take care, if you need to talk, I'm here.

dlp252 Apprentice

Oh Andrea, I'm so sorry. I'm sitting here in near tears for you! I too will keep your dad and you and your family in my prayers!

CarlaB Enthusiast

Andrea, I'm sorry. I'm so glad you went to see him when you did.

About the greens ... I use collards, chard, and spinach all the time! I put spinach and carrots in the chili I made the other night and everyone still loved it! I chopped up chard last night and put it in the rice ... everyone thought the rice looked prettier! I do the same thing with collards. Sometimes I make a one dish dinner with the ground meat and veggies like I said, and I include greens. Except for spinach, I don't serve them as a dish on their own. I love spinach sauteed in garlic though.

Donna, I like meats like filet mignon! I LIKE the others, they just get boring when you have them every meal. There was more variety before.

dlp252 Apprentice
Donna, I like meats like filet mignon! I LIKE the others, they just get boring when you have them every meal. There was more variety before.

Okay, yep, I'd agree with this, lol! Especially with breakfast... :P

AndreaB Contributor
About the greens ... I use collards, chard, and spinach all the time! I put spinach and carrots in the chili I made the other night and everyone still loved it! I chopped up chard last night and put it in the rice ... everyone thought the rice looked prettier! I do the same thing with collards. Sometimes I make a one dish dinner with the ground meat and veggies like I said, and I include greens. Except for spinach, I don't serve them as a dish on their own. I love spinach sauteed in garlic though.

I'll have to incorporate those in more. I like that idea and using garlic will make them more palatable for the kids.

Rachel--24 Collaborator

Andrea,

{{{{{{{{{{{{hugs}}}}}}}}}}}}}}

Sorry about your Dad....Are you going to be able to talk to him while he's at home?? I hope you're doing ok.....call me if you need to talk.

Rachel--24 Collaborator

I tried to find out about Aspergillus infection.....I dont know if it fits for me though. I'm sensitive to all molds so its probably more likely because of leaky gut. :(

I'm still gonna take the test but I'm thinking my immune system is probably fighting all molds so would likely come back high. I'm not sure if treating it would help in this situation.

I guess if my gut is leaky these fungi could have translocated and set up infection somewhere in my body. <_< Thats the thing about leaky gut...the pathogens get to travel around and wreak havoc. :(

I got an email from Scott about my ART test on Saturday. This is what we will cover...

Our primary areas of interest will be:

1) Determining the level of stress on your nervous system

2) Scanning basic organs for areas of stress and lack of proper functioning

3) Scanning the body for indicators of possible infections

4) Scanning the body for potential presence of heavy metals

5) Providing insights into foods that you may potentially be sensitive to

6) Reviewing your current supplement program energetically to see what may be good for you and what may be bad for you

7) Determining potential interventions that may help the body in resolving issues identified

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    • Wheatwacked
      Many of the symptoms, there are over 200, associated with celiac disease and NCGS are vitamin and mineral deficiencies caused by small intestine damage in the case of celiac disease and food avoidance and the poor nutrittion of the Modern American Diet (MAD) I used to turn the heat on even at 78 degrees.  The 600 mcg of Liquid Iodine helped.  Also good for hair, nails, skin and brain fog.  Another good thing for brain fog is phosphatyl choline.  It is essentil for acetylcholine- a brain chemical. I have familial hyperlipdemia and instead of a statin I got a prescription for Nicotinic Acid, 2000 mg a day.  I was already taking 500 mg a day and was really surprised when my HDL when up to  44 and I began sleeping better and my legs and back are getting more flexible.  In addition after the first few doses of itchiness I get a warm fuzzy feeling Raising your vitamin D is crucial.  Low vitamin D allows the immune system to run amuck. intermittent bouts of fatigue, chills/cold intolerance, and shortness of breath/air hunger (sometimes feels like a hollowness in my chest, hard to describe).  Look at Thiamin deficiency. consistently ran hot, was always cranking the a/c, to someone who wears a down vest.  Any combination of deficiencies in B1, B2, B3, B5, choline and Iodine can cause this.  Likely all of them. After a lifetime of mouthbreathing GFD cleared my sinuses.  Post nasal drip is my first symptom of cross contamination nowaday.  
    • Wheatwacked
      If you mean continueing on Gluten Free my answer is yes.  She showed significant improvement in her behavior and that translates to a happy family.  Do get her tested as sooon as you can.  You might want to investigate genetic testing for Celiac Disease.  Children recover more quickly than adults.  It took my son about 6 months on Nutramigen before going to regular food, gluten free.  Blood tests are not always accurate in very young children. You may be advised to see a gastroenterologist instead of relying on blood tests results. Logic: She is better off gluten than before.  Wheat flour has no nutritional value and has an omega 6: omega 3 ratio of 22:1.  Our bodies do better at 3:1.  Omega 6 causes inflammation. When my son was diagnosed, back in 1976, his doctor recommended my wife and I also go gluten free.  We declined and lived to regret it.  I started GFD at 63 and have spent the last 10 years undoing the damage, some of my symptons went all the way back to my childhood and things I lived with all my life got better.
    • Wheatwacked
      Hi @Nicbent35,             When my son was diagnosed with Celiac Disease when he was weaned, so I understand your frustration.       With improvement so dramatic, it cannot be a coincedence. Get her to the doctor and tell the story and insist on testing.  In the meantime, though, continue on GFD.  Her health is more important than convincing a doctor.  Bring videos of her behaviors if you can.  Even if the blood tests and biopsy prove negative, that is part of the diagnosis process for NCGS and later when she is recovered you can always do a Gluten Challenge.      This is an important time in her developement.  Celiac Disease causes malabsorption syndrome, leading to malnutrition, regardles of what she eats.  Though NCGS may not cause malabsorption, it will affect food choices which can lead to malnutrition.  There may be benifits that an official diagnosis may have, but they don't trump a healthy child.      Get her healthy, then worry about validation later.  Celiac Disease is difficult to diagnosed, especially in children, because doctors look for antibodies in the blood and young children have immature immune systems.  Also you don't mention any gastrologic symtoms and celiac disease is traditionally considered gastrolic only.  Not true.  There are over 200 symptom that celiac disease and the accompaning malnutrion mimics or causes that often causes misdiagnosis and delay in recovery. While at the doctors, ask them about vitamin D deficiency and Iodine deficiency in particular. Milk being the primary source of iodine in the diet, but concerns exist regarding the lower iodine content in organic milk and reduced milk consumption in certain demographics.  Vitamin D deficiency is 40% of the industrialized population and a recent study in the Great Britain showed a wopping 60%, beaten only by some areas of Canada at 70%. And B1, B2, B3, B5 and B6.  Deficiencies in these are common in untreated Celiac Disease and they affect energy production. Are You Confused About Your Celiac Disease Lab Results?
    • knitty kitty
      @plumbago, Are you taking any folate with your B12?   Folate helps regulate HDL levels.  You may try taking a methylfolate supplement with your B12.   If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency despite supplementing, resulting in HDL levels not getting regulated, but running high or low.   Pushing the envelope in explanations, too. P. S. Are you taking a B Complex?  Folate and B12 Cobalamine need enzymes made from B6 Pyridoxine's interaction with Thiamine, and B2 Riboflavin's interaction with Thiamine.  Is your Vitamin D low?
    • Nicbent35
      Thank you for all that helpful info, does that mean it’s not a good idea to do what I’m doing? Or since it’s only been a week should I see if I could get her tested now? Would it show up still since it hasn’t been long if they tested her?
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