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Hi,

I have been gluten free since April and have convinced 2 doctors that I either have non-antibody producing Celiac (which runs in my family) or gluten intolerance and feel great!!

This past week I have been feeling sluggish, gassy, fatigued, and bloated. I know I am not feeling gluten because I am not having C or brain fog, but I still feel yucky. The only thing that was different about this week is that I had a ton of milk (milk with dinner, in coffee, on cereal in the morning, in ice cream, in cheese...). Each time after I ate it I felt icky (technical term :P ) about an hour afterwards. Does this sound like a casein issue? I know all signs say it does, but I really love cheese and ice cream!!


Symptoms on and off my whole life

Major symptoms starting 2005

Zero blood antibodies

Gluten free with positive dietary response since April 2007

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Yes, and I'm all about convincing people to go dairy-free....however, in this case, you might have just overdone it. I'd try cutting dairy out completely for a few weeks. You can then slowly reintroduce small amounts of it and see how you do :)


"Let food be thy medicine, and let thy medicine be food." - Hippocrates

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My casein intolerance is all about belching, a sulphur taste/smell, vomintg and diarreah....

It all starts about 2 hours after eating milk and then ends after about 9 hours of hell..


Michael J. MacCartney

gluten-free 2005-June-24 Dairy free 2005-July-26

gluten / casein intolerant

HLA-DQ 2,3 (Subtype 2,7)

Diagnosed Celiac 2006-April-24

Father of:

Michael II HLA-DQ 2,1 (Subtype 2,6) - Allergic to Peanuts, tree nuts, eggs, and milk

William HLA-DQ 2,1 (Subtype 2,5) - Allergy free

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Does casein issues do intestinal damage as gluten does for a celiac? I have asked before and recieved inconclusive answers. Any one know?

Aged cheddar cheese hits me hard! Although, I don't get the brain fog.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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You might have casein intolerance, or you might have a slight lactose intolerance. I feel sick if I eat a ton of dairy (like more than three servings a day) so I try not to eat too much. Sounds like you ate a lot so maybe you'll be able to handle it if you ate less.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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Thanks-- it is the milk. We have figured that much out. I am going off milk for 2 weeks, seeing if it makes me sick, then will stay off until I feel better. I think that it is lactose, not casein (or at least hoping)

Thanks for the suggestions!


Symptoms on and off my whole life

Major symptoms starting 2005

Zero blood antibodies

Gluten free with positive dietary response since April 2007

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When I tested thru Enterolab, I did both the gluten testing and got a bonus one for casein. I tested positive for casein, and the doc from Enterlab said continuing to eat dairy could do just as much damage as eating gluten. I stopped eating gluten, and also eliminated dairy for many months. After that, I've found that I can tolerate small amounts of dairy.....a bit of milk in my cappuccino, a yogurt here and there. But I'm careful not to have too much, and not every day. I always thought it was the lactose that bothered me....perhaps it was lactose AND casein, I don't know. Certain things bother me more than others....the worse are milk and ice cream.


CAROLE

-------------

Enterolab 1/2006

IgA & tTg Positive

DQ2-0201 (celiac) and DQ1-0604 (gluten)

Casein IgA positive

Mom has 2 celiac genes

Both kids have a celiac gene.

Lots of celiac disease in my family, both sides.

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