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Frances03

My 3 Children's Test Results

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Please help me understand this-thank you so much

Okay my youngest son's results say:

Tissue Transglutaminase Iga Ab: 0 units

Anti-Gliadin IgG Antibody: 0 units

Anti-Gliadin IgA Antibody: 0 units

Immunoglobulin A: 73 Normal Range 45-234

so, I think it's safe to assume he does not have celiac disease

Now my middle son's results are:

Tissue Transglutaminase Iga Ab: 5 units Normal Range 0-19

Anti-Gliadin IgG Antibody: 2 units

Anti-Gliadin IgA Antibody: 3 units

Immunoglobulin A: 37 Normal Range 45-234

now with this one, he is difficient in the total immunoglobulin but I dont even understand what I'm supposed to do with that information, and no one here in this town has a clue either. There is no reference range listed for the anti-gliadin antibodies

My oldest son's results are:

Tissue Transglutaminase Iga Ab: 18 units Normal Range 0-19

Anti-Gliadin IgG Antibody: 2 units

Anti-Gliadin IgA Antibody: 2 units

Immunoglobulin A: 108 Normal Range 45-234

So, what does anyone think here? I've been diagnosed thru endoscopy and bloodwork. My youngest son has no symptoms whatsoever other than he's hyper and still wets the bed at 8. LOL. My middle has chronic constipation and major irritablility and is on the 20% for height. His younger brother by 2 years is 2 inches taller than he is. My oldest has frequent tummy aches. Any insight is greatly appreciated!!!

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one other thing I was wondering is if there's a different reference range for children than there is for adults. my ttg iga range was the same 0-19 as they have. also I looked up the range for the iga and they have used the reference range for my middle child as 9, but he will be 10 in 2 weeks, and that changes the low to 68 not 45, so his result of 37 is lower than it looks I think. I'm hoping someone can read these with me, the doctor here just says everything is fine for them. I want to make sure!

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IMHO the children that are showing symptoms should have a trial on the diet regardless of what the blood work says. Why not consider making the household gluten-free for a couple of months and see if that makes a difference.

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Okay, thanks. I am just hoping I can get some more feedback. Are all these tests showing negative and no chance of celiac to you guys? It would be great if I am the only one that has it, but if there's any chance with my kids I will have them go gluten free too.

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bumping this up, still hoping for some more replies

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bumping this up, still hoping for some more replies

I would be worried about the child with chronic constipation and the one with the tummy aches. I agree with Ravenwood, regardless of what the tests say, why not try out the whole house-hold on a gluten-free diet and see if you notice a difference?

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The middle one has so low total IgA that his results are falsely low.

Yes, do try gluten free on all of them with such non-specific but suspicious results and symptoms.

I think they should have run the ttg IgG version on all of them too. Especially the middle one.

Enterolab testing could be something to think about with such results, and the symptoms. That way you can have some kind of "proof" for relatives who think a little gluten should not do much harm if there is no diagnosis.

They should also have celiac genes, with you being celiac. Enterolab does good gene testing (actually, they send it to the American Red Cross)

So you can use the gene tests when family questions such strict diets.

Well, there is lots left to eat.

nora

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The middle one has so low total IgA that his results are falsely low.

Yes, do try gluten free on all of them with such non-specific but suspicious results and symptoms.

I think they should have run the ttg IgG version on all of them too. Especially the middle one.

Enterolab testing could be something to think about with such results, and the symptoms. That way you can have some kind of "proof" for relatives who think a little gluten should not do much harm if there is no diagnosis.

They should also have celiac genes, with you being celiac. Enterolab does good gene testing (actually, they send it to the American Red Cross)

So you can use the gene tests when family questions such strict diets.

Well, there is lots left to eat.

nora

Thank you for your response. I will call and ask our doctor if she can order the ttg IgG test too, of course I'll have to take him back in to get poked again. :( I've seen enterolab but I'm not sure we can afford that right now, I am giving it some thought though.

Do you guys think the oldest one is fine even though his result was 18 on a 0-19 scale?? I dont understand these ranges very well.

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Thank you for your response. I will call and ask our doctor if she can order the ttg IgG test too, of course I'll have to take him back in to get poked again. :( I've seen enterolab but I'm not sure we can afford that right now, I am giving it some thought though.

Do you guys think the oldest one is fine even though his result was 18 on a 0-19 scale?? I dont understand these ranges very well.

I'm not sure how to post but I wanted to let you know I have had to have my daughter tested for a lot of things and one of the items was celiac disease. She was negative for it even though she has many symptoms of it. We are working with an immunologist for her IGA , IGG and IGM issues. She has headaches, stomachaches and dizziness, reflux among other things. They tested her for the pneumo viruses and meningitis and found out she lacked the immunity for these viruses and that was why she kept getting ill. The neurologists have diagnosed her headache, stomach pain and dizziness as migrainal. Still not sure about that. But I wanted to make sure you are working with an immunologist. This may be the problem. Most of our immune system is in the gut and the IGA has to go with the stomach, sinuses, nose, etc. I think you may be wasting your time with the celiac tests for your kids. They may be dealing with a different autoimmune disease than you have.

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