Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Desperate With Burning Skin

Larry

Recommended Posts

Larry Newbie
Larry
Posted

I am getting a little desperate. I have everyday periods of time when my skin is burning mostly my face and upper body. I am extremely heat intolerant. I have an irritable/sore throat and soreness under both arms. This has been going on for 3 1/2 months. The drs. here (I live in the Netherlands) cannot tell me what is wrong. I was diagnosed with IBS 12 years ago. I never had nor do I have a problem with diarrhea. I am occasionally constipated and frequently have gas and bloating.

The drs here can't tell me what is wrong. The ideas so far are: Its a nervous condition, I have a food allergy, I have leaky gut syndrome but no one is offering tests or solutions.

Have any of you had burning skin and heat intolerance as a symptom of your gluten intolerance.

Any ideas would be greatly appreciated

Larry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Hi Larry and welcome to this board. Well, I've had burning skin, but it wasn't only from the celiac disease, I have other food intolerances, too.

You don't have to have diarrhea to have celiac disease, though. IBS is one of those garbage diagnosis the doctor gives you when he doesn't have a clue what's wrong with you, and is too lazy to figure it out. There is a reason for your bowel to be irritated. Leaky gut syndrome is also caused by something, and celiac disease always results in leaky gut!

Why don't you try going gluten-free and see if it helps? It could very well help your intestinal problems. But you might have other intolerances as well.

I would start with eliminating the gluten and dairy, and then go from there.

With me, the salicylates were the culprit when it came to the burning skin, and the sore throat was caused by lectins (gluten is one of them). The soreness under your arms could be swollen lymph nodes (which I had as well).

Follow the links in my signature to find out more.

mamaw Community Regular
mamaw
Posted

Rosacea can also cause a burning , scalded look & feel to the skin.I know before going gluten-free my rosacea felt & looked like I had been scalded.And anything could stir this demon up for me! Having just a normal conversation one minute , then bang my upper torso was on fire......

mamaw

Rachel--24 Collaborator
Rachel--24
Posted

I get burning on my face, shoulders, and upper back. I dont know if I get it from gluten ingestion....for me its mainly from MSG and Sulfites. It also causes IBS symptoms, tissue swelling in my upper body and a bunch of other symptoms. Alot of aching in my shoulders and my whole upper body. The burning happens on my tongue too. Not fun at all. Oh yeah...I get the aching under my arms too....its swollen lymph nodes.

Larry Newbie
Larry
Posted
  • Author

Thanks to everyone for your input. Ursula, thanks for the info and the links. It is 29 degrees C here (84 F) and I am so heat intolerant. I feel as if I am burning up. Does anyone also have such extreme heat intolerance as a result of gluten or other intolerances? In the past I have always loved summer and enjoyed the heat.

Larry

jnifred Explorer
jnifred
Posted

I used to be more heat intolerant like that. It seems better for me now though. High humidity and heat still get to me, but moving from Houston helped with the humidity issues.

When I was pregnant with my last baby I developed a rash similar to the one you are describing. It covered my ear, side of my face, neck, shoulders and upper arm. I couldn't stand to have anything touching it and this was in the late fall in Wisconsin. I was wearing a strappy tank top and no coat at 5-6 months pregnant because it hurt so badly to have anything touch.

Derm and my rhuem couldn't figure it out. It eventually went away after spending aboout $100 on various creams and ointments. None of whihc helped all that much. Ice packs proabably helped more, except then it was soooooo dry. I used a spray on cream (Eucerin) and kept myself slathered up with that.

Sorry i can't help anymore than that. Mine only lasted about 4 weeks. Good luck, I hope it goes away soon

  • 5 years later...
Albion Rookie
Albion
Posted

I am getting a little desperate. I have everyday periods of time when my skin is burning mostly my face and upper body. I am extremely heat intolerant. I have an irritable/sore throat and soreness under both arms. This has been going on for 3 1/2 months. The drs. here (I live in the Netherlands) cannot tell me what is wrong. I was diagnosed with IBS 12 years ago. I never had nor do I have a problem with diarrhea. I am occasionally constipated and frequently have gas and bloating.

The drs here can't tell me what is wrong. The ideas so far are: Its a nervous condition, I have a food allergy, I have leaky gut syndrome but no one is offering tests or solutions.

Have any of you had burning skin and heat intolerance as a symptom of your gluten intolerance.

Any ideas would be greatly appreciated

Larry

Hi Larry,

The skin burning was my primary symptom of Celiacs! It burned for me, just as for you, on my head, face and scalp mostly. The pain was unbearable. I once went to the emergency room for the agony (my first and only trip) because I knew that type of pain meant something very serious. I think presenting with burning rather than itching skin is why diagnosis took so long. Had I presented with hives or itching that might have been more in line with a traditional food allergy. My GP offered only to give me anti-depressants and did not express any curiosity about why my hair was falling out and my whole body sometimes felt like it was on fire, why I had so many gastric symptoms and why, at the time, I was bleeding rectally. Even when I scratched an itch, my skin felt like it was sunburned.

I have been gluten/casein/dairy/soy free for a few days now and the symptoms are moderating. With my naturopath's permission, I am taking an allergen free supplement to help heal my intestines and give my hair some vitamins!

Please keep heart! I am so glad you reached out! I believe my symptoms will slowly subside once my healing has some real traction.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
Sandra Lee Newbie
Sandra Lee
Posted

I have had burning skin for over a year now. It started out on my feet and progressed to my legs and then all over. I have discoid lupus so the doctor thought it turned systemic in my skin. I have red cheeks as well. I started to notice when i would eat i would burn. So,now i have cut out the gluten, for three weeks. It feels a little better, but still there.

I can't tolerate heat or the sun either.I think it may be a combo of my lupus and celiac. I go back to the doc on the 5th of Dec.

Can they test you for celiac?

When he first did my blood work, my glycoprotien was elevated. If you look that up they talk about the gluten and celiac.

I am sick of feeling this way!!

AVR1962 Collaborator
AVR1962
Posted

I had an incident like you are describing with burning skin from using an herbal supplement with kelp.

lizzy59 Newbie
lizzy59
Posted

Hi, Larry...sorry you're having so many problems.

I can't help with the skin burning part of your question, as I've never experienced that, but the heat intolerance could be a sign of Grave's disease, which is an over-active thyroid. (It's an autoimmune disease like celiac, rheumatoid arthritis, MS, asthma, and many others.) It can be detected by a blood test, so maybe you'd want to do that to rule it out.

Regardless, I hope you find some help!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,085
    • Most Online (within 30 mins)
      10,442
    ThomasA55
    Newest Member
    ThomasA55
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...