Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac?

hercules25

Recommended Posts

hercules25 Apprentice
hercules25
Posted

Hi Everyone. I am so confused.

Symptoms - nausea, abdom pain, fatigue, vision problems, , tingling in feets and hands, headaches, sore muscles, constipation, bloating,

My CT scans Neg, colonoscopy shows mild inflammation where small intestines and colon meets, MRI scan normal, Gastritis in stomach, etc, etc, LOL

No fever, no bleeding

Normal blood work except:

increased eosinophils (in my blood) my doctor says this indicated to him he thinks my problems are from food allergies but I had the prick food allergy test and negative.

Many of my symptoms do and do not match Chrons disease (per the doctor) but after the test below my dr says he has his doubts but he is gonna treat me for Chrons but none of the meds work. I have read on the internet that this test can also indicate Celiac Disease. My primary dr said he did a celiac panel and it was negative. My Gastro order this test and it came back positive.

Other bloodwork that is positive

Saccharomyces cervissiae, IgG 34.9 High (over 25 is Positive)

Saccharomyces cervissiae, IgA 48.5 High (over 25 is Positive)

I have been sick for 13 years and over it. Any advice would be great.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Coinkey Apprentice
Coinkey
Posted

An easy way to find out if it's gluten related is to go gluten free for a while. I figured out my symptoms were gluten related when I ran out of money (I'm on student loans), which meant I ate all the gluteny products left in my house- leaving me with the potatoes and rice for a week. I felt SO MUCH BETTER after just one week and it finally clicked. I've been gluten free for a month (aside from accidental glutenings and they are HORRIBLE). So, just give it a try and see if anything improves! good luck!

Skylark Collaborator
Skylark
Posted

Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.

hercules25 Apprentice
hercules25
Posted
  • Author

Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.

I am not sure how I would have no damage. Its been 13 years of sick and pain. And a handful of intestinal infections. I am starting to think from the test results it is probably Chrons.

WheatChef Apprentice
WheatChef
Posted

I tested negative for IgA-TTg (the main celiac marker) and yet whenever I eat gluten it feels like I have shrapnel dragging through my intestines for a few days. The blood tests don't mean squat compared to how you react to a gluten-free diet.

Marz Enthusiast
Marz
Posted

Many of my symptoms do and do not match Chrons disease (per the doctor) but after the test below my dr says he has his doubts but he is gonna treat me for Chrons but none of the meds work. I have read on the internet that this test can also indicate Celiac Disease. My primary dr said he did a celiac panel and it was negative. My Gastro order this test and it came back positive.

Hi and welcome :)

Sorry to hear you've struggled with this for so long. :( I'd recommend trying a strict gluten free diet - you have nothing to lose but restricting yourself to certain foods for a few weeks. If you notice a huge impovement, you could let your doctor know about this, and maybe see if you still need the meds? I'm surprised your Gastro didn't recommend this after the panel came back positive?

hercules25 Apprentice
hercules25
Posted
  • Author

Thanks. I am starting gluten free today. I was not sure if there were 2 different IgA and IgG test. One for Celiac and one for IBD. I guess I am just confused. After the blood test he thought ok lets treat you for Chrons but he has his doubts too. I wonder why he did not talk about Celiac. Maybe its both.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
×
×
  • Create New...