Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mozart And The Whale


2kids4me

Recommended Posts

2kids4me Contributor
Do you think that it would be a good idea to have him watch this movie? Is it the kind of thing that he would identify with and maybe say, "Ah hah" at?

It depends on the perosn, Kathryn knows all about Aspergers, it helped all of understand and be able to help her. She watched the movie with me (she is 14 yr), and she identified with some parts and not with others...it helped me see the depth of her empathy to the group and her lonliness at times - because at 14, she does not have friends - she has people that arent mean to her (that is her definition of friends)...

but she did not make faces or say "theyr'e weird" when characters portrayed severe autistic behavior, she saw beyond the surface and was quite interested in ecah one.

I say, put in on, dont ask him to watch it ..but have it on when he is home...is he is intrigued or identifies with it..he will make his way over and watch...

Sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 81
  • Created
  • Last Reply
Creative-Soul Newbie
As for repeating words or sentences - my daughter does that when she is excited or if she is anxious. If she is interupted, she has to start back at the beginning of the thought sequence.

Time is an abstract concept - I phrase things differently for Kathryn - she too would have looked at me blankly if I asked her how many hours she worked...but, if I asked her what time she started and what time she finshed, she may have been able to tell me. Abstract concepts can be difficult for some.

Kathryn has visual processing issues as well...

Sandy

Now I don't feel like an alien... (the repeating and) the time/ hours thing is so true for me. If you ask me how many hours I did something, I couldn't tell you, but I could tell you when I began and stopped... **major lightbulb moment here!!**

But I have learned to force myself to look into people's eyes when talking to them. Unfortunately, it often comes off as a stare, that makes people uncomfortable. Other times I start feeling very confused when looking into people's eyes, and feel flustered, because I am not sure 'how you're really supposed to do it'. I have never been able to figure out how exactly you're supposed to make eye contact, and for how long......what the 'right' way is.

There are times I am doubting that I am doing it right, and can't do it at all.

I also learn best by doing. It is so much easier for me to have somebody actually physically show me and walk me through the motions of something I do for the first time.

Ursa Major,

I've always felt that way as well. Actually, I usually always have doubts that I am doing most things right, and second-guess myself all the time. It doesn't exactly make for a peacful mind - I'm always so tense that's its a relief when I'm all alone and don't have to deal with people. Communicating is so hard, even e-mailing someone or posting here! I came on the thread earlier, but had to log off and come back a couple hours later because the thought of posting had me too agitated...

I have to have some thing shown to me AND I have to take really detailed notes of the process or I get completely frazzled...

About the eye contact--they (or you) (or we) only need to make enough eye contact so that the other person is reassured that you are paying attention, both to the spoken language and to the visual language (body language and especially facial expression), which sometimes communicates things that can't be easily said with words. Usually, that means occasional fleeting meeting of the eyes is enough to send messages both ways. The rest of the time, focusing somewhere NEAR the person's face is good. Lookng at chin, nose, ears, or forehead (great suggestion, Ursula!) allows you to catch a sudden change in facial expression, and then change focus to the eyes for a moment or two in order to process whatever new information or change in communication there might be.

:blink: Really?! Fiddle-Faddle, thank you so much for sharing that; it makes it much easier to understand...

I don't like to be touched by anyone unless I know them really well. Even then, unless it is my girlfriend, I avoid it as much as possible. Body language is completely alien to me but I have learned enough about it to get by. I could go on and on but it is one more piece of the puzzle falling into place.

Ianm,

The touching thing is a big issue to me as well. While I do in some part want to be touched / hugged by people I trust, on the other hand I hate it :ph34r: because I can't process / get confused about motives (does that make any sense to you?). It seems that I have conflict when it comes to personal space and boundaries because I will either not let you get within three feet of me, or there have been times when someone has gotten totally into my space (a stranger) and done something like touch my face without having my permission - it was totally unexpected - and it took me a week to realise what had happened & to kinda think that maybe it wasn't cool that he did so... :blink:

Most of the time touching / hugging seems like an obligation and that makes me dislike it even more...

Ursa Major Collaborator
Ursa Major, I have read all of your posts about AS and finally took the Aspie Test. My score was 152 out of 200, most likely an aspie. It sure does explain A LOT about my life and the gluten didn't make things any better. Eye contact is extremely difficult and painful for me but I force myself to do it any way. I don't like to be touched by anyone unless I know them really well. Even then, unless it is my girlfriend, I avoid it as much as possible. Body language is completely alien to me but I have learned enough about it to get by. I could go on and on but it is one more piece of the puzzle falling into place.

I am glad you are figuring it out, Ian. It was such a relief to me when I did.

I also don't like being touched. Only good friends are allowed to hug me, but long hugs are out. If somebody doesn't let go of me when I need to get away, I will completely panic and have an anxiety attack.

2kids4me Contributor

the thing about hugs... so normal for us around here...most NT's (relatives) think its odd that I ask my daughter if I can hug her... its second nature now for me. I know she will give me a warm squishy hug if I ask first...if I dont...she says:

"why are you hugging me?"

Most NT's cannot grasp the concept at all, that I do it out of respect for Kathryn. it makes her uncomfortable otherwise, why would a mother (or anyone) want to repeat an action that makes someone uncomfortable?

At church yesterday, Kathryn did the second reading... she usually reads well, but this time she had flat monotone quality to the reading, poor enunciation... I found out after that the priest had touched her on the back saying : "I'm so proud of you, I hear you're reading today"

A lovely gesture that would have boosted the confidence of most children going up to read... unfortunately, not for Kathryn. When she got back to the pew, and I asked her if she was okay, she said" He touched my back and I dont like people touching my back"... so her annoyance impacted how she read....

I talked to the priest and another parishioner and explained, she doesn tlike being touched - to which they chuckled a bit and I know they will do it again...*sigh*

Sandy

Ursa Major Collaborator

Sandy, when somebody out of the blue touches my back, or taps me on the shoulder it is more likely than not that they will get hit, or at least yelled at (a reflex reaction), because it comes through as an attack. If anybody attempts to touch me for any reason, I need to have warning. Many people will ask me if it is okay for them to hug me. And my pastor (who is a friend) and my other friends won't ever touch me if I can't see them (from behind). They all know better. It is a matter of them respecting who I am (now if my husband would remember that, I would be quite impressed).

Rachel--24 Collaborator

I think even NT's can have aversions to touching or giving/getting hugs. Some people just dont feel comfortable with it...I know some people who are like this and then there are others who are more touchy/feely type people naturally.

I probably wouldnt like it too much if a stranger touched my face either. I sometimes dont like it when customers at work get my attention by touching me and I sometimes dont like it when people invade my space. I think it depends alot on my mood and/or how I'm feeling.

I get bothered by things like this much more since I got sick...normally I would consider myself to be more of a "touchy" type person and I dont mind lots of hugs. I find that I'm just irritated easily now and especially when I'm not feeling good. :(

Michi8 Contributor
I think even NT's can have aversions to touching or giving/getting hugs. Some people just dont feel comfortable with it...I know some people who are like this and then there are others who are more touchy/feely type people naturally.

I probably wouldnt like it too much if a stranger touched my face either. I sometimes dont like it when customers at work get my attention by touching me and I sometimes dont like it when people invade my space. I think it depends alot on my mood and/or how I'm feeling.

I get bothered by things like this much more since I got sick...normally I would consider myself to be more of a "touchy" type person and I dont mind lots of hugs. I find that I'm just irritated easily now and especially when I'm not feeling good. :(

Some people are just naturally more "touchy" than others. I've had to learn to be more accepting and giving of touch...I've found it much easier since having kids. But there are times when touch just plain annoys me...like when I sleep...I hate having my space crowded/invaded when I'm sleeping (except for sleeping with my kids when they were babies :) .) I also hate having the kids climbing all over me when I've had a day of sensory overload.

My middle child is like this as well. There are times when he enjoys being cuddled, and then there are times when he recoiles from touch...it really depends on how much over-stimulation he has experienced during the day (he is a truly highly sensitive child...touch, taste, smell, etc.) He also needs some days that have absolutely nothing planned so that he can completely decompress from all the stress of his week.

Michelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast
I've been following this thread with much interest. While I don't believe that I or my children possess the criteria for Asperger's (and this has been confirmed through our psychologist), I know that we are all very sensitive. I like the term "HSP" (Highly Sensitive Person) to describe our personalities/traits. I've found a lot rang true in the books, The Highly Sensitive Person and The Highly Sensitive Child by Elaine Aron, PhD.

She has a website here: Open Original Shared Link There are few other websites that address this as well.

Michelle :)

Hey thanks for posting that. I clicked on your link out of curiosity and woah...I definitely think I'm an HSP. I've actually never heard of it before, but I scored pretty high on the self test :lol: I googled it for more info and it's really interesting. I'll have to read the book.

2kids4me Contributor
I think even NT's can have aversions to touching or giving/getting hugs. Some people just dont feel comfortable with it...I know some people who are like this and then there are others who are more touchy/feely type people naturally.

I agree but how many children recoil from a parent hugging them, and have to be asked first? Its more pronounced than an uncomfortable feeling. I have never taken it personally, its the way Kathryn is and I get these wonderful beautiful hugs - when I ask. Also Kathryn, when she was younger got angry and I mean perturbed because I always said " I love you " when I tucked her in at night. She finally said "why do you keep saying that?!!I know that already!! In her world - I told her, she knows, why repeat it?

I had to explain why someone would repeat that they love someone and why - and then she "got it" . She was 4 or 5 before she shyly repeated back to me "love you too" and then she asked me if she did it right. That's one of the differences between Aspergers and NT.

How many children ask if they did it right when they say that?

I understand why Kathryn doesnt like to be touched and I DON"T understand why people keep touching her without asking - after I explain things

Sandy

Rachel--24 Collaborator
That's one of the differences between Aspergers and NT.

How many children ask if they did it right when they say that?

Thanks for all your explanations Sandy. :)

I understand why Kathryn doesnt like to be touched and I DON"T understand why people keep touching her without asking - after I explain things

I dont know why people would ignore this after having it explained to them :( ....is it possible they forget because it just comes natural for them to be "touchy"?? Maybe they need to be reminded. :rolleyes:

2kids4me Contributor
Maybe they need to be reminded.

sigh, I do remind them... I think it is because she is a child - they chuckle .....they nod like they heard me .....and then on the way out, they figure its just a matter of "getting her used to it".. and I should expose her to more "opportunity" to greet new people.

I have even been told that she responds that way because " I allow it".

Just like there are people who will never "get" celiac disease...its even harder for them to comprehend Aspergers...especially when extended family members say: "How can anything be wrong, she looks so normal"

sandy

Rachel--24 Collaborator
Just like there are people who will never "get" celiac disease...its even harder for them to comprehend Aspergers...especially when extended family members say: "How can anything be wrong, she looks so normal"

Sandy,

You may not be able to change this way of thinking...some people just never "get it". Its unfortunate. :(

It sounds to me like your daughter couldnt have a better mommy though. You understand her and you know what she needs and you know how to make her feel safe and loved.

It may not be so easy to convince everyone else that this is what she needs...but hopefully some of them will see how she responds to you.....see that its a positive thing and maybe they will eventually "get it".

It would be nice if people would just listen though.....afterall, noone can know her better than you can. To me it seems like you are very in-tuned to what she needs. She's lucky to have you looking out for her. :)

2kids4me Contributor

Thanks Rachel :):):)

She's a pretty neat kid!

Sandy

  • 3 weeks later...
jayhawkmom Enthusiast

After contemplating this thread, and observing my child, talking with others who have observed him - and dealing with a MAJOR episode that lasted over 4 hours - I took matters into my own hands. I collected all of my son's medical records, all testing results, all previous evaluations, and I started making phone calls.

Yesterday my son was finally diagnosed with Asperger's.

On one hand, I feel extreme relief. We have a psychologist who can and will help us to help him.

On the other hand... I feel like my heart was ripped out.

Michi8 Contributor
After contemplating this thread, and observing my child, talking with others who have observed him - and dealing with a MAJOR episode that lasted over 4 hours - I took matters into my own hands. I collected all of my son's medical records, all testing results, all previous evaluations, and I started making phone calls.

Yesterday my son was finally diagnosed with Asperger's.

On one hand, I feel extreme relief. We have a psychologist who can and will help us to help him.

On the other hand... I feel like my heart was ripped out.

I'm sorry, jayhawkmom, but I am glad to hear that you have a diagnosis that you can work with/through, it must have been difficult not knowing what was going on with your son.

I don't know if you are aware, but there was recent news that scientists have pinpointed a genetic link to autism and asperger's. There are many articles about it...this is the news story that was run by CBC: Open Original Shared Link

I hope that this means greater strides will be made in treatment and therapy for autism spectrum disorders. Perhaps the next discovery will be what triggers the gene(s) to become active.

Hugs,

Michelle

2kids4me Contributor
Yesterday my son was finally diagnosed with Asperger's.

On one hand, I feel extreme relief. We have a psychologist who can and will help us to help him.

On the other hand... I feel like my heart was ripped out.

{{{{ HUGS}}}}

I know how you feel! When Kathryn was finally diganosed after years of testing and not knowing how to help her....I cried with relief because it validated all that I saw, and confirmed I was not an ineffective parent with a difficult child.......my tears were also for Kathryn, knowing the road ahead would be a more difficult journey than I imagined.

You will have to advocate for your son in the school system..with the diagnosis of Aspergers he should be coded for a teachers aide - even if its not full time...someone should be knowledgable at school and be able to work with you and the psychologist to develop strategies for success. The cloud will lift and there will come a time when you will see his strengths that come from Aspergers, his unique perspective and ability to think "outside the box". Some of the greatest minds in our century had/have Aspergers or an autistic spectrum disorder.

Even with understanding Aspergers - you will still become frustrated as any other parent and throw your hands up some days. Hang in there! :)

Sandy

Fiddle-Faddle Community Regular

jayhawkmom, I know pretty much how you feel. My oldest was diagnosed with Asperger's about 8 years ago.

There is an enormous amount of help available for you. Ultimately, though, YOU know your son better than anyone. You know how he thinks, how he feels, what makes him tick, and what sets him off. YOU will make the biggest difference in his life (and you probably already have).

I tend to disagree with most of the "experts," most of whom have never LIVED with Asperger's. I think that the parents' job (usuing whatever help you can get, be it official "experts" or mainstream activities such as martial arts, music lessons, and drama club) is to teach the child how to translate from how HE understands the world to how everyone else does. I don't believe he needs to change how he thinks and feels; he just needs to understand that most people will think, feel, and process things differently from him. He needs to be able to learn that as though he were learning a foreign language/culture, and to be prepared to live in this culture that may feel--at first--quite foreign to him.

I looked at the link that Michelle posted. I think it is very interesting that they consider 7-8% enough to say that they have found genetic links--whereas the 15% of the population who is KNOWN to react to mercury is not considered enough to be a link with the mercury in vaccines? And Andrew Wakefield's study, which showed something like 24 out of 25 autistic kids with "IBS" (okay, we can be fairly sure it was celiac) having the MMR vaccine still in the lining of their gut years after they received the vaccine, (and NONE of the control group of non-autistic kids had it, though they all had been vaccinated)--that wasn't enough for the medical community to call it a link either?

I'm sorry, I'm still not buying what the medical community has to offer. They are grasping at anything and everything EXCEPT vaccines; they downplay the studies that show a link, and they taint the studies that purport to show no links.

Sorry, jayhawkmom, didn't mean to hijack here.

Fiddle-Faddle Community Regular

I just wanted to add--there are a number of adults on this board with Asperger's and/or "shadows of Asperger's" who might be able to add a lot of insight into what works for them. Add that to what insights all the parents have to offer, and you will be off and running!

2kids4me Contributor
I'm sorry, I'm still not buying what the medical community has to offer. They are grasping at anything and everything EXCEPT vaccines; they downplay the studies that show a link, and they taint the studies that purport to show no links.

I have read some studies and am no expert - all I know is that Kathryn showed signs before any vaccines were administered. I think with nay of these issues - autoimmune, cancer, autism...they will find that there are multiple things that can trigger illness or disorders...from environmental mold to viruses to vaccine. the commonality between mold, viruses, bacteria and vaccines is they all stimulate the immune system....maybe they should be looking in a more general way - how does a stimulated immune system affect gene expression?

Just my rambling thoughts on a Saturday morning.

Sandy

Fiddle-Faddle Community Regular
I have read some studies and am no expert - all I know is that Kathryn showed signs before any vaccines were administered. I think with nay of these issues - autoimmune, cancer, autism...they will find that there are multiple things that can trigger illness or disorders...from environmental mold to viruses to vaccine. the commonality between mold, viruses, bacteria and vaccines is they all stimulate the immune system....maybe they should be looking in a more general way - how does a stimulated immune system affect gene expression?

Just my rambling thoughts on a Saturday morning.

Sandy

Good point!

How did you manage to keep her unvaccinated before symptoms showed up? My older two received their first vaccines in the hospital 4 hours after birth--we were told that that had been the standard for years.

jayhawkmom Enthusiast

I sincerely appreciate the words of support. I feel empowered to have validation, but at the same time... I feel weakness because now my child has been officially labels as Autistic.

The psychologist we are working with immediately made me feel at home in his office. He also commended me for going the extra mile for my child. Josh has absolutely no problems/issues in the classroom at all. In fact, he's a model student. However, once you remove him from the structure and security of the classroom, he's a mess. Dr. L said that many times non-atypical aspies aren't identified until middle school years, when they *really* start to fall apart due to the change in routine, going from one class to the other, feeling rushed, pressure from peers... etc. He was glad that we didn't use his teacher's comments as an excuse to wait longer before seeking help and guidance.

Honestly, I've believed for years that my husband is also an Aspie. (He believes that too) Genetics, immunizations... who knows. What I do know is that I thought I knew a lot about this issue. But, now that I'm reading more and more, I realize I don't know as much as I need to.

Maybe we should have a thread for Aspies and Aspie parents (and those on the spectrum) so we can help each other out. I seriously know that I'm going to need it - and I'm pretty antisocial myself, so "talking" with others online comes MUCH easier than talking to people face to face.

One of my biggest fears is telling my parents. My mother will get all sympathetic and will oohhhh and ahhhhh over it. My father will become angry and tell me that all this "stuff" is in my head. My sister will assume I'm trying to get "more attention" for myself through my children. They've commented for years on what an "odd little duck" my son is, and yet - they will not be supportive in the least. Thankfully, they are 900 miles away. I may just refrain from discussion until after we have been in therapy for a while.... and have made definite and obvious strides toward taming the meltdowns and helping the poor guys self esteem.

*sigh*

On a positive note... he has his Blue & Gold Cubscout banquet this evening... and is being awarded his "bear badge" after much hard work and perseverance. He's 3 months ahead of the game, with regards to the rest of his cohorts. =) I just hope the noise in the dining hall - with 100+ people - doesn't cause us to have to leave earl.

Creative-Soul Newbie

Jayhawkmom,

Isn't this a wonderful board / thread?

I'm glad that you were proactive in getting your son re-evaluated and that you've finally gotten a definite answer; I take my hat off to you awesome parents, as my Mom never did that for me! So, here I am, all grown and trying to do that for myself, now. At least with a diagnosis you can now forge ahead with getting him all of the help / tools that he needs - and the family as a whole as well!

I wish you all the best...

Creative-Soul Newbie
Dr. L said that many times non-atypical aspies aren't identified until middle school years, when they *really* start to fall apart due to the change in routine, going from one class to the other, feeling rushed, pressure from peers... etc. He was glad that we didn't use his teacher's comments as an excuse to wait longer before seeking help and guidance.

Maybe we should have a thread for Aspies and Aspie parents (and those on the spectrum) so we can help each other out. I seriously know that I'm going to need it - and I'm pretty antisocial myself, so "talking" with others online comes MUCH easier than talking to people face to face.

I had to come back after reading your post again, especially after seeing the comment the doctor made; he is SO right! I had my first breakdown at the age of seventeen while I was preparing to take my "A" Levels ( comparable thing here in the States - the SATs, I guess). I totally fell apart for about a good year or so, and still haven't fully recovered from it! Shoot, I'M glad that you didn't depend on his teacher's comments either, as mine would have told you all about my straight A's and being scholarship material...

Michi8 Contributor
Good point!

How did you manage to keep her unvaccinated before symptoms showed up? My older two received their first vaccines in the hospital 4 hours after birth--we were told that that had been the standard for years.

A parent has the right to say no. The choice to go against common public beliefs and propaganda and not vaccinate can be tough. I vaccinated my first son (starting at 2 months) completely on schedule. Then started vaccinating my second son, but chose to stop. Given his quirks and personality, I became concerned that vaccination could be a culprit and didn't want to subject him to any more shots. My third child has not been vaccinated at all, and will not be until she is old enough to make an informed decision for herself. I won't be vaccinating the boys again either.

I've found that the toughest thing with it is to stand my ground when letting the school know they aren't vaccinated. I will not accept pressure from anyone to change my mind. I was very thankful & surprised that the public health nurse was receptive to our choice to not vaccinate and was gracious about putting us on the "do not call" list. We are fortunate, too, that we don't need to have an official reason (religious or otherwise) for declining to vaccinate.

Michelle

jayhawkmom Enthusiast

Michi - we are on a selective and delayed schedule with our middle and youngest child. I had no idea, when my oldest was little, that I could say NO to vaccinations. I learned quickly, however, after my daughter severely reacted to the DTaP. It's always difficult when medical professionals ask whether or not immunizations are up to date. There are very real reasons why we have chosen to do it the way we have, and thankfully.... we have a pediatrician who is very nonjudgmental and very supportive of his patients parents and their decisions.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,877
    • Most Online (within 30 mins)
      7,748

    Sasha bul
    Newest Member
    Sasha bul
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      @Mynx, how long have you been gluten-free? I ask because many newly diagnosed celiacs react to many things, and often think their reactions are caused by gluten, when in fact, they are really caused by a combination of a sensitive gut due to damage, as well as additional food intolerance/leaky gut issues to other foods which may be temporary until their villi heal.
    • Scott Adams
      Many major brands of distilled vinegar in the USA, including Heinz white vinegar, are typically made from corn. In the United States, corn is a common and cost-effective raw material used in the production of distilled white vinegar. The process involves fermenting the sugars derived from corn into alcohol, which is then further fermented into acetic acid to produce vinegar. Distillation follows, which purifies the liquid and removes impurities, including any residual proteins or allergens. While the source of the vinegar (e.g., corn) is not always explicitly stated on the label, corn-derived vinegar is widely used in the food industry due to its neutral flavor and affordability. For individuals with gluten intolerance or celiac disease, distilled vinegar made from corn is generally considered safe, as the distillation process effectively removes gluten proteins. However, if you have concerns about cross-contamination or specific sensitivities, it’s always a good idea to contact the manufacturer directly to confirm the sourcing and production practices. Heinz, for example, has stated that their distilled white vinegar is gluten-free and safe for those with celiac disease, but verifying this information can provide additional peace of mind. The belief that distilled vinegar is gluten-free is rooted in the scientific understanding that gluten proteins, which are large and complex molecules, are generally too big to pass through the distillation process. Distillation involves heating a liquid to create vapor, which is then condensed back into a liquid form, leaving behind larger molecules like gluten proteins. However, the concern about cross-contamination arises from the possibility that gluten-containing ingredients may have been present in the liquid prior to distillation. While the distillation process itself is highly effective at removing gluten, the equipment used in production could potentially introduce trace amounts of gluten if not thoroughly cleaned between batches. For most individuals with gluten sensitivity or celiac disease, distilled vinegar is considered safe because the gluten content, if any, is typically below the threshold that would trigger a reaction. However, for those with extreme gluten intolerance or celiac disease, even trace amounts can cause adverse effects. This is why some individuals, like yourself, may choose to avoid commercially produced distilled vinegar and opt for alternatives like apple cider vinegar, which can be verified as gluten-free. The meticulous process of researching ingredients and preparing homemade products, such as ketchup, is indeed challenging but crucial for maintaining health and avoiding gluten exposure. It’s important to note that regulatory standards for gluten-free labeling vary by region, and in many places, products labeled "gluten-free" must contain less than 20 parts per million (ppm) of gluten, which is considered safe for the vast majority of people with celiac disease. Nonetheless, individual sensitivity levels can vary, and your approach highlights the importance of personalized dietary management for those with severe gluten intolerance.
    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
×
×
  • Create New...