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I just had the follow-up from my biopsy with my GI doctor. He said the Marsh score was a 3B. He explained how it meant the villi were flattened, but not gone, but wasn't very clear on how long it should take to heal. Does your Marsh score have anything to do with how long it will take to heal? It seems like it should since it shows the level of damage, but that's just my guess. Anyone with any insight on this?

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I just had the follow-up from my biopsy with my GI doctor. He said the Marsh score was a 3B. He explained how it meant the villi were flattened, but not gone, but wasn't very clear on how long it should take to heal. Does your Marsh score have anything to do with how long it will take to heal? It seems like it should since it shows the level of damage, but that's just my guess. Anyone with any insight on this?

Healing take vary from individual to individual and can range from a few weeks to two years. True diligence will be your key to success.

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The villi actually have a pretty quick regrowth rate. That is why we have to be actively eating gluten and if we have been gluten-free we need to challenge for a couple months to redamage enough for diagnosis. Damage can also be patchy so the damage he found in the area the biopsied may not be the same amount of damage all throughout your small intestine. This can actually work against some of us by leading to false negatives with biopsies. Your lucky you have a very definate diagnosis. Though it might not seem that way right now.

As mentioned there can be a variety in the length of time it takes to heal. Most are feeling better within a month or two. Some even sooner. You will need to be strict and many find it helpful to avoid dairy as well for a couple of months. Go with whole unprocessed foods to start. It is easier and you will heal faster as you will have less chance of CC. Read as much as you can here and ask any questions you need to. If your strict and take the precautions we need to take (like not sharing toasters [you need a new one] and condiments with folks eating gluten) you should be feeling much better soon.

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Posted (edited)

This study discusses various timelines and the amount of healing that occurred over time frames. Specifically to the villi

 

https://academic.oup.com/ajcp/article-pdf/118/3/459/24982138/ajcpath118-0459.pdf

Just realized this post is 9 years old. Google showed it being updated 4 days ago. Oops

i still think the study answers the question ?

Edited by Hikehikehut
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21 minutes ago, Hikehikehut said:

This study discusses various timelines and the amount of healing that occurred over time frames. Specifically to the villi

 

https://academic.oup.com/ajcp/article-pdf/118/3/459/24982138/ajcpath118-0459.pdf

 

The link doesn't seem to work.

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12 hours ago, Hikehikehut said:
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Yep, that link works!  Thanks!  That's an interesting article on celiac recovery.  I was surprised they said 7% of celiac patients they followed died of refractory celiac complications.

 

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