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Test Results For Celiac

Diana 2

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Diana 2 Newbie
Diana 2
Posted

Hi, I'm new to this forum. I had a blood test (TISSUE TRANSGLUTAMINASE IGA) and my results were 1.62<0.90- Index. The doctrs said I had Celiac, so they did a biopsy and it showed no damage. Now they say I am NOT celiac. I have been on a gluten free diet for a month. I had the blood test on gluten, the biopsy being gluten free for a month. So any suggestions where I go now? I have all the typical symptoms, bloating all the time, constapation, pain.

Thank you for any suggestions you might have for me.

Diana :)

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Wolicki Enthusiast
Wolicki
Posted

There are almost never false positive blood tests. Your endo was negative because you were off gluten. Doctors can't believe that they don't "see" If you feel better off gluten, combined with a postive blood test, you have your answer!

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Diana 2 Newbie
Diana 2
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Posted
There are almost never false positive blood tests. Your endo was negative because you were off gluten. Doctors can't believe that they don't "see" If you feel better off gluten, combined with a postive blood test, you have your answer!

Thank you for your response. I will go with your suggestion. Have a good Thanksgiving minus the "gluten"

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Wolicki Enthusiast
Wolicki
Posted

You too! Feel well!

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lizard00 Enthusiast
lizard00
Posted
Hi, I'm new to this forum. I had a blood test (TISSUE TRANSGLUTAMINASE IGA) and my results were 1.62<0.90- Index. The doctrs said I had Celiac, so they did a biopsy and it showed no damage. Now they say I am NOT celiac. I have been on a gluten free diet for a month. I had the blood test on gluten, the biopsy being gluten free for a month. So any suggestions where I go now? I have all the typical symptoms, bloating all the time, constapation, pain.

Thank you for any suggestions you might have for me.

Diana :)

How many biopsies did the doc take? There are 22 ft of small intestine, so it's more likely that he missed it than that you were completely healed (in one month's time). Did you start to see results with the gluten-free diet? If so, then you have your answer. While tTG is pretty specific to celiac, it can occasionally be indicative of other things, so just pay extra attention to your symptoms to make sure you are pursuing the right path of treatment.

Welcome to the forum!!

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    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      Constant low back, abdominal and pelvic pain!

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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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