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How High Was Your Iga When Diagnosed?

dhiltonlittle

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dhiltonlittle Contributor
dhiltonlittle
Posted

Just Curious!

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Roda Rising Star
Roda
Posted

Do you mean the IgA tTG or total IgA? My tTG was around 78 with >19 positive and I'm not IgA deficient. My last tTg was 6 and that was Feb. of this year. I didn't get the whole panel unfortunately in 2008. I didn't have the AGA IgA/IgG until 6 months later and thery were both positive.(I can't remember the #'s). Had them repeated in Feb. also and the IgA AGA was just under so it was considered negative but the IgG AGA was still positive.

Lgood22573 Rookie
Lgood22573
Posted

Anti-gliadin IgA: 57 Units (greater than 10 is pos)

Anti-tissue Transglutaminase IgA: 98 Units (greater than 10 is pos)

MartialArtist Apprentice
MartialArtist
Posted

TTG IgA was listed as ">100". My lab document says negative result is <4 and definitive positive is anything >10 (someone else posted >19 as positive. Doesn't matter, I guess b/c 100 is > 19 anyway!) :)

nutralady2001 Newbie
nutralady2001
Posted

tTG 300 (0-35)

All other antibodies "detected"

kiddys003 Newbie
kiddys003
Posted

My anti transglutaminase IGA was 130

masterjen Explorer
masterjen
Posted

Less than 36 was considered normal at the clinic I went to. My reading was listed as ">200".

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Shannonlass Apprentice
Shannonlass
Posted

Less than 36 was considered normal at the clinic I went to. My reading was listed as ">200".

Mine was something along the same lines. My consultant said it was the highest he had ever seen.

Korwyn Explorer
Korwyn
Posted

My results were Anti-gliadin IGA 135, and tTg IgA was 92. Reference range for both is anything under 10 is normal.

lovegrov Collaborator
lovegrov
Posted

Iga somewhere around 70; ttg 220 or so. Over 20 was positive. And villi were completely flat.

GoPhils Newbie
GoPhils
Posted

11.6 and 6. Mildly blunted villi.

farmwife67 Explorer
farmwife67
Posted

Fecal Anti-gliadin IgA: 33 Units (active dietary gluten sensitivity)

Fecal Anti-tissue Transglutaminase IgA: 11

I was concerned that 11 was so close to normal that I should consider it normal. I called enterolab and they told me that there is no such thing as a little positive. It is like being a little pregnant. Your either positive or your not, and I am positive.

sunnybabi1986 Contributor
sunnybabi1986
Posted

Anti-gliadin IgA: 10 units, less than 10 being normal

Anti-Tissue Transglutaminase IgA: 10 units, less than 10 being normal

As farmwife said, I originally thought maybe it was a mistake since I was "on the line" between gluten sensitive and "normal", but I saw dramatic changes in my health after going gluten free. My husband is super excited that I'm out gardening this year...this time last year I was literally bedridden and could barely eat anything. A lower IgA doesn't really mean much, as I've seen a lot of people on here with strong symptoms and lower IgA numbers, and people with little or no symptoms with very high IgA numbers.

inmygenes Apprentice
inmygenes
Posted

My IgA was >100 and my doctor said it was the highest he'd seen. I just got tested again, a year later (my idea to make sure it was down and that I'm not getting contamination!) it came out at >29 which is not good, means I'm getting contamination and I thought I was being really strict, must have very low tolerance.

inmygenes Apprentice
inmygenes
Posted

That's interesting, as mine after a year on a gluten-free diet is IgA >29 and I've always been mostly asymptomatic and feeling healthy. It's such a complicated disease and makes me wonder what else is going on. I know doctors that will dismiss patience with a borderline results as not needing to cut out gluten, seems they are very misled.

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  • Posts

    • ErinV
      Decreasing tTiga?

      By ErinV · Posted

      Thanks for the information.  I get not using a biopsy to diagnosis.  In fact, when we had the original biopsy done, my husband and I were very hesitant and didn't understand the need for it.  The doctor kept telling us it was the only way to diagnosis Celiac, yet also said there's no other diagnosis that would have given her positive EMA-IgA and tTG-IgA results.  So, we didn't understand.  Her biopsy came back negative, but because she wasn't even 3 at the time, the dr said she didn't want to go too far down into her system, and it was possible the damage was there and just not biopsied.  So, still no clear answer, which was frustrating. I'm confused now though with these results.  Why did her EMA-IgA results suddenly come back negative after the first 3 tests all showed positive?  And why is her tTG-IgA going down?  Could it be as simple as lab error?  Does the actual number matter, or the fact that it is so positive tell us everything we need to know?  I don't want to scope her again.  She has no symptoms that we can pin point to Celiac, but also aren't sure of what we don't know.  Is her tiredness a symptom that we just aren't paying enough attention to?  If we decide these results are enough, and start taking away all gluten products, how will we know if it is truly Celiac?  Another bloodtest in 6 months with lower tTG-IgA numbers could mean the diet is working, but couldn't they also decrease on their own like they did this time?
    • Scott Adams
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      It’s tough when dietary needs collide like this—you’ve mastered gluten-free baking, only to hit another hurdle with your husband’s potato allergy! Since you prefer smoother textures (and oat flour is hit-or-miss), here are a few potato-free flour/blend options to try: Cup4Cup (Multipurpose or Wholesome blend) – Their standard version is cornstarch-based, but avoid their ‘Plant-Based’ blend (has potato). Better Batter Original – Rice- and tapioca-based; great for cakes/cookies. Anthony’s Goods Cassava Flour – Neutral taste, works well in blends (try mixing with a bit of xanthan gum). Namaste Perfect Flour Blend – Tapioca/sorghum base, though some find it denser—might work for heartier bakes. If you’re up for DIY blends, arrowroot starch + sorghum or brown rice flour can mimic potato starch’s binding. Texture preferences are so personal, so it might take some experimenting—but I hope one of these clicks for you! Would love to hear what works if you give any a try. We also have some recipes for your own flour mixes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-flour-mixes/ Happy baking!
    • Scott Adams
      Breastfeeding and Celiac

      By Scott Adams · Posted

      First, it’s amazing how proactive you’re being for your whole family—that’s such a gift to your kids! Regarding breastfeeding and gluten: Current research suggests gluten proteins (the problematic part) don’t pass into breastmilk, only smaller gluten peptides that aren’t likely to trigger celiac. So unless you notice direct symptoms in your 1-year-old (e.g., reacting after nursing when you’ve eaten gluten), most experts say you don’t need to restrict your diet solely for breastfeeding. That said, if your daughter tests positive, you might consider limiting cross-contact at home (e.g., avoiding kissing her right after gluten) since residue on your hands/face could transfer. Your plan to stay gluten-free at home but flexible outside sounds totally reasonable—many celiac households do this! The only caveat: If you end up having celiac/non-celiac gluten sensitivity (even with a negative blood test—some need biopsies!), then stricter avoidance would help your own health. Wishing you clarity as you wait for results, and cheers to that future beer with friends when possible! 
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    • Scott Adams
      Do I have Celiac’s Disease?

      By Scott Adams · Posted

      Welcome! It’s great that you’re getting answers through testing, even if it feels overwhelming right now. Your results show mostly normal ranges, but the weak positive in TTG IgG could suggest gluten sensitivity or early celiac—especially since you already react to gluten. Hashimoto’s and celiac/gluten issues often overlap, so it’s smart to investigate further. Hopefully your doctor will clarify next steps (maybe an endoscopy or gluten-free trial?). Either way, listening to your body is key. Hang in there, and keep advocating for yourself—you’re already on the right track! The next step is likely an endoscopy to confirm celiac disease, and for that, similar to the blood panel for celiac disease, you need to be eating lots daily in the weeks leading up to it. Let us know what your doc says. 
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