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10 Days Ago I Glutened Myself

adab8ca

By adab8ca
in Coping with Celiac Disease

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adab8ca Enthusiast
adab8ca
Posted

10 days.

I am still a mess. I cannot believe that I can be so derailed after almost 8 months gluten free to have almost two weeks of this CRAP. (and I do mean crap. literally and figuritively). SO tired. Joint, bone and nerve pain. Feet and hands are killing me, mouth is burning. Canker sores. Stomach issues-well, you don't even want to know. Yesterday I thought I may be feeling a bit better but that was a lie apparently. I am so shocked that the affects are so far reaching and lasting so long. It was less than crumbs. The crushing insomnia has started up again as well. There is nothing else that I can attribute this to. I have been so careful eating, vitamins etc...

I am just venting, this is so demoralizing!

It does prove to me that I should never eat out if I can have this happen in my 99% gluten-free home!

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IrishHeart Veteran
IrishHeart
Posted

I am so sorry you are still having these symptoms. :( That IS a long time to feel bad after only a few crumbs. I am always hearing that CC happens, even if you are careful --in a home that is not 100% gluten-free.

I wish I knew what to say to help.

Your symptoms are so much like mine (from the nerve and joint pain right down to the burning mouth) so I empathize. (((hugs)))

The only thing I know to do is drink A LOT of water. Eat plainly, things like cream of buckwheat cereal. Pamper your tummy. I have read that if you do not use probiotics, you might want to as they repopulate the good bacteria and move things along (balancing out the D and C) and reduce the effects of gluten.

Some people use Pepto?

I sometimes ice my back( spine.) It helps knock down inflammation in the nerves.

Can you take hot baths?--soak out the toxins-- especially before bed to calm you down.

Do you like chamomile tea?

Don't try peppermint tea or ginger or any of those things--they will just burn your mouth and tummy more. Avoid citrus, coffee or regular tea.

Rest. These are just a few things that have worked for me.

Unfortunately, riding it out is all we can do.

I am sending healing thoughts your way.

adab8ca Enthusiast
adab8ca
Posted
  • Author

Oh yeah, our symptoms are SO similar...Soul sister in hell?

I just don't believe it is a flu because of all of my typical "nerve" and insomnia symptoms...

I am just trying to take it easy, but I am SO mad!!!

ok, stepping off my pity pot :)

hugs back

ada

tictax707 Apprentice
tictax707
Posted

I know this won't actually take away any of the pain, but you are definitely not alone!! I understand that this is totally frustrating. Sadly, I think the rollercoaster of better-not better-better-not better is just part of the process. It's a bummer that improvements are not linear like the common cold. I can finally say I am 99.9% recovered from being exposed to gluten on March 9th. (5 weeks - I am not even kidding). The getting better and then getting worse rollercoaster was pretty tough. I got exposed was from a lone crouton I found at the bottom of my salad at a restaurant (I didn't even eat the crouton of course!!). However, my problem was more that the gluten triggered my lymphocytic colitis and *that* took forever to resolve. If you don't have colitis, then I would predict that you are just about due for recovery and the sun is just about to shine for you. Here is sending positive healing vibes your way!!!

IrishHeart Veteran
IrishHeart
Posted

Oh yeah, our symptoms are SO similar...Soul sister in hell?

I just don't believe it is a flu because of all of my typical "nerve" and insomnia symptoms...

I am just trying to take it easy, but I am SO mad!!!

ok, stepping off my pity pot :)

hugs back

ada

soul sisters indeed B)

hang in there, ada.

You're going to be okay.

um...Nothing else in the house with hidden gluten, right???

((hugs))

bonespsyd Newbie
bonespsyd
Posted

I totally get you! I was just looking around at posts today, as I accidentally glutened myself 3 days ago (a fun-sized candy bar...thought it was gluten free...NOT!).

I have extreme fatigue, wrist and foot pain, dry eyes, headache, constipation and bloating (feels like I have a flaming brillo pad working its way through my GI track (gross, sorry) and feel like crying. I know (from experience) that this will last about a week.

I've been gluten free for almost 18 months and I am AMAZED at how long it takes to recover from a tiny amount of gluten.

Hang in there, you are not alone!

IrishHeart Veteran
IrishHeart
Posted

I totally get you! I was just looking around at posts today, as I accidentally glutened myself 3 days ago (a fun-sized candy bar...thought it was gluten free...NOT!).

I have extreme fatigue, wrist and foot pain, dry eyes, headache, constipation and bloating (feels like I have a flaming brillo pad working its way through my GI track (gross, sorry) and feel like crying. I know (from experience) that this will last about a week.

I've been gluten free for almost 18 months and I am AMAZED at how long it takes to recover from a tiny amount of gluten.

Hang in there, you are not alone!

Bummer....was it a "fun size" snickers bar by any chance? Not that I eat them, but someone else was wondering about those...

Hope you feel better soon!! And wow!...To go so long without an accidental glutening is remarkable!! Good for you. You'll be back on track in no time, no doubt.

I am familiar with that "flaming brillo pad" working its way through...and OUT.......excellent description! :blink:

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