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- trents replied to Lburnett's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Labs
Welcome to the forum, @Lburnett! Have you been officially diagnosed with celiac disease? I'm just trying to get a handle on the health context from which your question comes. -
- Lburnett posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Labs
Hi there. I was wondering if anyone has experience elevated phosphorus levels? mine are moderately elevated with an elevated BUN also. My total urine protein is flagged as low which I thought was odd. (usually flags if there's high levels). Anyone have any idea what causes this or has had these levels? Thanks! -
- Scott Adams replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Waiting on Blood test results…
It looks like they will now order the Tissue Transglutaminase IgA Antibody test, but verify this with your doctor. -
- trents replied to Beck1430's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Reaction to gluten or gastro bug?
I think you know enough to conclude that your son either has celiac disease or NCGS (Non Celiac Gluten Sensitivity). As soon as you removed gluten from his diet his stools firmed up. It is also very common for celiacs to be intolerant of dairy and soy, so that is another piece of corroborating evidence. If I were you, I would consider getting your sone genetically... -
- cristiana replied to Beck1430's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Reaction to gluten or gastro bug?
Hello @Beck1430 and welcome to the Forum. I am sorry your little boy is going through this. Your question is an interesting one. I would say the majority of posts I have read since joining this forum speak of a fairly quick reaction, and that has been my own experience. The only major gluten hit I've had in more recent times resulted in chills...- 1
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Hi there. I was wondering if anyone has experience elevated phosphorus levels? mine are moderately elevated with an elevated BUN also. My total urine protein is flagged as low which I thought was odd. (usually flags if there's high levels). Anyone have any idea what causes this or has had these levels? Thanks!
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By Scott Adams · Posted
It looks like they will now order the Tissue Transglutaminase IgA Antibody test, but verify this with your doctor. -
I think you know enough to conclude that your son either has celiac disease or NCGS (Non Celiac Gluten Sensitivity). As soon as you removed gluten from his diet his stools firmed up. It is also very common for celiacs to be intolerant of dairy and soy, so that is another piece of corroborating evidence. If I were you, I would consider getting your sone genetically tested for the genes we know are associated with celiac disease. There are two main genes looked for, HLADQ2 and HLADQ8. Having either or both provides the potential for developing celiac disease. But since about 40% of the general population have one or both of the genes it cannot be used to diagnose celiac disease. But it can be used as a rule out measure if both are absent, thus pointing one in the direction of NCGS. If one or both are present, there is the possibility of either celiac or NCGS. NCGS is 10x more common than celiac disease by the way. The two conditions share many common symptoms. The difference being that NCGS does not damage the lining of the small bowel as does celiac disease. Celiac disease is actually an autoimmune disorder. At any rate, both conditions require a gluten free diet so, at the end of the day, that is the antidote for both. Some experts feel that NCGS can be a precursor to the development of celiac disease. I would also make mention of the fact that once gluten is removed from the diet and then added back in for the gluten challenge, reactions are often more violent as all tolerance has been lost.
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Hello @Beck1430 and welcome to the Forum. I am sorry your little boy is going through this. Your question is an interesting one. I would say the majority of posts I have read since joining this forum speak of a fairly quick reaction, and that has been my own experience. The only major gluten hit I've had in more recent times resulted in chills, dizziness and vomiting about 2-3 hours after eating gluten. It was truly horrible. The fact that I vomited was new for me - I didn't get diarrhea which had been my classic reaction in the past. It was as if in going totally gluten free my body has decided to react more violently to gluten, and quite differently. Reactions can change over time - the fact that your son is reacting differently doesn't necessarily mean that gluten isn't the culprit. Anyway, this study is interesting in that it states that it is possible to react 12 hours later. https://www.schaer.com/en-us/a/how-long-after-eating-gluten-do-symptoms-start#:~:text=A survey published in Alimentary,by 12 hours or more. I am afraid the only way you will probably know for sure is to repeat the challenge again, but I can completely understand your reluctance to do that. I wonder if I can ask a couple of questions: Regarding the rash - has that also subsided since giving up gluten? There are quite a lot of photos of dermatitis herpetiformis to see online, I wonder if you think what your son had/has was similar? Also, do you have coeliac disease in the family? It is inherited and if you have others in the family, that could point more strongly to your son having coeliac disease. Cristiana
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