Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

Judyin Philly

Cnn Special On Celiac Tomorrow ?

Recommended Posts

HI ALL

JUST GOT THIS ALERT ON GOOGLE..

Quote:

Here is advance notice that CNN will be doing a live television broadcast on celiac disease this coming Monday:

CNN Newsroom with Heide Collins

Monday, November 13

11:30 am EST

ANYONE KNOW ANYTHING ABOUT IT?

HOPE IT'S TRUE

JUDY


Judy in Southern CA

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Wow Judy--thanks for letting us know--I'll be watching. (Gotta write myself a note....) :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

Share this post


Link to post
Share on other sites

Thanks Judy!

E-mail me a reminder - I don't want to miss it!

Hugs.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

Share this post


Link to post
Share on other sites

That's great! Gonna set the DVR :)

Judy, how do you have your Google Alerts set so that you received this? I just started Google Alerts today, and I think I set it for keyword: Celiac, and "news" as the media I am interested in.

Thanks for the info!

Share this post


Link to post
Share on other sites

YOU KNOW--I HONESTLY CAN'T REMEMBER HOW I DID IT!!!

celiac3270 TAUGHT ME THE FIRST TIME AND JEN VAN DID IT FOR ME THE LAST TIME MY EMAIL CHANGED.

MAYBE SOME ONE KNOWS HOW IT WORKS.

SORRY

JUDY


Judy in Southern CA

Share this post


Link to post
Share on other sites

They just mentioned it on CNN! They will be having an expose on Celiac Disease this morning!!!!

They just said that they want people to e-mail their questions now to cnn regarding celiac disease!! They also said they will be talking to a leading doctor in celiac disease!

Can't wait!

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

Share this post


Link to post
Share on other sites

cnnnewsroom@cnn.com

They said that's where you send your questions too...... if anyone is interested.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

Share this post


Link to post
Share on other sites
Guest nini
cnnnewsroom@cnn.com

They said that's where you send your questions too...... if anyone is interested.

Karen

but I already know it all... why would I need to ask any questions??? LOL!!!! ;)

Share this post


Link to post
Share on other sites

:lol: Nini--you're funny! I'll bet we could contribute a thing or two B)

I'm so excited about this--I set the TIVO, but of course plan to watch it live.

It's still 11:30--right Karen?


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

Share this post


Link to post
Share on other sites
Guest nini
:lol: Nini--you're funny! I'll bet we could contribute a thing or two B)

I'm so excited about this--I set the TIVO, but of course plan to watch it live.

I've got the vcr set to record it... Hubby said I should e-mail them and ask about the conspiracy theory of since all wheat is technically genetically modified and the Catholic church only accepts wheat in the host, is the Catholic church behind keeping Celiac under wraps??? LOL...

I told him, uh no... that's just silly...

Share this post


Link to post
Share on other sites

:( I have a funny feeling that it's going to get bumped :(

at least at the 11:30 seg.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Share this post


Link to post
Share on other sites
:( I have a funny feeling that it's going to get bumped :(

at least at the 11:30 seg.

Just heard a bleep, and very glad to be wrong. :D


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Share this post


Link to post
Share on other sites

Awesome! She stated she has celiac disease! Finally, we have someone coming out to say they have it! Hurray!

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

Share this post


Link to post
Share on other sites

I thought they did a pretty good job - I'm happy the CNN news anchor has Celiac!

(Not happy that she has it, but happy that someone in the media spotlight came forward and talked about their own experiences!)


Courtney - 25

Columbia, SC

Gluten-free since July 8, 2006

Casein-free since October 16, 2006

Went six weeks, and fell back into a deliciously painful world of cheese.

Casein-free (again and for serious this time) December 11, 2006

Stupid cheese addiction....2/07

Dx Hypothyroid in 1993

Dx Gluten & Casein Sensitive through Enterolab 10/06

Dx Adrenal *Exhaustion* 2/07

Originally from WI, I am still in denial over my newfound casein intolerance. I fear I will not be allowed back into the state if I can no longer eat cheese and drink milk. This could pose some trouble over holidays when I wish to visit my family. It also poses a problem involving the severe rage I feel when I have to throw away somebody's unfinished cheese sticks. That is so wrong.

Share this post


Link to post
Share on other sites

That was great!!! My husband just happens to be home today, and he thought so, too.

I love how Heidi said that now they will scream it out so people will know about this. Wow :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

Share this post


Link to post
Share on other sites

just watched and it was good. sounds like she might be doing more on this since she has it herself.

wish they'd addressed the 'over-weight' w/ celiac part.

Lisa, were there to be additional segments you know about?

judy


Judy in Southern CA

Share this post


Link to post
Share on other sites

I do think the picture of the third world child was dramatically unnecessary...I wish they'd focused more on all the different symptoms and how they manifest themselves. But I'm glad they talked about misdiagnosis and how slack this country's physicians are.

Skipping class today was totally worth it to hear about Celiacs on a major news network! :P


Courtney - 25

Columbia, SC

Gluten-free since July 8, 2006

Casein-free since October 16, 2006

Went six weeks, and fell back into a deliciously painful world of cheese.

Casein-free (again and for serious this time) December 11, 2006

Stupid cheese addiction....2/07

Dx Hypothyroid in 1993

Dx Gluten & Casein Sensitive through Enterolab 10/06

Dx Adrenal *Exhaustion* 2/07

Originally from WI, I am still in denial over my newfound casein intolerance. I fear I will not be allowed back into the state if I can no longer eat cheese and drink milk. This could pose some trouble over holidays when I wish to visit my family. It also poses a problem involving the severe rage I feel when I have to throw away somebody's unfinished cheese sticks. That is so wrong.

Share this post


Link to post
Share on other sites

This was a very refreshing experience. It seemed to me that Heide and her physician are determined to bring this to the public's attention (and keep it there!). I was so gratified that he had the statistics about how many of us are misdiagnosed (and for so many years!). It was also important that they focussed on the damage that can be done by not being compliant. Bravo to CNN!

Share this post


Link to post
Share on other sites
Guest nini

It was good, any publicity is good, but Peter Green is one that still sticks to the biopsy as gold standard, AND he stated equivocally that if you get hives from gluten you can't have Celiac, that is just not true. Also, I wish they had done more about the obesity aspect.

Share this post


Link to post
Share on other sites

Wow!!! The only thing I didn't like was Dr. Green saying it was the gluten-free diet was difficult. I don't think it is at all, as long as you eat at home. I guess it might be different for someone like the anchorwoman, who I"m sure was used to eating out quite a lot.

Maybe we can get her to do a segment in the future on all the yummy gluten-free foods out there.

Other than that, I thought it was amazing.

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

Share this post


Link to post
Share on other sites
just watched and it was good. sounds like she might be doing more on this since she has it herself.

wish they'd addressed the 'over-weight' w/ celiac part.

Lisa, were there to be additional segments you know about?

judy

Don't think so Judy, I just thought it might get bumped for this live news conference.

L


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Share this post


Link to post
Share on other sites