Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

This Is So Odd... But My Rash Went Away And Came Back


amberlynn

Recommended Posts

amberlynn Contributor

I have had this red rash my ENTIRE life. I can see it in the pictures from when I was younger. Not so much as an infant, but you can see it as I age...

It doesn't itch. It's not bothersome at all, except for the fact that its really, really noticable.

It's a red, bumpy acne looking rash on my arms and legs. My chest and battle scarred tummy have escaped it. A derm once told me it was acne, and gave me a harsh antibiotic to clear it up - all it managed to do was make me REALLY sick...

Now, my arms were CLEAR last week. Til I got glutened over the weekend. I had NEVER seen my arms completely clear! This rash is so unsightly, and noticable, that I would never wear shorts or tank tops, etc... I so welcomed having it gone :( .

Can this be related to Celiac?? I'm really starting to think I should have gotten a diagnosis for sure... not gonna happen now, but whatever. I'm just curious if anyone else has experience this, and if its just one more clue to my puzzle!

I so can't wait to win the lottery and get the genetic test done, lol ;).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

The rash could be dermatitis herpetiformis (DH). There is a whole section of the board for it. DH is a skin condition that some people with celiac develop.

amberlynn Contributor

From what I read though, DH is itchy and turns to scabs... mine is neither. It stays in the same condition all the time. It doesn't look like any of the DH pics I've seen either. Though, when glutened, my son gets a much larger scale of this that also doesn't seem to bother him.

Thankfully, its looking better this morning. I can tell its starting to leave my system (the gluten), b/c my head is clearer and the nausea is gone ;). So bizarre!

summerteeth Enthusiast

Have you researched keratosis pilaris? My mom gets something similar to what you are describing and that is what her derm told her she had.

amberlynn Contributor

Yup, thanks, thats what it looks like!

I wonder why its coming an going... I always put moisturizer on after my shower, and its never changed. My body is so weird sometimes, lol :)

Thank you!

amberlynn Contributor

Yup, thanks, thats what it looks like!

I wonder why its coming an going... I always put moisturizer on after my shower, and its never changed. My body is so weird sometimes, lol :)

Thank you!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,119
    • Most Online (within 30 mins)
      10,442

    coeliacmamma
    Newest Member
    coeliacmamma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ
    • Ginarwebb
      thank you so much for this information .. if I'm reading the results correctly I believe the range was  <15.0 Antibody not detected > or = 15.0 Antibody detected
    • coeliacmamma
      My 16 year old has just been diagnosed with coeliac, she loves food and is now struggling with the diet. She has a variety of different co editions and thos one just tops the list, she is a musical theatre student at college and loves what she does but fatigue gets in way alot of the time, are there any good amd tasty meals I can k make that will help?  Thanks for reading.
    • BelleDeJour
      Thank you so much @suek54 How are you doing today? I spoke too soon yesterday. Something (I can only think gluten-free sweets or a can of soft drink) set me off yesterday. Had a bath, applied some cream, still itching so applied some steroid and was awake until 3am. It's so frustrating. Always 2 steps forward, 1 step back. I am at work now and going to play it very much on the very safe side with food for the next few days.  My derm appointment is less than a week away. I will update on here because I do feel it important to help others. 
    • Scott Adams
      I’m sorry you’re going through all of this. It sounds very stressful, especially when you feel that your symptoms are not being taken seriously. Until you are seen next week, it may help to keep the focus very practical: take clear photos of the skin sores, write down a timeline of symptoms, list all medicines, eye drops, supplements, implants/leak history, and any test results, and bring that to the dermatologist. If there is drainage, spreading redness, fever, worsening pain, eye involvement, or signs of infection, that needs prompt medical care. I would be cautious about assuming parasites or staph without testing, and also cautious with new supplements or putting vitamin C directly on sores, since irritated skin can get worse. A dermatologist can culture lesions, biopsy if needed, and refer to infectious disease if the findings point that way. On the celiac side, I understand your concern for your son, but being HLA-DQ2 positive does not by itself mean he has celiac disease; it means he has a genetic risk. If he is eating gluten now, this is actually the best time for proper celiac blood testing before he tries a gluten-free diet. His symptoms, weight, congestion, and family history are worth discussing with a gastroenterologist, but he should not be told he has celiac based only on HLA status. For your own care, try to keep pushing for objective testing and clear documentation in your records, because that is often what gets doctors to take the next step.
×
×
  • Create New...