Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Endoscopy Result Q's

SGWhiskers

Recommended Posts

SGWhiskers Collaborator
SGWhiskers
Posted

I had my endoscopy in August. There is no question that I have Celiac and have been following a gluten free diet for 5 weeks with slight improvement. I have a couple of questions for veterans of the endoscopy process.

The results of the biopsy are a bit vague for my liking. "Duodenum, biopsies: Fully developed Sprue-like changes." Does anyone know what this means?

Also, the endoscopy noted "nodularity" among other things. What is the significance of nodularity in relation to celiac?

Hope all of you are recovering well and thanks for the input.

SGWhiskers

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

SG, you mention nodularity "among other things"...what other types of things were listed?

Here is some information on biopsies/Celiac:

Open Original Shared Link

SGWhiskers Collaborator
SGWhiskers
Posted
  • Author
SG, you mention nodularity "among other things"...what other types of things were listed?

Here is some information on biopsies/Celiac:

Open Original Shared Link

Happy Girl,

Thanks for the response. The endoscopy report included the following statements regarding my upper intestines. "Diffuse severe mucosal abnormality characterized by scalloping, congestion, flattening and nodularity was found in the 2nd part of the duodenum." "Mucosal abnormality in the duodenum suspicious for celiac sprue." The biopsy report was the vague one that said "Fully-developed sprue like changes." I got some cool photos from the endoscopy where you can really see the flattening of the folds. I also had stomach "erethema" that was from NSAIDS. It took a month gluten free, but I'm off the NSAIDS now without feeling like I'm gonna cry from pain. There were 8 intestinal sampels, so the pathologist should have had at least one good one to describe.

By the way, that website is great. It is new to me and I've been searching the web every chance I get. I'm going back there now to explore further.

Thanks for any information you have.

SGWHISKERS

happygirl Collaborator
happygirl
Posted

Sounds like you have a bona fide Celiac diagnosis - Guess the pathologist recognized it pretty quickly!

This board is a wonderful resource. Read, read, read, and ask, ask, ask.

Welcome to the board - happy you are here.

SGWhiskers Collaborator
SGWhiskers
Posted
  • Author

Yeah, we pretty much knew going in that I had celiac, the endoscopy was just to confirm it. I wish the pathologist report had been more descriptive or gave a Marsh level. Does anyone know if "fully developed sprue like changes" corrolates to a marsh level, or at least some level of severity?

Also, what significance does the nodularity have? I know it is a sign of celiac, but does it indicate severity? malignancy?

Thanks for your help folks.

SGWhiskers

happygirl Collaborator
happygirl
Posted

I would say that is a question (re: Marsh) that your doctor and/or pathologist need to answer for you .... and an answer that they owe you. Only the pathologist would know - others could guess, but its up to the pathologist's view an interpretation as to what that means.

mftnchn Explorer
mftnchn
Posted

I think the fully developed sprue like changes are "Diffuse severe mucosal abnormality characterized by scalloping, congestion, flattening and nodularity." There are some great sites showing endoscopies and celiac changes. Sorry don't have a link at the ready.

This means you had lots of visible damage, and didn't need the microscopic exam to clarify the diagnosis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SGWhiskers Collaborator
SGWhiskers
Posted
  • Author

Thank you for the advice folks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...